Ask disabled friends how to handle disability related things

A reader asked:

I have a friend who has a speech impediment. When we meet new people they often have a hard time understanding her. I can understand her about as well as I understand most people, but I’m not really sure what I can do to help. I don’t want to talk over her or act like I’m a translator.

realsocialskills said:

It depends on what your friend wants you to do. Different people with speech impediments have different preferences.

I don’t know what your friend wants in those situations, but they probably do.

You can say something like: “I’ve noticed that sometimes when we’re interacting with new people they often have trouble understanding you, and I feel like I end up excluding you from the conversation. Are there are things you would like me to do in those situations?”

It’s likely that they know, and that you will be able to do what they suggest. Some possibilities:

  • You interrupting people who talk over her
  • (Eg: “Susan was saying something.” or “Susan, what were you saying?”)
  • Interpreting for her sometimes (*if* this is what she wants; some people do)
  • (Eg: “Susan said that the mushroom sauce is better at Delicious Restaurant”)
  • Interpreting more subtly, by asking her questions
  • (Eg: “Susan, did you say that we should go to Delicious Restaurant?”)
  • Or any number of other things

Short version: Your disabled friends are probably a better judge of what would help them than you are. If in doubt, ask.

Using the memory you have

A reader asked:

I have memory issues. Things like names, dates or times, directions, and other important details often escape me. Lately, I’ve been using “external memory” in the form of a notebook or my phone.

However, people tend to get impatient or bored at best when you’re constantly consulting a notebook in order to tell them what you need.

At worst, they talk over me, try to tell me what they think I want, or walk away.

How do I get people to understand?

Or should I just work on fixing my memory instead?

realsocialskills said:

A few things:

Don’t wait for better memory:

  • Improving memory is possible for some people; not everyone
  • Whether or not it’s possible for you, you need to communicate now
  • Communication shouldn’t wait for cognitive changes
  • It’s important to make strategies that work with the cognitive abilities you have now

Meanwhile, you might be able to make some of your external memory faster. Here are a few possible ways of doing that:

Write things on your hand or a wrist band:

  • Looking at your hand only takes a second
  • This might work well for remembering what food you want to order, or what you want to buy
  • Or in general terms what you wanted to talk about
  • There are also disposable paper wristbands you can buy to put notes on
  • That works similarly, without having to write stuff on your hand

Put some information on your phone’s lock screen, eg:

  • Write something in your notes app
  • Take a screenshot
  • Make that screenshot your lock screen wallpaper
  • This means the information is available immediately once you get out your phone

Cheat sheets:

  • If there are things you consistently need to know but can’t remember, making pages with that information and putting them in particular places might help
  • Eg, for remembering what a store has
  • Or remembering what questions you’re likely to be asked
  • Or lists of people who are likely to be in particular places

Optimizing your notebook:

  • Eg: If there is information you need frequently, it might be worth putting it on dedicated pages with color-coded tabs
  • It also might be worth using something like a three-ring binder so that you can put information you need soonest at the front
  • Or even *on* the front, if you get a three-ring binder that has a space to put in a cover sheet on the front

Communication boards or apps:

  • Using communication boards or a picture-based AAC app might help too
  • Communication aids aren’t just for generating speech, they can also be for cognitive prompting reminding you what it’s possible to say
  • Making pages for particular situations might help you to communicate faster
  • You’d still have to open the page, but it might result in less hunting around for information once you get there
  • Having a page with a few options might make it easier to remember and process things
  • Associating images with things you’re trying to remember might make them easier to remember
  • If you keep the symbols in a consistent place and touch them some while you communicate, muscle memory might also help you to remember things
  • (Even practicing with boards in private without using an app to communicate directly might make it possible to use muscle memory to prompt yourself)
  • Proloquo2Go might work well for this
  • (Or maybe even something like Custom Boards, although that uses more childish symbols and that could be a problem)

It also might help to be more open about your memory difficulties:

