Tag: self care

You don’t have to be perfect at self care to deserve medical treatment

Real Social Skills

Disabilities and chronic conditions often require difficult and time-consuming self care.

For instance:

  • People who are paralyzed have to pay very close attention to their skin to avoid dangerous pressure sores
  • People with CF have to do a lot of breathing treatments
  • A lot of people have to keep track of a very complicated medication schedule
  • Or any number of other things

A lot of medical complications are preventable with the right self care. But no one manages perfect self care, because self care is hard, and people are human and nobody is perfect.

Making a mistake that leads to an injury that was theoretically preventable sometimes pisses off doctors. It’s also something that people sometimes feel very ashamed of. This can be a deterrent to getting medical care.

It’s not right that it’s this way. You don’t have to be perfect to deserve medical care. Sometimes you make mistakes and need treatment. That’s part of the human condition, and it doesn’t mean you’re somehow less deserving.

Nondisabled people injure themselves doing careless things all the time. People who fall off bikes in a moment of carelessness and break bones get to have medical treatment without facing that kind of hate. So do people who burn themselves cooking. Doctors are capable of understanding that people make mistakes and get hurt — and people with disabilities deserve this understanding just as much as anyone else.

Everyone who needs medical care deserves it. Including people who make mistakes. Including people with disabilities who make mistakes. You don’t have to be perfect at self care to deserve treatment.

Rigorous attention to self care is important. So is medical support for needs that arise, including as the result of mistakes.

Hunger can impair communication

Real Social Skills

Some people who can usually use language to communicate lose a lot of their words if they get too hungry.

When you’re hungry, you don’t have as many cognitive resources available, and some of what is available gets taken up by dealing with hunger. For some people, this can mean that the resources needed for language simply aren’t there.

If you’re finding that you often can’t speak well in the middle of the day, it’s possible that you are forgetting to eat. This might be the case even if you don’t feel hungry.

If you get used to not eating properly, it can be hard to notice hunger. If you’re too hungry for too long, sometimes you get used to automatically ignoring the sensations of hunger, which can make them hard to identify.

If you’re experiencing sudden cognitive or communication impairment, and you haven’t eaten recently, it might be a side effect of hunger. Sometimes, if you get too accustomed to the sensations of hunger, you don’t notice feeling hungry until it stops you from thinking well.

If you used to be able to use language reliably but are experiencing seriously diminished ability, it might mean that you haven’t been eating properly for a long time.

Hunger isn’t the only reason some people have intermittent language problems, and it’s not the only reason people lose language skills in a longer-term way. But it’s very common for people with communication disabilities to have dramatically worse communication problems when they are chronically hungry.

If you’re having communication problems that seem to be more severe than you expect, it’s worth checking to see if you’re also having trouble eating enough. And if you are, it’s worth making fixing that a priority.