About the word “vegetarian”

“Vegetarian” is a word that means somewhat different things in different subcultures. If you’re feeding a vegetarian, it’s important to make sure that you know which definition of the word they mean.

In most English-speaking cultures, “vegetarian” means “someone who doesn’t eat animals.”. That includes red meat, poultry, fish, and anything else you’d have to kill an animal in order to eat.

In some subcultures, “vegetarian” can mean “someone who doesn’t eat meat”, where meat is defined more narrowly than “all animals.”

For instance, in the observant Jewish community, most people don’t think of fish as meat (in part because it’s not defined as meat in the rules about keeping kosher). So, in many Jewish circles, a good percentage of people who describe themselves as vegetarians eat fish, but not other animals.

From both sides of this, it’s worth being aware that “vegetarian” is a word that’s used different ways in different communities. If you aren’t sure, it’s ok and good to ask what someone eats. Similarly, if you’re vegetarian and someone asks you whether you eat fish, it’s a legitimate question, not them being willfully ignorant about what the word means.

Short version: “Vegetarian” is a word that’s used differently in different subcultures. If you’re a vegetarian eating with someone from a different community, it’s important to make sure that they understand what you don’t eat. If you’re feeding a vegetarian, it’s important to make sure you understand which definition of vegetarian applies to them.

A way you might be inadvertently sounding dismissive

Neutral-ish words like “Uh huh”, “ok”, and “sure” can sometimes sound like they mean “this is boring and I want you to stop talking about it”.

For example:

  • Matilda: My cat just had kittens! They are adorable!
  • Shira: Uh huh

This could sound to Matilda like Shira means “I’m annoyed that you’re talking about your cats and would like you to stop.”

If Shira actually wants to listen to Matilda talk about the cats but isn’t sure what to say, repeating part of what Matilda said might be a better option, eg:

  • Matilda: My cat just had kittens! They are adorable!
  • Shira: Your cat had kittens?!
  • Matilda: Yes, she did. Last week.

Another option is to say explicitly that you want to hear about it, eg:

  • Matilda: My cat just had kittens! They are adorable!
  • Shira: Tell me about your adorable new kittens?

This isn’t an exhaustive list; there are any number of other examples in both directions. But if you’re saying things that you think are neutral and it seems to result in other people ending the conversation a lot, it’s worth considering whether you’re inadvertently sending off linguistic signals that you’re bored.

Including people who get talked over

Often, in class conversations, some students will talk over other students and not let them get a word in edgewise. (This happens a lot between male and female students. It’s not always gendered that way but that’s a common dynamic.), eg:

  • Brenda: I thought the colors were too bright because they made the background more prominent than the…
  • Bob: Actually, the colors were too bright. They made the background more prominent than the foreground. That’s a problem because you have to be able to pay attention to the foreground.

When Bob is allowed to do this, it effectively cuts Brenda out of the conversation. Eg, this is one continuation I’ve seen a lot:

  • Bob: Actually, the colors were too bright. They made the background more prominent than the foreground. That’s a problem because you have to be able to pay attention to the foreground.
  • Teacher: Yes, distracting background colors detract from the most important parts of the scenes.

When the teacher says something like that, they’re responding to Bob and ignoring Brenda. If Brenda was making the same point, then she deserves to be acknowledged. If she was making a different point, then she deserves to be heard. It’s important to listen to all the students who participate sincerely, not just those who talk over others.

You don’t have to put up with this. You can turn your attention back to the student who was talking before they got interrupted. This is one way to do that:

  • You (ignoring Bob): Brenda, what do you mean about the background being more prominent? Can you say more?
  • This lets Brenda know that you value what she’s saying.
  • And it allows her to be heard even though Bob doesn’t value what she’s saying.
  • This also sends the message to other students that you will listen to them, take them seriously, and not allow them to be talked over.

This usually works better than directly addressing Bob in the moment. If you call Bob on it directly, that can lead to derailing the conversation into an argument about Bob, eg:

  • Teacher: Bob, please don’t talk over Brenda
  • Bob: I wasn’t talking over Brenda.
  • Teacher: She was saying something, and you interrupted her.

This can backfire because it keeps the focus on Bob rather than the person he was talking over. It’s also less powerful. You don’t need Bob’s permission to pay attention to the student he interrupted. You can just pay attention to her.

Another possibility:

  • Teacher: Bob, let Brenda finish then you can make your point. Brenda, what were you saying about the background colors?

This can work sometimes because it’s not directly accusing Bob of anything, and it immediately shifts the focus back to the person he interrupted.