  • Sometimes being open about how bad your memory is can help
  • If you don’t tell people what you’re doing, they might not be able to tell the difference between using external memory and ignoring them
  • (Especially if you’re looking at a phone; they might think you are facebooking or something)
  • They also might be trying to help, and might not realize that it’s being anti-helpful
  • If you tell people what’s going on and what would help you, *some* people will do the right thing
  • (Not all. But enough that it’s often worth it)
  • That also can allow you to ask people things that you don’t remember

Eg:

  • “I’m sorry, my memory is bad — could you remind me who you are?”
  • “Give me a second — I need to check my notebook.”
  • “I don’t remember when that’s happening — I need to check my calendar on my phone.”
  • “I actually get really confused when people try to tell me what they think I want — I’ll be able to find it faster if I check my phone”.

Also, if you’re approaching people and they’re walking away, it might help to change the order in which you do things to make it go faster from their perspective, eg:

  • Get out your notebook
  • Turn it to the right page
  • Put your finger on the piece of information you need to remember
  • Then go up to them and ask for help

Short version: If you have memory issues and rely on external memory aids, there may be things you can do to use them more quickly.

A thought on making difference ok

One issue with accommodations and modifications in school, is that it can often be hard to avoid stigma. Kids don’t usually like being singled out or doing things conspicuously differently. Also, nondisabled kids often resent it when disabled kids are allowed to do things that they are not allowed to do.

Further, one frequent objection to accommodations is “but if I let one kid do this, then all the other kids will want to.”

Sometimes that’s true — and, often, the best solution to that problem is to just let all the kids do whatever the thing is. Sometimes there’s no good reason to restrict access to something. Sometimes changing the rule works better than making exceptions to it.

One way that something works to correct this problem is to make some of their accommodations available to other kids who would like to try them. The kid who has a documented need for accommodations probably isn’t the only one who would benefit from them.

And even aside from that, it’s good for kids to explore the world and experiment with different ways of doing things. This is a good way to learn that difference is normal, and that doing things differently is a basic fact of life.

For instance, if one kid needs to use manipulatives for math, maybe try making manipulatives available to all the kids.

If one kid needs a large print worksheet, maybe make a few large print copies and let kids try doing it that way.

If one kid needs to chew stuff, maybe make things available for other kids to chew.

If one kid needs to use fidget toys, maybe make them available to all the kids who would like to try it.

If one kid needs to type, and you have the resources to make that available to other kids too, maybe let them try doing assignments that way. And let the kids that works better for continue to do it.

And, beyond that, it helps to get in the habit of providing different ways to do things even when there isn’t a kid who needs them as a specific accommodation.

Not in the sense of “take a walk in the disabled kid’s shoes”, this is not a disability simulation. The point shouldn’t be empathy building, and it should not be presented as being about the disabled kid. The message is “there are a lot of legitimate ways to do things, and it’s ok to experiment and figure out what works for you, even if most people don’t do it the same way as you”.

You can’t always do this, and you can’t always do this for everything. When you can, it helps, a lot.

keeping your privacy in the aftermath of a suicide attempt

 asked:

I’m visibly disabled as the result of a suicide attempt. Do you have any advice on how to respond when people ask what happened?

I think it’d be uncomfortable to tell casual acquaintances or strangers etc that I attempted suicide, but I don’t really know what else to say other than a flat-out lie.

(It was an overdose, so saying the cause without mentioning suicide would also make people uncomfortable and they might think less of me)

realsocialskills said:

I think there are three basic approaches that allow you to keep your privacy without lying:

  • Tell a partial truth
  • Use humor to deflect the question
  • Say that you don’t like to talk about it

Telling a partial truth works by saying something that is true or true-ish, doesn’t cause their mind to jump to suicide, and (ideally) doesn’t invite further questioning. Some possible phrases along these lines:

  • “It’s an old injury”.
  • “I’m used to it.“

If you want to use humor to deflect it, one way to do it is to tell an absurdly obvious lie, eg:

  • “I lost a fight with a penguin”.
  • “You know how they say not to look directly at the sun? They’re right.”
  • “Alien abduction.“

Absurdly obvious lies mean (and are at least sometimes understood to mean) “I don’t want to talk about this, and I’m giving you a way to drop the subject without having to state explicitly that you asked an inappropriately personal question.” There’s an affective piece of how to pull this off that I’m not sure how to describe. It requires a certain tone of voice and body language.

