Tag: autism

Another thing about rocking

Real Social Skills

Rocking can make things bearable that aren’t otherwise.

There is the rock for when it’s scary. Or overloading. That helps. It does.

And sometimes, rocking makes it possible to stay in situations and have interactions that would otherwise be impossible.

If you get overloaded and you don’t rock, it might be time you tried.

About rocking

Real Social Skills

Among other things: Rocking is body language. Rocking is emotions. 

There is a slow happy!rock. And an anxiety!rock. And anger. And affection. And any number of others. And they are not the same.

And it is possible to look and understand. It is possible to learn how to read rocking, to know what it’s showing.

This is body language. Meaning shown on a body.

They tell us that we do not have body language, that we have a flat affect. And then they try to make this true; they try to flatten us and stop us from moving and showing emotional body language.

But we aren’t flat. We have body language. And rocking is part of it. (And any number of other movements. Not just rocking. But rocking is on my mind.)

I can’t tell you how to read it. Not much. Not yet. I’m trying to figure out some of the words for that. It is hard to describe body language in words, even body language that is socially valued enough that a lot of people have tried. All the more so this.

What I can tell you is that autistic movement is meaningful. Not mysterious. Not ethereal. Not in-another-world. Meaningful, present, and possible to understand.

(Not simple. Communication between people is never simple, and never formulaic. Meaningful. Complicated.)

Keep that in mind. The first step to understanding is knowing that there is something to understand.

Meeting sensory needs without violating boundaries

Real Social Skills

Sometimes people feel a strong need for a certain kind of sensory input, and then use other people’s bodies to meet that need even over their objections.

It’s not ok to do that. Not for sex, not for comfort, not for any other reason. People’s bodies are their own.

But sensory-seeking isn’t the problem. Failing to respect boundaries is the problem. There are other ways to get sensory input that don’t hurt anyone.

Here are some things that can help.

Squishables. These are giant big round stuffed animals. Hugging them feels like hugging, and hugging them and rocking can be very satisfying.

Fidget toys, like the ones available at Office Playground, can be helpful for some people.  Having something satisfying to do with your hands can make things feel a lot better.

Dollar stores and cheap stores and the cheap kid toys rack that a lot of stores have can be a good source for cheap fidget toys, too. (Silly putty works well for some people, for instance).

Wooden baby toys like this one and this one can be good. So can marbles. (Because they are hard and smooth and round and cold and can be rolled).

Listening to music on headphones can make being in spaces bearable. (Sometimes spaces are bearable either by holding onto people, holding objects, or listening to music with headphones. It’s good to have options that don’t require hanging onto others).

Stimming without objects can help too – flapping and rocking, in addition to being expressive body language, can be really useful as ways to regulate oneself and meet sensory needs.

Sensory Squids is a good blog about this for adults. (Because, you know? Most of us don’t outgrow this).

About speech abilities

Real Social Skills

Some people can speak easily.

Some people always have difficulty speaking.

Some people never speak at all.

Some people can speak, but at a cost that’s not worth it.

Some people are better off communicating in other ways.

Some people speak sometimes, and type other times.

Some people have words all the time; some don’t.

Some people can speak fluidly, but only on certain topics. (Just like how one can be fluent in some topics in a foreign language, but be unable to read the news).

Some people lose speech at certain levels of stress.

Some people rely on hand movements and stimming in order to find words.

Some people have a monotone and convey tone through motion.

Some people make a lot of mistakes with words, and rely heavily on tone to make themselves understood.

Some people rely heavily on scripts, and only sound normal when they stay on-script.

Some people use phrases from television.

Some people communicate by repeating themselves, and tend to be perceived as not communicating.

Some people say a lot of words they don’t understand, and are perceived as having meant them.

Some people substitute one word for another a lot, and don’t always realize it.

Some people can answer questions even when they’re having trouble initiating speech.

Some people who find speech easy sound odd.