Telling your story without being a self-narrating zoo exhibit

When you are an unusual person, especially if you are disabled, people will often tell you that they “want to hear your story”.
Often, it’s not really your story that they want to hear. Often they have a story in mind that they want, and they want it to come out of your mouth in order to validate their theories about people like you.
Often, what they really want is for you to be a self-narrating zoo exhibit, and satisfy their curiosity without inserting your opinions or having boundaries.
Maybe they want to hear from institution residents who don’t want to leave, so they can decide that institutions really are the best place for people with disabilities. Maybe they want to hear a story that allows them to feel pity for you and bask in their lack of disability. Or any number of other things.
These are ways people use their versions of our stories to take away our power; we can use our real stories to get our power back.
Telling your story doesn’t have to mean telling creepy people what they want to hear. It can mean telling the truth, even when others want to lie.
Telling your story can mean bearing witness. It can mean saying “No, it doesn’t work that way. I was there. I saw.” It can mean saying “I’ve seen people do these things that you say we can never do.” Or “I’ve been there. It was wrong. And it’s also wrong when people do it to you.”
It can mean saying: “I remember watching someone die because others decided to withhold medical treatment, food, and water. I wish I’d been able to save him.”
Or: “Don’t think that my life is pitiable or inspiring. I do meaningful things. We all do. And do you know how amazing it is when the light hits a rock just the right way?”
We don’t have to tell the stories they want us to tell. We can tell the truth. And there is power in the truth, and there is power in the truth backed up by stories about things you have witnessed or been part of personally.
It takes practice to learn to tell the truth in the face of pressure to be an inspiring self-narrating zoo exhibit. It can be terrifying. It can also be very, very hard to resist prompts to say the things other people clearly want you to say.
It takes practice, and in practicing you will probably not entirely succeed right away. Even with practice, you might still inadvertently tell the story others want you to tell rather than the story you believe some of the time. That’s ok. None of us are perfect, and it gets easier over time.
Short version: Sometimes when people say “tell us your story”, what they really mean is “tell us what we want to hear.” But telling your real story can be a powerful way to tell the truth.

People might not understand your body language

Body language that comes naturally to some autistic people can be completely invisible to most neurotypical people.

For example, many autistic people respond to questions by nodding their head very slightly. It can feel like a bigger movement than it actually is, and sometimes people don’t notice it. If you’re nodding and people are ignoring you, it might just be that they don’t understand your body language.

Similarly, neurotypical people don’t usually understand the range of things that flapping and various forms of stimming can mean. They tend to read it as distress or as annoying behavior. They don’t usually understand it as body language. Since they lack the skill to understand body language correctly, it can be worth telling them things explicitly.

For instance, if someone doesn’t understand the kind of flapping that means hello, it might be worth saying hello with your voice when you want to greet them.

Sometimes neurotypical people intentionally ignore autistic body language, but sometimes they just don’t understand it.

Inclusion and accessibility don’t go without saying

People don’t know that you will meet their access needs unless you tell them you will. Many people won’t, and people with disabilities can’t read your mind to figure out your intentions.

It goes a long way towards easing stress for everyone if you talk about access explicitly, rather than assuming it goes without saying that you will do the right thing.

For instance, if your store sign says “no dogs allowed” it should also say something like “except service dogs” (don’t say guide dogs specifically, because there are a lot of reasons other than blindness that some people have service animals)

  • This sends the message that you know service dogs exist
  • And that you’re not going to kick them out of the store for having a service dog
  • This does not go without saying; people with service dogs get illegally kicked out of stores all the time

Similarly, if you ban laptops/electronics, it’s important to say “except when they are needed by students with disabilities.” (and not to demand proof of diagnosis).

If you’re organizing a retreat and there is a rule against outside food, it’s important to either make an exception for people with dietary needs, or else work with people to provide them food they can eat. And to make it explicit that you will do this, because it very much does not go without saying.

If you’re advertising an event and it’s in an accessible venue (which it should be), put that information on the fliers (and make sure it’s true). That doesn’t go without saying. Many organizations whose values suggest that they should care about accessibility routinely hold events in completely inaccessible venues. No one will know that you’re doing it the right way unless you tell them.

There are any number of other examples.

Short version: Keep in mind that people with disabilities can’t read your mind, and make it explicit that you will meet access needs, especially if your statements or rules suggest that you won’t.