You can also say explicitly that you don’t like to talk about it.

  • Bodies are personal and you have no obligation to answer questions about yours
  • If you say that you don’t like to talk about it, it’s best to follow that up with an immediate subject change
  • (If you follow it with a pause, some people will reflexively try to fill the pause by asking why you don’t like to talk about it)
  • It might work best to keep your tone polite and friendly at first, and then get more firm if they push the issue

eg:

  • Them: So, how did your face get to be like that?
  • You: I don’t really like to talk about that. How about that local sports team we both like? Can you believe they lost to that team we all hate?

Other things that mean “I don’t want to talk about it”:

  • “That’s a long story.” (plus immediate subject change)
  • “That’s kind of private.” (plus immediate subject change)

None of these are foolproof, but they all work at least some of the time.

Short version: If you don’t want to talk about something, telling a boring truth, an absurd obvious lie, or saying you don’t want to talk about it are all sometimes effective methods.

Taking a troubleshooting approach

Content note: This post is my answer to a scout leader who asked a question about my objection to describing things pejoratively as “attention seeking behavior”.

justmethesecond asked:

Hey, you made a recent post about attention seeking behaviors and how there are a lot of normal things that involve seeking attention.

But I have a question, as I staff at scouting and we have some kids that do demand personal attention when that is inconvenient or impossible for us to give (such as in a group activity, when you have ½ adults on 20 kids)

To elaborate a little bit further, the behavior things I am talking about are mostly kids that talk individually back at you when explaining things to a group (or in other ways, such as crying or trying to play (physical) games with you).

These types of behavior aren’t bad but they do sometimes limit our ability to explain things to a group of people.

And I was wondering how to deal with that?

realsocialskills said:

A couple of things:

There is no generalized way to deal with that. It depends on the situation.

Part of what you need to do is identify the problem more specifically:

  • Attention seeking isn’t the problem in itself
  • The problem is that the group activity isn’t working
  • Part of the problem *might* be that some kids need to learn what’s appropriate and what isn’t
  • Part of the problem *might* be that kids are being willfully disruptive and need to know that you won’t tolerate it
  • The problem might be something else entirely, and almost certainly has components that aren’t “that kid has a behavior problem” or “that kid is attention seeking”
  • There are a lot of possibilities, and I’ll get to some of them later in this post

Here’s why you shouldn’t call this “attention seeking behavior”:

  • “Seeking attention” is not an objective description of behavior; it’s a very vague theory about why someone might be doing something.
  • There is no such thing as generic “attention seeking behavior”
  • From your perspective, everything that annoys you by getting your attention when you don’t want to, can’t, or shouldn’t pay attention may feel the same
  • But it’s *not* all the same from the perspective of the kids who are annoying you
  • They’re doing what they’re doing for reasons, and the reasons are specific and individual.
  • (And they may or may not have anything at all to do with attention)
  • Eg: A child may be crying *because they’re upset*, and it might not be about you at all. They may in fact find the crying humiliating and be hoping that no one notices.
  • A child who is trying to play a game with you isn’t just generically trying to get attention. They’re trying to play a game. Which they may be doing for any number of reasons
  • A child who talks to you during the announcements might be trying to give input, ask a question, focus their attention, or any number of other things
  • Don’t collapse all of that into “attention seeking” as if it’s all the same.

