When food is too hard

Related to the remembering food exists thing, do you have any advice for what to do when your depression is making preparing food seem so hard that you’d nearly prefer to just go hungry?
A couple of suggestions:
Order a pizza, or some other form of food that gets delivered to you
  • Hunger feeds on itself and makes everything harder
  • If you’re in a state of mind where preparing food seems too difficult to be bearable, ordering food can often break that cycle
  • So can getting takeout or going to McDonalds
  • This is not a frivolous expense
  • And it’s not necessarily more expensive than preparing your own food. McDonalds has a dollar menu.
  • When you’re starving from not eating, it is not the time to worry about health food. Making sure that you eat comes first. Eating anything (that you’re not allergic to) is healthier than regularly going hungry because you can’t bring yourself to eat.

Keep stuff around that’s easy to eat and doesn’t require any preparation or only need to be microwaved, for instance:

  • A box of cereal
  • Chocolate
  • Granola bars
  • Ice cream
  • Popsickles
  • Protein shakes
  • Rice cakes
  • Peanut butter
  • TV dinners
  • Frozen chicken nuggets
  • It can also help to keep around disposable plates and utensils so the thought of having to wash dishes doesn’t deter you from eating

Get someone else to tell you that you need to eat:

  • Sometimes it’s easier to remember that eating is important if someone else tells you
  • For instance, if you text a friend saying “remind me that I need to eat” and they do, that can sometimes make it more possible

Get someone else to talk you through the steps of making food:

  • If there’s someone you can ask how to find/make food, that can be helpful
  • Sometimes what’s really exhausting is not so much doing the steps, as it is anticipating them, or figuring out what they are
  • If someone can help you through that, it can make it much more possible

Socially stigmatized people still have to respect boundaries

Here’s something I’ve seen happen among autistic folks. I think it probably happens in other groups too.

  • Someone is subjected to a lot of social violence
  • People don’t want to talk to them because they’re autistic and weird
  • People mock the idea that people like them could ever be a good friend or partner
  • They’re very lonely and isolated as a result of social violence and discrimination

Then, as they’re figuring out that social violence is bad, this leads to an entitlement mentality:

  • They think that, since discrimination is wrong, other people owe it to them to be their friends
  • or to consider dating them
  • Or not to consider things associated with their stigmatized group dealbreaking (eg: if an autistic person who doesn’t understand social cues violates boundaries a lot)
  • And they get angry at people who reject them
  • And act like they’re doing something wrong
  • And then invasively try to explain why the person they want to be friends with is wrong and really should be their friend
  • and then persists, even after the other person has clearly said no

It really doesn’t work that way, though. No one has to be your friend. No one has to date you. No means no, even when it is motivated by bigotry or misunderstanding.

And it’s a lot easier to find good friends and partners if you stop pursuing people against their will.

The power of maybe

Being able to say yes is important. Being able to say no is important.

Being able to say maybe is also important.

It’s usually ok not to know what you want, even if others want you to decide right away. You don’t always have to know reasons. It’s ok to just feel unsure. Feeling uncertain is an ok reason not to say yes right away.

Sometimes there’s legitimate time pressure and people do need you to make a decision right away. It’s ok to say no if you’re not sure.

And when there isn’t time pressure, it’s ok to say maybe. Even if that annoys others.

The three second rule

In some very informal contexts, it’s considered acceptable to eat food that you dropped on the floor briefly. This is called the three second rule. Here’s some things I think I know about it:

Procedurally speaking:

  • You have to pick up the food right away. That is why it is called the three second rule.
  • (The reason this makes sense is that if you only dropped it briefly, you know what happened to it. So you know that nothing even grosser happened while you weren’t looking).
  • The three second rule only applies to your own food. You can’t pick up someone else’s dropped food and eat it. Eating other people’s food is generally considered gross, and combining that grossness with eating dropped food makes it extra gross.

The three second rule only applies when you can presume that the surface you dropped the food on didn’t contaminate it. For this reason:

  • The three second rule does not apply if there were obvious changes to the food (eg: lint stuck to it or it changed shape)
  • The three second rule only applies to food dropped on a dry and apparently-clean surface (eg: it would be considered gross to eat a piece of candy you dropped in a puddle or in the dirt)
  • The three-second rule only applies to dry food (eg: not a lollipop you’ve already started licking, and not an ice cream cone.)