Some people who find speech difficult sound normal.

You don’t really know how someone communicates until you’ve communicated with them substantially, and even then, you only know in the context you’ve communicated in. Appearances can be deceiving.

And it’s important to be aware that all of these things exist.

Autism awareness for aides

Real Social Skills

flannelfrog asked:

I recently got a job offer to be an in-school aid for a gradeschooler I know with aspergers and I’m genuinely afraid to take it because, while I have teaching experience, I’ve never been an aid before. I’m afraid I’ll do something wrong and mess the kid up for the rest of his life. Do you have any advice for me?

Several piece of advice:

First, shift the way you’re thinking about this.

The problem before you is how to do right by a kid in your care. Thinking in terms of wanting to avoid doing something wrong and messing the kid up for the rest of his life is going to make it harder for you to do right by him.

You’re going to do things wrong (you’ve done things wrong in every teaching job you’ve had, it comes with the territory); and it’s going to be important for you to acknowledge and fix your mistakes. Making possible mistakes, even serious ones, a referendum on whether you are a good person, makes it a lot harder to do right by others. I’ve written about that before, here.

Treat him as a person

  • Almost universally, autistic people are treated as though they aren’t quite real, especially by caregivers
  • Often, they think of this as looking past the autism to see the real person
  • But the autism is part of who he is.
  • Don’t attribute some things to him, and others to the autism. He is real all the time.
  • He is a real person. Already.
  • Your job is not to cure him. Your job is to support him and help him to develop his abilities. Learning to do more things will not make him any less autistic, nor should it.
Do not try to make him indistinguishable from his peers
  • Because, seriously, what kind of a goal is that?
  • He’s worthwhile as a person, and he’s different from most other people, and it’s ok.
  • He has better things to do with his time than fake normal.
  • Being able to do awesome things is way better than being able to look normal while doing pointless things
  • It’s ok to be different.
  • Don’t pretend that he’s really just like everyone else, or that he will be when he grows up.
  • One of the most important things you can teach an autistic child is that it is ok to be autistic

Forget everything you think you know about the difference between autism and Asperger’s syndrome:

  • People whose diagnosis is Aspergers syndrome are autistic
  • Autistic people who can speak are disabled
  • There isn’t actually any fundamental difference
  • Except that people considered autistic are often seen as incapable, and people considered to have Aspergers are often seen as faking their difficulties
  • Assume disability and ability, and that you will have to figure out how that works for the person you’re working with

Learn how he communicates.

  • All autistic people have some sort of atypical communication
  • Some autistic people are really good at hiding it, and looking normal at the expense of understanding what is going on.
  • Autistic children, particularly boys, often pretend to be acting out in order to mask disability. Be mindful of this possibility.
  • A good percentage of the time, when autistic people repeat things over and over, they are trying to communicate something and aren’t being understood. Be aware of this, and learn how to make communication possible in this situation.
  • If he seems not to understand something, do not get angry and assume he’s just being defiant or lazy
  • Some things are really really hard to understand, even though they seem simple to people with typical development
  • For instance, an autistic child who has been isolated might find fiction other kids their age understand completely incomprehensible because they can’t relate to the experiences and relationships it describes

If he makes repetitive motions, assume they are important:

  • A lot of autistic people rely heavily on motion to think well
  • Or to communicate
  • Or to understand things
  • Or to find words
  • Or to regulate themselves.
  • If you prevent an autistic person from making repetitive motions, you’re probably also preventing them from doing things like understanding what’s going on, communicating, and learning self-control and interaction.
  • Do not value a typical affect over learning and communication.
  • Do not say “quiet hands” for any reason ever. (Unless you’re saying something like “people shouldn’t tell you ‘quiet hands’”)

Do not make him follow rules the other kids are allowed to get away with breaking