Here are some troubleshooting tips:

Consider whether your expectations are age-appropriate:

  • Little children have a short attention span
  • They can’t sit and listen very long
  • They can’t wait very long for a turn to do something active
  • If you’re having problems with multiple kids, it’s very likely that you’re asking them to do something that they’re really too young for
  • If you’re asking kids to attend for longer than is reasonable for kids their age, *you’re* the one who is inappropriately seeking out attention when it’s not possible
  • (And just like you’re not doing it maliciously, kids who are disruptive are probably not doing it maliciously either)
  • It might be time to change how you do announcements and activities

Make sure the group knows your expectations:

  • It’s easy to assume that kids know the rules when they don’t
  • Things that are obvious to adults are not always obvious to children, especially young children
  • Kids are not born knowing how groups work
  • And different groups have different rules
  • Don’t assume that kids *know* that they’re not supposed to talk individually back at you when you’re addressing a group (there are actually environments where that’s allowed)
  • Don’t assume that kids *know* you’re not supposed to try to play side games or whatever
  • It can help to have a group conversation about rules
  • It’s particularly helpful if you get the kids’ input about the rules in that conversation
  • It’s likely that kids know things you don’t about what needs to be spelled out explicitly
  • And also things you don’t about what the rules need to be
  • Don’t do this as a punishment. Do this as a group conversation about rules. If it’s well into the year, you can say something like “So we realized that we forgot to set rules for the group. This week we’re going to start by setting the rules together.”
  • Many of the kids in your group will have done an exercise like this before; it’s a fairly common thing to do with kids
  • (Be careful though, don’t say things like “but you agreed to these rules!”. This isn’t really an agreement. This is you setting rules from a position of authority, and getting some input from kids about what the rules should be.

Redirect:

  • If you’re not saying in the moment that something is a problem, it’s important to start doing that
  • If you don’t object, some kids might be assuming you’re ok with it
  • Don’t be mean, but do speak up, eg:
  • “You can ask questions when I finish talking”
  • “I can’t play with you right now”.
  • It also helps if you can phrase it by telling them what you *do* want them to do, eg:
  • “Try and tag someone. I bet you can tag (specific kid).”.
  • If kids have trouble telling when it is and isn’t ok to talk, try having an object that someone holds when it’s their turn to talk.

Talk to the kids who are having trouble individually:

  • Talk to them about what’s going on (out of earshot of other kids)
  • Talk to them about why some of the things they’re doing are a problem
  • They might actually not know — no one is born knowing how to act in a group, and some kids need to have it explained explicitly
  • Even if you’ve had a group conversation about rules, it’s possible that they don’t get it
  • Or that they can’t follow the rules as they stand
  • It’s important to ask them what they think is going on
  • And if there’s a reason it’s not working for them
  • And if they have ideas about solving the problem
  • Kids don’t always know, but sometimes they do
  • And knowing that you care makes a difference

Parents also might be able to help you:

  • Parents (usually) know their kid better than you do
  • This is particularly true of elementary-aged kids
  • Most parents want to help their kids
  • Most parents have at least half a clue about what is helpful to their kids
  • Don’t use calling parents as a punishment
  • Do talk to parents when there’s a problem in your group and you don’t know what to do about it
  • (Be more cautious about this with older kids; teenagers have a developmental need for more privacy)
  • (Also be cautious about this if you suspect abuse. Talking to parents who are likely to be harshly punitive is not likely to make things better)
  • Say explicitly that this is not a punishment and that you’re asking for help
  • They will likely have helpful suggestions
  • (Not always; some parents are unreasonable. But a lot of parents are very helpful, if you listen to them).
  • Don’t assume parents are right; do listen to them. They often know things you don’t.

Ask for advice from a teacher:

  • Teachers spend all day working with groups of kids
  • Not all of them are good at it; but some of them are
  • Good teachers will know things you don’t about how to make activities and announcements work
  • If you know a teacher who you respect, ask them for advice
  • Ask these questions specifically:
  • “I’m having trouble with some kids in the scouting troop I’m running. Could I ask you for some advice?”
  • “Is this something that’s reasonable to ask of kids this age?”
  • “Do you have any advice about how to manage this problem in a positive way?”
  • “Do you know about something else that works well?”
  • Listen to what they say and consider why they’re saying it, but ultimately trust your own judgement. You are the one working with kids directly, and you’re the one who is ultimately responsible. Don’t do something that you think is wrong.

