Shutting up won’t get you heard

Tone is important. When you say things the right way, it can increase the number of people who are willing to listen to you. 

But that only goes so far. No matter how good you are at framing things, some things that need to be said will upset people who feel entitled to be comfortable. And, when you upset people who feel entitled to comfort, they will lash out at you. This is not your fault; it is theirs. Tone has its limits.

Also, getting tone right is really hard. No one starts out good at tone; it’s a very difficult skill that you can only learn with practice. And the only way to get practice is to spend a lot of time talking to people about controversial things. Which means that, in order to get good at tone, you’re going to have to spend a lot of time talking about these things while you’re still bad at tone. 

People who mean well and genuinely want you to be heard understand this, and will encourage you to keep speaking up and keep working on your skills at speaking up effectively. People who want you to shut up about the things you’re talking about will try to make you feel horrible about your tone and convince you that your tone means you have no right to say anything.

Sometimes, when people say that you should be more careful about tone so that you can be heard, what they really mean is “I don’t want to hear that, shut up and say something else I’m willing to listen to”.

Don’t believe those people, and don’t shut up. The most important thing is to keep talking. If you are bad at tone, some people will refuse to hear you. If you are good at tone, some people will still refuse to hear you. If you say nothing for fear of getting the tone wrong, no one will hear you.

Shutting up won’t get you heard. Speaking up might.

A thought about tone and comfort

If you speak about injustice and privileged people get offended, people will condescendingly explain to you that things are easier to hear if you are nice, and that you are more likely to convince people if you speak to them respectfully.

This is true, and often important to keep in mind – but people who say that to you in a conversation about injustice are usually missing the point.

They’re ignoring something fundamentally important about addressing injustice: Sometimes, the goal is not to convince privileged people to treat others better. Sometimes, the goal is to convince marginalized people that the way they are being treated is unjust and that it’s possible to resist.

There can be a tradeoff between saying things in a way it is easy for victims to hear and saying things in a way that it is easy for privileged people to hear. Sometimes, no matter which way you say it, upsetting one group or the other is inevitable. 

When you choose to say things in a way that is easy and comfortable for marginalized people to hear, you are likely to upset privileged people who are used to being addressed deferentially in these matters. And they will make their displeasure known, and other people will lecture you about being kind and building bridges.

When you choose to say things in a way that is easy and comfortable for privileged people to hear, you are likely to hurt marginalized people who are accustomed to having their feelings disregarded. They are unlikely to complain, because complaining rarely helps and often invites retaliation. When you choose to make your words comfortable for privileged people at the expense of marginalized people, no one will lecture you about kindness, tone, or saying things in a way people can hear. It will not occur to them that it matters how the victims of injustice feel in conversations about injustice.

This dynamic will be invisible to those who lecture about tone and kindness, but it should not be invisible to you. Do not let others pressure you into disregarding the feelings of marginalized people for the sake of the powerful.

Thoughts on aging, assisted living, and death

When people age, they often move to assisted living facilities, either by their own choice or in response to outside pressure. Often, these facilities present themselves as being basically just like living in your own apartment, except that they clean for you, provide meals, and offer enjoyable activities.

And, when people first move in, this is generally true. People who can do the activities of daily living without help retain control over their lives, can come and go as they please, and live very similarly to people who live in their own places. But as residents age, they loose physical and cognitive abilities, and often lose control over their lives. What once looked like an apartment can look like an institution really quickly when you start to need more help.