  • Because that’s unfair, and humiliating
  • And it also prevents peer relations
  • It also prevents him from learning how rules actually work, which is a vitally important skill, especially for people who are likely to spend large parts of their life subject to arbitrary decisions made by people with too much power over them

Do not confuse him about consent, and help him learn what consent is

  • If something is an order, do not phrase it as a request. Doing so teaches people to be incapable of saying no.
  • Ask a lot of questions that actually are requests, and go with what he says, even if it’s not the answer you wanted.
  • If he always says yes when you ask him things, assume this is because he has been taught to be incapable of saying no
  • Ask questions in ways that remind him that saying no is possible
  • Or questions in ways that don’t seem to create a compliant option and a defiant option at all.
  • For instance “do you want to stay inside today, or would you rather play on the swings?”
  • But questions that are real. Not forced choices in which each option is basically compliance.

Support him in navigating the difficult and often hateful world he lives in

  • Do not make him play with kids he dislikes, even if this means he doesn’t play with anyone
  • There are worse things than being alone. Being surrounded by people who everyone insists are nice and your friends, but who actually don’t think you’re real or treat you well is much worse than honest loneliness.
  • It’s possible, and likely, that there are very few kids, or even no kids at all, in his group who it is a good idea for him to spend time with
  • And even if you think he’s wrong about this, it’s a decision he should be making for himself (and his judgement is probably better than yours)
  • When kids or adults do bad things to him (and they will), you usually won’t be able to make them stop. You should tell him that what they’re doing is wrong, and that it’s not his fault.
  • Knowing that it’s wrong, and that others know it’s wrong, helps a lot.

Some things you should read:

  • Ballastexistenz From the beginning. Every post. It has a lot of fundamentally important things about power, and dehumanization, and about seeing people as real. This blog has a lot of the best things that have ever been written on this topic.
  • Rolling Around In My Head is also a really good blog, written by a disabled man whose professional work is supporting people with disabilities. He says a lot of things worth knowing. Also his book Power Tools is important for understanding how this power dynamic works – and your environment and training will put pressure on you not to understand it.
  • Loud Hands: Autistic People Speaking is a really important book about autism and the world written by insightful autistic people. Buy it and read it and understand it, and it will help you to do right by this boy and others

Interacting with marginalized people who do valuable things

Real Social Skills

Sometimes people do unusual things, things that people like them are not expected to do, things that might even be taboo. 

This happens to autistic folks, men who do childcare or raise their kids or otherwise “women’s work”, women who do many things, people with other disabilities, children and teenagers who accomplish things, basically any group of people who are often not expected to do things.

And sometimes people who want to support them end up making things worse. This is too abstract, so I’m going to give an example. This is not specifically a women’s issue; I’m using that as an example because it’s one I’ve seen a lot:

Say, a woman is the first female research scientist. And that she’s overcome a lot of opposition to get to this point.

And now that she’s finally gotten to the point of being allowed to do research that other people take seriously; 90% of the time what people want to talk about is her gender. About what it’s like to be a female whatever or the first female whatever.

Even when she’s come to give a presentation on her research – people who ask questions at the end all ask about what it’s like to be a female scientist and not what she’s actually presenting on.

And it’s hard to assert boundaries about this without just being seen as an uncaring bitch.

Many of the people are just curious, sometimes in a creepy way. Some people asking about it are hostile, and want to show that they really don’t think women should be allowed.

But sometimes, the hardest thing to take is people who want to tell you how great it is that you’re a female scientist, who mean to be supportive, but who are still really intensely focused on the freaky female part rather than the scientist part. Because, then, even the people who like you aren’t really taking you seriously, it’s *always* about the thing, the freakness.

And even then, it can seem like people are assuring you that you have their permission to be a freaky female – and being treated like you need permission by supporters 

And it’s so much better to be taken seriously on the terms you care about, on what you’re actually doing.

So, be careful about that. The best way to support someone who is doing something important and stigmatized is to value the thing they’re doing, and take them seriously as someone who does it.