Google resources for teachers:

  • There are a *lot* of resources for teachers on the Internet
  • Most things that are relevant for teachers are also relevant for scout leaders
  • You can google activities for kids the age you work with, then consider which things on the lists are likely to work for kids you work with
  • Positive classroom management is also a good thing to google (particularly for the age you work with)
  • Not all teacher resources are good; seek out information, and use your own judgement about which advice to take

Consider the possibility that your environment is causing pain:

  • Scouting often takes place in physically uncomfortable outdoor environments
  • That may be intolerably painful for some of your kids
  • Are they being painfully bitten by bugs? If so, do they have bug spray? Are they using it? Is it working?
  • Are they getting sunburned? If so, maybe you need to change the procedure for making sure that all kids put on sunscreen.
  • Is the sun shining painfully into their faces?
  • Are they inhaling campfire smoke?
  • Are they sitting in a painful position?
  • Sitting cross-legged on the ground or floor is physically painful for some kids
  • (Likewise sitting on benches with no back support)
  • It might be that they’re trying to do things that will get them out of that position
  • If you suspect that this is a problem, try having kids sit in chairs and see what happens
  • Or try sitting around a table kids can lean on and see what happens
  • This is particularly likely to be the case for older kids or heavier kids
  • Positions often become intolerable as kids get bigger
  • It also might help to alternate between sitting activities and standing or moving activities in shorter intervals so that kids aren’t sitting as long

Are they hungry or thirsty?

  • Often when kids are disruptive, it’s because they’re hungry or thirsty
  • At certain ages where kids are growing rapidly, they’re hungry a *lot* of the time
  • Kids won’t necessarily realize that enough to ask
  • And they also may have been taught that asking is pointless because no one cares whether they are hungry or thirsty
  • Being proactive about this might help
  • Try making water easily available without kids having to ask for it (eg: by requiring them to carry water bottles)
  • If you’re not already doing a snack at the beginning of the meeting, try doing that
  • If you are already doing that, try making it something more substantial
  • Low calorie snacks suitable for adults who are trying to lose weight are *not* good snacks for the purpose of feeding hungry children
  • (Eg: celery sticks are not a good snack to get growing kids through a scout meeting; celery sticks with peanut butter might be. A handful of pretzels is not a good snack; cheese sticks might be.)
  • If you’re on a camping trip or something, you may need to feed the kids more often than you realize
  • If this is a problem, it’s probably *also* a problem for the kids who *aren’t* disruptive, so don’t just do this for the disruptive kids. Assume that all of the kids may be hungrier and thirstier than you realize

Don’t be mean:

  • If something feels mean, don’t do it
  • If you’d think it was mean if someone did it to you, don’t do it
  • If something is humiliating toward a kid, don’t do it
  • Don’t punish kids in front of other kids
  • It’s ok to say something like, “Not now” and redirect
  • It’s not ok to yell, or say something like “I’ve told you this over and over, why don’t you get it?”
  • (If you need to take a kid out of an activity and talk to them about it, have the conversation out of earshot of other kids)
  • Don’t have a big reward event and exclude some kids from it

Some kids need 1:1 support:

  • Some kids need a lot of help to do some things
  • If that’s the situation, the problem isn’t that they’re misbehaving
  • The problem is that they need more support than they’re getting
  • This may or may not be a problem you (or their parents) can solve
  • But it is something that should be on the table as a possibility for some kids
  • A caution about that: Sometimes people leap to the assumption that any kid they’re having trouble with needs a 1:1, and it’s usually not true.

Sometimes the solution is to change the activity.

  • No amount of clarifying rules and expectations will help if you’re asking a kid to do something they’re not capable of doing.
  • Or if you’re routinely asking them to do something that is extremely difficult and only barely possible for them
  • Or if you’re asking them to routinely do something they find actively distressing
  • If there are insurmountable barriers to a kid participating in an activity, then the activity probably needs to change
  • Some kids need to be actively doing something in order to pay attention
  • Some kids need attention in order to pay attention
  • A kid having these needs is not a behavior problem; it’s a support need

Thoughts on changing activities:

  • Some activities require a lot of turn-taking, passive listening, and waiting
  • Those are not great activities for kids who need a lot of feedback in order to know what to do
  • They’re also not great activities for kids who need to be actively participating in order to focus
  • If you have kids in your group who have that need, it is likely a good idea to switch to doing activities in which everyone is actively doing something most of the time
  • For instance:
  • Red Rover probably won’t work well with kids who have trouble with passive waiting
  • And a circle activity in which only one person at a time does something is likely to be even worse
  • Games in which everyone is actively playing, like tag or Simon Says, are likely to work much better
  • This is also true of group conversations:
  • Long conversations with a big group require a lot of passive listening. That’s a problem for kids who need to be active in order to focus
  • Having kids discuss things in small groups or with a partner might work better

Sometimes you can change an activity by creating a way for kids who’re having trouble a way to focus:

  • Eg: Kids who have trouble in groups might be able to focus if they take notes
  • Or if they have a fidget toy to fidget with
  • Or if they have a specific task (ie: if everyone is supposed to be preparing a campfire and they’re climbing on you, it might help to ask them to gather wood from a particular area)
  • A caution about this: Don’t use this as a reward or as a punishment.
  • Don’t assume any particular approach will work. Don’t single a kid out over their objections. (eg: If a kid doesn’t want to take notes or use a fidget toy, don’t make them just because someone on the internet says this helps some kids)
  • Sometimes minor modifications work; sometimes they don’t. When they don’t work, it’s time to try something else.

This isn’t an exhaustive list — there are a *lot* of things worth trying and thinking about. The important thing is to take a troubleshooting approach and to keep trying to identify and solve the actual problem.

Short version: Sometimes when you’re responsible for kids, they do stuff you don’t like. This is often treated generically as “attention seeking behavior”, but it shouldn’t be. Kids have much more diverse and complex motivations than that. Instead of calling it “attention seeking”, or ignoring them, adopt a troubleshooting approach to the problem. Taking a troubleshooting approach is much more likely to enable you to identify and solve the actual problem. Scroll up for some specific troubleshooting suggestions.

Not being believed

Content note: This is a post about ABA, and not being believed about the harm ABA does.

A reader asked:

People don’t believe me when I say I was a victim to ABA abuse, not even my parents.

I was misgendered routinely, I could not drink water even though this was harmless and was often asked to write my name even though this was effectively pointless.

How should I convince people I was really abused?

Am I just whining and should I “get over it” because that’s not “real abuse” and I’m not autistic?

realsocialskills said:

It’s not your fault that therapists hurt you. It’s not your fault that people don’t believe you. What people did to you matters, even if no one believes you.

ABA is degrading on a level that it can be very hard to recover from or even describe. The basic methodology of ABA is finding out what you care about most and using it to get compliance with arbitrary demands.

I’ve written some here and here and here about the kind of damage that does, and that’s only scratching the surface.

Increasingly, one of the things behavior therapists demand is that you pretend that they’re not controlling you. They often go so far as to demand that you act like you like what’s happening and believe that it’s both necessary and enjoyable. And they do that even as they make you do obviously pointless things (like writing your name over and over), and even as they do obviously awful things to you (like denying you water and misgendering you).

That kind of thing can mess with your mind really badly, especially when you’re surrounded by people who don’t believe you.

It’s not your fault that people don’t believe you. They can refuse to acknowledge what people did to you; you can’t make it go away. It matters even if no one around you cares.

You will probably always have to deal with people who don’t believe you. Most people are reluctant to believe that therapists ever hurt people in ways that matter, and ABA has a particularly effective publicity machine. Some people will say that you’re whining, that you’re lying, and that the things you’ve described don’t happen. They’re wrong. It matters that people hurt you in the name of helping you. It’s horrible that people who you should be able to trust don’t believe you.

Some of them may eventually come to understand. Sometimes people come around, in the long term. But you don’t have to wait for that in order to be ok, you don’t have to explain it to them if you don’t want to, and what happened to you matters whether or not people believe you.

Also… You are not alone. What happened to you shouldn’t happen to anyone. There is a community of people who know that it’s wrong to treat people that way. Making connections with people who believe you might help a lot.

It’s much easier to hold on to your perspective if you’re not doing it alone. This is hard. It’s also possible. You’re ok.