On TV, we never see aging or death depicted very accurately. People who die on TV don’t decline over time, they’re just there until they’re not, and sometimes they look perfectly healthy in a hospital bed before they aren’t there. And sometimes, not being there isn’t dying, sometimes it’s being put into a home.
Real death is not like that. Real death is not usually sudden. People who die of old age normally become disabled first. On TV, when you become disabled enough for it to matter, you disappear. In real life, you are still there, you are still a person, and you still care about your life.
So, if you’re old enough to be considering moving into an assisted living facility, you’re old enough that you need to plan for what will happen as you become more disabled. Don’t assume that the people who run your residence will know what to do; you will be better off if you make the decisions rather than outsourcing them to other people.
On valuing your life:
If you are old, people might pressure you to refuse treatment for medical conditions you have so that you will die sooner. They might euphemistically call this dying naturally or not prolonging the dying process. But there’s nothing unnatural about using a feeding tube, treating an infection, or any number of other things people might try to talk you out of. Do not get all of your medical information from people who see the world this way. Medical decisions are yours to make, and make sure that the people advising you on your care believe that your life is worth living.
Pay attention to the disability community as well as the aging community. Some people feel like they would rather die than come to be impaired in a way they’re dreading. Hearing the voices of people who live with those impairments and value their lives will make it much, much easier for you to get past that fear.  Everything you face physically as you age is something that some disabled folks live with long-term. They know a lot about how to be disabled and still be free, self-respecting, and live. Disabled adults who live free lives and avoid nursing homes have had to gain a lot of skills that you are going to need. Not all of what they know has reached the aging community. Learn from both.
In particular: There’s a lot of fear and misinformation about feeding tubes. When people ask you to fill out a form indicating which treatment you do and don’t want, feeding tubes are one of the first things they ask about. People often see eating with a feeding tube as something like being a zombie, being undead, and living an unacceptable life. But feeding tubes are really just a way to eat and stay alive if you can’t use your mouth to eat. Similarly, breathing support is just a way to breathe. It doesn’t make you a zombie. It lets you stay alive and gives you more time to live and love and care about things.
Questions to consider:
  • When I am no longer able to walk as far as I want to go, how will I get a good wheelchair and learn how to use it?
  • If I lose the ability to speak, how will I communicate?
  • If I develop dementia, how will I communicate as I decline cognitively? What do I need to do now to make sure that if I develop dementia, I will still be treated like a person?
  • If I need assistance in the activities of daily living, will I still be able to decide how and when to do them, or will those decisions be governed by staff convenience?
  • If others decide that I am a fall risk, will I still be able to make my own decisions about when and how to get out of bed, and whether to use a bed alarm?
Just, generally speaking – your life does not end when you become disabled. It just changes. When you become disabled, your life will still be worth living, and you will still care what happens to you. Don’t let anyone talk you into devaluing it, and plan to keep your freedom.

To the creepy guy who reblogged the post about creepy guys

Someone commented on my post About Creepy Guys with a comment along the lines of:

“LOL. I guess there’s no safe place for men to flirt with women anymore, unless they’re attractive guys.”

Quote over.

That’s a creepy comment.

Here’s why it’s creepy. My post was about how it’s unsafe for women to reject unwanted attention, because men hit on them in ways that leave them no polite way to say no. Because men are allowed to implictly threaten women with impunity in public, and women who tell them off are seen as rude or otherwise bad.

If by safe, you mean places in which your attentions are guaranteed to be welcome, then no, there is no safe place and there should not be a safe place. Women are allowed to be uninterested.

Consensual flirtation is an offer. It isn’t a negotiation. It isn’t an attempt to pressure a woman into saying yes or convince her to do something.

If you’re continuing the conversation after someone has made it clear that you want them to stop, you’re being creepy.

If you’re flirting with someone in a place they can’t easily walk away from you, you’re being creepy. No one should ever be a captive audience for flirting.

If you take no as a humiliating personal insult, you’re being creepy. No is the default. Most people aren’t going to want to date you or sleep with you. They are not wronging you by being uninterested.

It’s true that hot guys tend to get away with a lot of things they shouldn’t. It’s harder to tell that someone has no regard for consent when you want the things they want you to want. It’s easier for people to tell that you’re being creepy if they aren’t attracted to you.

That doesn’t mean it’s ok to be creepy, or that women are wronging you by being creeped out. It means there’s a bad thing you need to stop doing even though some people get away with it.

A problem in discussing feminist issues

I don’t know a solution to this. I think it’s a serious problem, but I don’t know how to talk about it in a good way.

Feminist issues can get really, really hard to talk about.

There are a lot of forms of abuse that play out in a gendered way fueled by misogyny, that have some of these attributes:

  • They’re usually done to women by men (eg: rape; stalking; sexual harassment at work)
  • Almost all of the people directly affected by them are women or girls (eg: the overwhelming majority of people who need to have abortions are women or girls)
  • They are almost always motivated by misogyny 
  • There’s a pattern of misogyny that enables them to happen
  • Most of the culture is dedicated to denying this
  • People really, really pressure everyone to pretend this isn’t a misogynistic pattern

But, for all of these things, there’s also this:

  • Some of the abusers are women (eg: there are female rapists and stalkers)
  • The same thing, or a similar thing, happens to men (there are male rape and stalking victims)
  • Some people who are affected by the things aren’t women (eg: intersex folks who can get pregnant also need access to contraception and abortion and reproductive healthcare, so do trans men and nonbinary folks who can get pregnant)
  • Some people are taught they have no right to say no for reasons other than gender (for instance, this routinely happens to both boys and girls with disabilities)

That creates a complicated problem. Here’s one aspect of it:

  • People who are harmed by these things other than as a form of male-on-female abuse tend to be erased
  • And often even don’t realize that the things that happened to them actually happened, or that it’s ok to take them seriously
  • And often the only things that they have access to are things that implicitly or even emphatically describe this as something that ONLY happens to women and is ONLY done by men
  • For instance, most of the books about learning to have boundaries are women’s self-help books written in a way that suggests that being taught not to have boundaries is always mostly the result of growing up socially perceived as female a misogynistic culture
  • And it can be hard for trans people of any gender to get anatomically appropriate medical care without facing unbearable hostility to their gender identity
  • Or for female victims of female abusers to find supportive spaces, since many women’s spaces assume that men are dangerous and women are safe
  • This can be awful situations to be in, and exposure to some kinds of feminist discourse can make it worse for people who experience this pattern of abuse in a way that doesn’t fit this model

Here’s another aspect of the problem:

  • The pattern of misogyny that creates the male-on-female forms of the abuse is very much a real thing
  • And a lot of people don’t want it to be talked about, ever (eg: MRAs, people who want to say that women are just imagining everything and that really men have it just as bad if not worse, etc)
  • And some of them use other kinds of victims as pawns. And use them to say that it’s wrong to talk about women’s issues or patterns of misogyny, because there are exceptions
  • And that’s a seriously messed up form of derailing, because misogyny is real and so are the patterns feminism describes. Gendered patterns are real, and important to talk about, even though similar things happen in ways that don’t fit those patterns
  • And, more often than not, the people saying these things don’t actually care about victims who don’t fit the patterns – they often don’t ever talk about them except to derail feminist conversations

And another aspect:

  • Sometimes people who talk about lack of representation are totally sincere
  • They often get accused of derailing when they’re not remotely doing so
  • They’re interpreted this way by people who want to derail the conversation *and* by people who want to prevent it from being derailed
  • This can make it hard for these people to ever have any space to talk about their experiences
  • Or things that contributed to them
  • Or patterns of ways they happen
  • Or ways to fight these patterns and protect people

The result ends up being that there’s some people who tend to get overlooked or shouted down by just about everyone. I don’t know a good solution to this. I think noticing the pattern might be a starting place. I wish I knew more to do about it.

A shorter version of the last post

As disabled people, we learn early that it’s our job to protect abled people from ever having to notice either the logistical problems or the hate we face. And especially, we learn not to show that it hurts us. And double especially, we learn that we are not allowed to tell friends or caregivers or ~nice ladies~ or others that they are hurting us. And triple especially, we learn that we are not allowed to be angry because that’s ~just the way it is~ and ~people don’t understand~.

I think that protecting abled people from having to notice disability and ways we are harmed as disabled people goes so deep we do it automatically and without noticing most of the time. And abled people *really* don’t notice, because they think it’s normal and natural and have not had any need to challenge it. They feel completely entitled not to have to deal with disability, and the entitlement feels so natural that they don’t even *notice*. And we don’t notice how much we protect them, either.

I’m not sure what to do about that, but I think it’s worth figuring out how to get past it.

When it takes a long time for someone’s ableism to become apparent

I’m physically disabled, and it seems like it usually takes abled people i become friends with a LONG time to “show their true colors” about it. I’ve seen it take 2 years from the first time they knew i was disabled and I openly spoke about it around them. Is this common? Why the heck so long?? Are they actively trying to hide it….or am i just missing a lot of subtle red flags? (Hard to imagine since @ this point I actively watch for them, but anything’s possible!)
realsocialskills said:
I’ve been wondering about this recently, too. I mostly encounter it in professional contexts (and I’m not sure whether to describe my disabilities as physical or not since autism affects my movement in disabling ways but I’m not mobility-impaired), but I think it’s a similar dynamic.
I think that it’s that abled people really, really don’t know very much about disability. They don’t know about the sheer logistical challenges we face, and they *really* don’t know about the stigma.
They think, on some level, that disability is an overwhelming tragedy, and that if we do things other than be overwhelmed by tragedy, then disability can’t really matter much. And they are really, really not emotionally prepared to deal with the fact that disability matters all the time, and they’re not at all prepared to deal with it in a matter-of-fact way. And meanwhile, for us, it’s just *life*.
We learn early that it’s our job to protect abled people from ever having to notice either the logistical problems or the hate we face. And especially, we learn not to show that it hurts us. And double especially, we learn that we are not allowed to tell friends or caregivers or ~nice ladies~ or others that they are hurting us. And triple especially, we learn that we are not allowed to be angry because that’s ~just the way it is~ and ~people don’t understand~.
I think that protecting abled people from having to notice disability and ways we are harmed as disabled people goes so deep we do it automatically and without noticing most of the time. And abled people *really* don’t notice, because they think it’s normal and natural and have not had any need to challenge it. They feel completely entitled not to have to deal with disability, and the entitlement feels so natural that they don’t even *notice*. And we don’t notice how much we protect them, either.
Some of the people we protect have been exposed to a lot of disability awareness and sensitivity training. And who can recite a lot of information about various conditions, know not to pet service dogs, and would never touch someone’s mobility equipment, and who tell others off for using the r-word. And maybe they know what the ADA is and know a few horror stories about institutions in the 60s. And, they think that means they know how it is – they have no idea how sanitized all of that is.
Sensitivity training teaches them that we are just like them. It does not teach them to cope with all the ways in which we are very different.
I don’t have a good answer to this. The only that I’ve found is that it helps to be more open with my friends about what I am experiencing, what my limitations are, and how I feel about what is going on. There’s a price I pay for that, though. The other thing that helps is having more disabled friends, or friends who understand being marginalized in a way that your family is not (eg: I’ve found that some nondisabled LGBTQ people have been able to relate to a lot of this.)