Plans, changes, anxiety, depression, and conflict

I have anxiety and depression and probably some other shit I get very scared and panicked when someone says “I’ll be right back” and walks away from me and if I’m supposed to meet someone and they are late or don’t show up. I guess it’s abandonment.
So my question is: how do I keep from flipping out on my boyfriend when he accidentally distresses me, like when I’m supposed to pick him up but he finds another way home. His phone is off so he can’t tell me.
And I guess my other question: is it fair for him to get frustrated and angry with me when I tell him that doing this is inconsiderate? He said he thought he’d get home before I left to get him so it wasn’t intentional, but I still feel disrespected.
r
ealsocialskills said:
This doesn’t sound to me like it’s just a depression and anxiety problem. It sounds to me like either something is going wrong with your communication with friends, or people aren’t treating you well, or a combination of both. It’s hard for me to tell which from a distance.
Having anxiety and depression does not mean that you are wrong every time you are upset about something. Sometimes, you’re going to be upset because something is actually wrong.
It is not unreasonable to want people you make plans with to either show up or let you know that they’re not going to make it. It is not unreasonable to want people to tell you if they are going to be late. It is not unreasonable to want people you’re supposed to pick up to let you know if they found another ride. Those expectations are normal, and not something unusual caused by mental illness. Most people would be upset if others habitually made plans and failed to show up.
(It might be unreasonable to expect people to refrain for saying “I’ll be right back” and walking away, depending on the context. For instance, that’s sometimes a euphemism for going to the bathroom. So if you’re, say, eating at a restaurant and someone says that, it’s probably not reasonable to object.  But if they’re, say, leaving you in the middle of a crowded park without any clear plans for how you’re going to reconnect, that’s a problem. There are any number of configurations for that; it’s hard for me to tell just based on the phrase.)
It is entirely reasonable to want people to care that they flaked in a way that was distressing. Even if they did it for a reason or thought it would be ok, they should care that they flaked on you and apologize if it caused you distress. They should also be willing to think about how to avoid that problem in the future. In close relationships, people make mistakes from time to time that cause one another inadvertent distress. If someone gets angry and defensive every time you feel upset about something they did, something’s going wrong.
That said, it’s not ok to regularly flip out at people close to you for making mistakes. It’s hard for me to tell from your description if that’s what’s happening. Like, I could see a few possibilities:
Possibility #1: You’re actually flipping out in a way that’s not reasonable. Eg:
  • You: WTF?! Why didn’t you show up?! You’re a terrible boyfriend. You always do this. Why don’t you respect me?
  • Him: I thought I’d get home first. I’m sorry.
  • You: That’s not good enough. You’re awful. Why can’t you be considerate ever?

If this is what’s going on, you flipping out may well be part of the problem (but not the whole problem, because wanting people to either keep plans or let you know that they’ve changed is entirely reasonable even if the way you react is not.)

If actually flipping out on people is part of the problem, then it’s important to learn how to distinguish between how it feels to have anxiety triggered and what someone actually did. If you’re freaking out, it might be best to hold off on talking about what’s going on until you’ve calmed down. It might also help to say explicitly something like “I’m not rational right now; let’s talk about this in a few minutes.” (This is also the kind of issue that a lot of people find therapy helpful for. I don’t know if you’re someone who would find therapy helpful, but it might be worth looking into.)

But even if you are doing things that look like flipping out, that may be misleading. It’s possible that he’s intentionally provoking you in order to make you look unreasonable to avoid dealing with the problem. That brings us to possibility #2:

Possibility #2: He’s accusing you of flipping out as a way to avoid dealing with the thing you’re complaining about. Eg:

  • You: I went to pick you up and you weren’t there. What gives?
  • Him: Chill. I thought I’d be home by the time you got here. Why are you flipping out on me?
  • You: Can you please call me if plans change?
  • Him: Why are you accusing me of being inconsiderate? I didn’t do anything wrong.

For more on that kind of dynamic, see this post and this post.

Possibility #3: You’re responding to a pattern, he’s insisting that you treat it as an isolated incident, and that’s pissing you off. Eg:

  • You: I went to go pick you up and you weren’t there and didn’t call. Can you please let me know if plans change.
  • Him: Oh, sorry, I thought you’d come home first and see that I was already here.
  • You: Ok, but this happened last week too. Can we figure out how to stop it from happened?
  • Him: That happened last week. That’s over and done with.
  • You (raising your voice): This keeps happening! I need it to stop!
  • Him: Why are you flipping out? I *said* I was sorry.

Possibility #4: You both mean well, but you’re setting off each other’s berserk buttons inadvertently. Eg:

  • You (visibly close to melting down): You weren’t there?! You are here? Why weren’t you there?
  • Him (freaked out by the idea that he did something seriously upsetting, also visibly close to meltdown): I tried to be there! I did! I thought it would be ok!

If that’s the problem, finding an alternate way to communicate about problems might solve the problem. For instance, it might mean that you need to type instead of speaking, or use IM in different rooms, or talk on the phone. Or it might mean that you need ground rules about how to communicate in a conflict without setting each other off. For instance, some people need to explicitly reassure each other that this is about a specific thing and not your judgement of whether they’re a good person (sometimes judging people is appropriate and necessary. This kind of reassurance only help if that really *isn’t* the issue).

This is not an exhaustive list. There are other patterns of interaction that could be going on here. But whatever is going on, it probably isn’t just your depression and anxiety making you unreasonable. It is ok to expect people to either keep plans or let you know when they have changed.