Short version: Abuse matters even if no one believes you. That said, making connections with people who believe you can help a lot. You are not alone, even if really important people in your life don’t believe you.

Relieving childcare pressure without watching kids

 asked

There’s a problem in my family: my cousin and his wife are in quite a tight spot (little kid, both work full-time, even overtime sometimes, not a lot of money), and receive little to no support from my cousin’s parents.

As my mum (his aunt) was always really close to him, we often help them instead, both with money and babysitting (esp during the holidays). I’d like to help them as well, but I’m rubbish with kids (she’s four and very hyperactive). Is there another way for me to support them?

realsocialskills said:

Probably.

I don’t know them, so it is hard for me to say what they need help with.

The best way to find out might be to ask them, possibly by saying something like: “I’m not comfortable watching children, but I’d really like to find other ways to support you. Is there another way I could be helpful?”

That said, asking an open-ended question might not make it possible for them to tell you what they did. Open ended questions don’t tell them much about what you are and aren’t ok with. If you don’t know what someone is likely to feel comfortable helping with, it can be really hard to ask for help.

So it might be better to offer something specific.

You may be able to help with childcare needs indirectly:

  • People who have young kids and no childcare have to take their kids with them to a lot of places
  • That makes a lot of errands take longer
  • It also makes them more draining for both the parent and child
  • Eg: Parents who have no childcare have to bring their kids to the grocery store
  • At best, this means that grocery shopping takes longer because they have to supervise their kid and shop at the same time
  • And they have to bring their kid even if their kid is too tired to tolerate it well
  • Then the kid is miserable, and the parent has to deal with caring for a miserable (and probably uncooperative) kid in a public place while judgmental strangers stare at them
  • And it’s likely that both parent and child will be upset even after the errand is over
  • And it can interfere with sleep and make the next day difficult as well
  • If you can do some of their grocery shopping for them, that can relieve childcare pressure without you having to watch any kids

Some other things that might help to relieve childcare pressure:

  • Picking up their mail
  • Picking up their prescriptions when they or their child is sick
  • Dropping off things that they need transported
  • Being at their house for the plumber/cable company/etc so that they don’t have to take off work (which means they have more time off available to deal with child-related things)
  • Household tasks that are difficult to accomplish with children who need close supervision (eg: mowing the lawn if they’ve got one)

It’s ok for people with disabilities to want attention

A lot of things that people with disabilities do get pathologized as “attention seeking behaviors”, whether or not they have anything to do with wanting attention.

That’s not the only problem with the whole concept of “attention seeking behaviors”.

Another problem is that there’s actually absolutely nothing wrong with wanting attention. In fact, all communication involves seeking attention in some way.

Taken literally, here are behaviors that involve seeking attention:

  • Saying hello
  • Asking if someone is ok
  • Writing a blog post
  • Performing on stage
  • Teaching a class
  • Waving to someone
  • Asking a question
  • Reporting a problem
  • Commenting on something
  • Posting on Twitter

“Attention seeking” isn’t a neutral technical term. It’s professional jargon for saying “this person becomes unworthy of attention when they do this, and so we’re going to aggressively ignore them.”

That’s a value judgement, generally a very harsh value judgement. There’s nothing scientific, technical, or medical about that kind of judgement. And it’s a very cruel thing to do to people who don’t deserve it.

Short version: Calling something an “attention seeking behavior” isn’t a technical term; it’s a (generally unwarranted) insult.

When people keep asking why you don’t have kids

A reader asked:

I’ve had a hysterectomy and I live in a region where it’s very odd (like, statistical outlier odd) for a woman not to have kids by my age.

So it’s fairly common for people to continue to harass me about why I don’t have kids and not take any of the polite attempts at diverting the subject as hints to leave me alone until I tell them the truth.

Then when I tell them the truth they get mad and say that it’s too much information. Any advice for dealing with this?

realsocialskills said:

It might help to be direct about saying it’s a personal question.