Clueless creepiness vs skillful creepiness

There are two kinds of problems that get conflated a lot but aren’t actually that similar:

  • People who do creepy things because they have trouble understanding boundaries
  • People who do creepy things because they understand boundaries well and have highly developed skills at violating them with impunity

People who are good at violating boundaries and getting away with being creepy sometimes seem socially awkward, and sometimes don’t. Sometimes they get away with it by getting people to think things like “Oh, that’s Bill. He’s just awkward like that. He doesn’t mean anything by it,” and sometimes it’s more like, “I can’t believe James would do that! He’s like the nicest guy ever, and he does so much for this community. Don’t you remember the awesome party last month?”, and sometimes it’s more like, “Steve is really sensitive right now. Did you really have to turn him down like that? Couldn’t you have given him a chance? Don’t you understand how much courage it takes to approach a girl? What harm could giving him your number have done?”. 

People who are inadvertently creepy *care* when they’ve violated boundaries, and try to fix it. Saying, “oh, they’re just awkward” isn’t doing them any favors, because people who are inadvertently creepy don’t *want* to trample all over other people’s boundaries. They want to know, so that they can stop doing it. This doesn’t mean it’s the job of victims of their creepy actions to explain it to them – it isn’t, particularly since most creepy people are doing it on purpose, and calling skillfully creepy people on things tends to go badly. I am mentioning this because skillfully creepy people often convince others that being “just awkward” means that everyone else is obligated to refrain from objecting to their creepy actions.

Skillfully creepy people who boundaries boundaries on purpose come up with excuses about why it was ok, and try to make you feel horrible for objecting. (Eg: “I was just being friendly! Learn to take a compliment!”, or “I know that if you were in your right mind, you wouldn’t have said that you didn’t want to spend time with me. I forgive you. We can still spend time together.”, or “Wow. Harsh. I guess girls really don’t go for nice guys. Have fun dating assholes.” or just getting a lot of people to laugh at you, or any number of other things.)

As a culture, we shouldn’t tolerate creepy behavior from anyone. Part of not tolerating it means assessing when people are being cluelessly creepy, and when people are being skillfully creepy. 

If you are a supervisor/teacher/community leader, or otherwise someone responsible for intervening and keeping things safe, it’s important to respond appropriately. Communities need to help cluelessly creepy people understand how to act, and to expel skillfully creepy people so that they can’t keep preventing the people they hurt from being part of the community. 

Stop using mental illness as an insult

So, there’s this pattern. People hear about someone doing a horrible thing, or being systemically abusive to another person, or being bigoted, or being generally hateful, violent, or evil, and then express their disapproval by saying things like:

  • She *needs help*
  • He needs serious therapy
  • I hope he gets the help she needs

And, that’s a horrible thing to say. Because mental illness is not the same as being an abuser. Having a mental illness is not a moral failing, and treating others horribly is not a mental illness. Conflating those categories hurts people badly.

Some people do need therapy, medication, or other forms of treatment. Some people who need mental health treatment are also terrible people, but that is not because of their mental illness. It’s because of their choices and values. And many abusers and other dangerous people are not mentally ill at all.

Many, many good people struggle with serious mental illness and depend on medical treatment. Similarly, many good people struggle with mental illness and have no access to treatment for various reasons (eg: lack of insurance, lack of safe providers, fear of losing their jobs due to stigma). These people deserve better than to have their struggles thrown up as a way to insult abusers.

Mental illness is real, serious, and horribly stigmatized. It is not the same as being an abuser, and it’s really important to stop equating the two.

All autistic people are disabled

All autistic people are disabled.

No matter how well someone passes. No matter what someone has accomplished. No matter how well they speak. Even if they’re married with children.

All autistic people are disabled. And, if you interact with them enough, it will present a practical problem at some point.

And, if you are autistic yourself, you are going to face practical problems associated with it.

And that’s ok. Disability is not a big deal, if you accept and accommodate it.

Going around pretending that it is not so just makes everything harder.