Document communication

This post may not apply to all of you, but I know a lot of you work with people whose communication is impaired, so:

I’ve come to believe that if others are reporting that someone has no communication, it is important for others responsible for their care to do everything in their power to counteract this.

Being perceived as noncommunicating is dangerous. It can prevent someone from ever being listened to. It can also lead ableists to withhold medically necessary care because they believe that person’s life is not worth living. 

You can’t reliably assess someone’s receptive communication unless they have expressive communication that you can understand (and even then, it’s difficult). Being unable to respond is not the same as having no understanding, and it’s wrong to assume that people don’t understand. So, really, no living person should ever be described as having no communication. That may not be in your power to fix, but keeping it in mind will help you to treat people better.

Beyond that, most people who are described as having no expressive communication actually do. Don’t be led astray by someone else saying that someone is “noncommunicative” or “nonverbal”. Unless the person they’re talking about is in a coma, they’re probably wrong. If you look for communication, you will be able to listen to them better, and also better able to protect them by documenting their communication. So look for it, and document it, and tell other people who care for them. Their life may depend on it, and the way they’re treated almost certainly does.

Some specific things you can look for:

  • Do they turn their head when you come in?
  • Flap their hands when they’re angry or happy?
  • Vocalize?
  • Say words that may or may not be communicative? 
  • Try to get out of their chair?
  • Sing?
  • Become more calm or agitated when you speak to them?
  • Make eye contact?
  • Say numbers?
  • (There are any number of other things)

Everyone with voluntary control over any part of their body communicates. If you’re working with someone, learn their communication and do what you can to make it known that their communication exists and matters.

Marginalized people are not revolution objects

So, here’s a thing I’ve seen happen:

  • People get really into social justice theory
  • and then they read a lot from people who all agree with each other
  • and then they assume that everyone in that group agrees
  • and then, when they encounter someone in that group who doesn’t think that thing, they don’t know how to deal with them
  • or they’re rude and condescending

For instance:

  • Someone who reads a lot of disability theory is excited about the idea of acceptance
  • And, in particular, the reasons that mobility equipment is liberating and wonderful
  • And they encounter someone who is enduring considerable pain rather than use a wheelchair
  • And then they talk at them about how they just need to accept themself already, without listening to where they’re actually coming from
  • That is not respectful. It can sometimes be ok to express an opinion or offer advice (emphasis on offer; people can say no to hearing your advice), but it’s not ok to try and run someone else’s life, or to take control of their self image, or related stuff
  • Respecting someone has to start with respecting them as people who think for themselves, not trying to make them do what you think self-respecting people do

keep in mind that:

  • No matter how much you’ve read, you’ve never been the person you’re talking to
  • That goes double if you’re not a member of their group, but it applies even if you are
  • Having read a lot of social justice theory, or even being part of that group and having found that it described your experience, does *not* mean that you know better than someone else how they should be living their life
  • Don’t try to take people over, and don’t talk down to them
  • The last thing marginalized people need is yet another person trying to run over them for their own good. They get that enough already

People are complicated, and you are never the expert on someone else’s life. Reading social justice theory, and even being really insightful about what’s wrong with our culture, does not make you an expert on someone else’s life. Their life is for them to live and make decisions about. Marginalized people are not revolution objects.

Listening to people who have disability accents

People with certain disabilities often have heavy disability accents. Their speech can sound very different from the way most nondisabled people speak.

People with disabilities that affect communication are often pushed into separate programs, particularly in adulthood. Even when they are in the same classes in the same schools, there isn’t much of an expectation that any peers listen to them. This was even more true a generation ago. As a result, most people without disabilities are lousy at understanding people with disability accents, and don’t understand that this is a glaring hole in their social skills.

Many unskilled people tend to maybe ask people with disability accents to repeat themselves once, and then they get frustrated and start ignoring them. Sometimes they pretend to understand, and smile and nod rather than actually listening. Sometimes they hang up on them. Sometimes they pass them off to another person, who also doesn’t bother to actually listen. Sometimes they hang up. If they are medical workers, sometimes they write on a chart that someone is impossible to understand or has no communication (particularly if that person also has an intellectual disability.)

Do not be this person. If you can’t understand someone with a disability accent, the problem is your skills, not their voice. (If you have a receptive language disability that prevents you from learning to understand accents, then it’s no one’s fault and you need an interpreter to communicate. Neither their voice nor your brain is wrong. In that situation, the skill you need to develop is finding an interpreter.)

If you listen, and make it clear that you are listening, you will learn to understand, and you will be able to communicate successfully with more people.

An important phrase for this is “I’m having trouble understanding what you’re saying, but I care what you are saying.”

Make sure it’s true, and keep listening. The more you listen, the easier it will be to understand. Understanding . And practice. You get better with practice.

Too many people are ignored because others can’t be bothered to understand their accents. You can make this better by listening (and by insisting that people you supervise listen.)