I’m not sure how your conversations are going. I’m getting the sense that they might be something like this:

  • Them: So, why don’t you have kids yet? When are you going to have them?
  • You: Nice weather we’re having. But it’s summer and so it will probably rain soon. Do you think it will cause flooding again?
  • Them: Oh, probably. It usually does. But what about kids? Are you seeing anybody? Fertility doesn’t last forever.
  • You: So, I have this great new recipe for a seven-layer congealed salad.
  • Them: Children are a blessing. Life really can’t be complete without them.
  • You: That may be true, but I had a hysterectomy, so it’s not happening. Now can we please talk about something else?
  • Them: Why would you tell me something like that?!

It might help to add a warning layer before you tell them the truth. One possible layer: Saying it’s personal and that you don’t want to talk about it, then an immediate subject change:

  • “That’s awfully personal. I don’t like to talk about this.”
  • “That’s private medical information.”

Another possible layer: Asking rhetorical questions that warn them that they might not actually want an answer. This can make it harder for them to blame you, and more likely that they’ll back off:

  • “Do you really want the gory medical details?”
  • “That’s a very personal question. Do you really want to ask that?”
  • “Are you sure you want an answer to that?”

Another possibility: Answering the question in a way that’s a bit less graphic but still gets the point across:

  • “It just hasn’t been in the cards.”
  • “I can’t have children.”
  • “I’m sterile.”
  • “It’s not medically possible.”

If you’re in the South, there are some nuances about how to make people feel bad about asking inappropriate questions that I don’t really understand. (Which is part of the reason I don’t live there anymore.) It’s mostly a matter of affect. I know that it involves inserting a certain kind of pause and icy body language that tells someone they’ve crossed a line, but I don’t know how to do it or describe it well. If anyone who is better at that wants to weigh in, that would be welcome.

Short version: If your attempts at subtly deflecting intrusive questions are failing, it can help to more explicitly say that the question is too personal and that you don’t want to answer it.

Organizing fun gatherings

A reader asked:

Ever since my depression got better, I been doing more leading in get-togethers. Like inviting people over to my house and suggesting what we’re going to do. But I feel like people don’t have as much fun at my activities as those led by my other friends. I take a lot of input on what we do, and I tell funny jokes.

Is there anything else I can do when leading a group, formally or informally, to help people relax and have fun?

realsocialskills said:

I think you might be pushing yourself too hard.

If people are having fun and liking your get-togethers, that’s success. You don’t have to be the best or the most fun for what you’re doing to be good enough. It’s not a contest, and it’s ok if you’re not as skilled at throwing parties as some of your friends. It’s a skill set that you can develop over time.

That said, from the way you’ve described things, it sounds like your gatherings might be happening this way:

  • You invite people over
  • They come over
  • You spend time deciding together what to do
  • Then you do the thing together

If you’re doing it that way, it might be making your gatherings less fun than they could be. Negotiating with a group about what to do isn’t very much fun, and it can set the tone for the gathering being less fun.

Also, if you don’t pick the activity in advance, there will usually be someone who wanted to hang out who doesn’t want to do the activity that the group decides on. That person usually won’t be very happy, and that can make things less fun for everyone.

If that’s how you’re doing it, your gatherings are likely to become more fun if you decide on an activity in advance, like this:

  • Pick something that you and some friends like
  • Invite them to come do that thing with you
  • People who want to hang out and want to do that thing will come
  • People who don’t want to, won’t come
  • There won’t be any tiresome negotiation phase of the gathering
  • No one will be stuck in an unanticipated activity that they don’t enjoy

Some examples of activities you can decide on in advance:

  • A game night (either a specific game, or whatever games people decide to bring)
  • Going to the new Exciting Movie in a series you like
  • Going out to dinner together
  • A dinner party at your place
  • Getting together for movies and popcorn at your place (better if you pick the type of movie in advance, or maybe even the actual movie)
  • (Here’s a post about things some people like to do at Halloween parties)

In any case, organizing fun gatherings is a skill, and you’ll get better at it as you get more experience. You don’t have to be perfect or the best for your gatherings to count as successful. If you like them and most of the people who come like them, that’s success.

Short version: Picking an activity in advance and inviting people to do it is likely to be more fun than gathering a group of people and deciding together what to do.