Contexts:

  • The three second rule only applies in very informal contexts
  • It tends not to apply outdoors, although local customs vary
  • The three second rule is usually about snacking; at an actual meal it’s usually considered rude to pick up and eat dropped food
  • (This might not be the case at some summer camps)
  • It does not apply in restaurants or other public eating places, usually

A note about disability:

  • If people know that you are disabled, they might think it’s always unacceptable for you to rely on the three second rule
  • Even when you’re doing exactly the same thing as everyone else
  • Folks might see it as evidence that you’re gross and don’t understand anything about hygiene and manners
  • If people are reacting to you this way, it doesn’t necessarily mean that you’re doing anything different from what others are doing
  • Or that you are failing to understand the rule, or that your disability is making it hard for you to understand the rule
  • It might just mean that people are unwilling to let you use the three second rule

Erasing the line

There’s this line that people believe in. That, as a person with a disability, you had better be on the right side of, or else.

This is how the trope goes:

If you’re on the right side of the line, you’re almost-normal. Sure, you’re disabled, but the only real disability in life is a bad attitude. You’re fine. Really. So inspiring. Just don’t demand special treatment. 

If you’re on the wrong side of the line, you’re not really a person. You get called the r-word. Or low functioning. Or having a young mental age. Or whatever term for “not quite a real person” is currently fashionable. You’re seen as someone who needs to be institutionalized. Controlled. Protected. Micromanaged. For your own good. Because you’re dangerous. No one should have to deal with someone like you.

Everyone’s afraid that they’ll end up on the wrong side of the line. Or that their kid will. Because the line could always get drawn differently, and you could easily end up on the wrong side, this time. Because the line is about power, and perception, not innate qualities.

People are often afraid that if their kid waves their hand too much, the line will get drawn on the wrong side of them. Or if they hit people. Or if they yell. Or if they fail a class. Or can’t learn to drive. It’s terrifying. No one wants to disapear into that place beyond the line, and no one decent wants to see their kid end up there. (The unfortunate reality is that some parents very much do want to put their kid on that side of the line. But they shouldn’t, and a lot of people don’t.)

The thing is, the line is not real. The r-word doesn’t apply to anyone. Neither does “low functioning”, which is the new pseudo-clinincal way of calling people the r-word. The line is something that gets done to people, not a description of attributes people actually have.

Keeping this in mind helps. It’s not a complete defense; people are going to draw lines and you might someday end up on the wrong side no matter what you do (although there are ways of resisting).

But it helps to know that you don’t deserve it, and that you’re a full human being no matter what happens. And that your kid is. And that everyone else is too.

And, if you know that the line isn’t real, it can help you to avoid hurting people. If you know that people are fully real and that the r-word doesn’t apply to anyone, you can learn not to think of anyone as too r-word or low functioning to be real. If you know the line isn’t real, you can stop drawing it and respect everyone. That’s not everything. But it’s something.

Crucial differences

These things are different:

  • Wanting something to be true
  • Wanting to think something is true
  • Wanting someone else to feel like something is true
  • Wanting reassurance that something is true

An example:

  • Interacting with someone consensually
  • Feeling like your interactions are consensual
  • Having that person think of the interactions as consensual
  • Having that person reassure you that things are consensual.

And another:

  • Not wanting to put someone in danger
  • Wanting to feel like a safe person
  • Wanting someone to feel safe
  • Wanting someone to reassure you that they feel safe

And these:

  • Seeking to avoid abusing anyone
  • Seeking to avoid seeing yourself as an abusive person
  • Wanting others to see you as someone who doesn’t abuse others
  • Wanting others to reassure you that you’re not the kind of person who abuses people

And this too:

  • Respecting someone’s boundaries
  • Feeling like you’re a person who respects boundaries
  • Wanting someone to feel as though their boundaries are being respected
  • Wanting someone to reassure you that you’re not crossing any lines

If you don’t understand the difference, you’re dangerous to people you have power over.

Because feelings and perceptions can be manipulated without changing the underlying reality.

Making people feel safe isn’t enough; you also have to create real safety. Making people tell you that you’re not crossing a line isn’t enough; you have to actually care about their boundaries. Seeing yourself as a non-abusive person isn’t enough; you have to actively pay attention to treating people well.

If you want to do right by people, you have to care about the reality.

Avoiding slurs is not about sanitizing language

Cussing is important. Here are some uses:

  • Expressing boundaries in forceful language
  • Expressing emphatic contempt
  • Expressing distress

Sometimes it’s ok to insult people. Sometimes it’s important to be rude.

Slurs aren’t part of this, though. It’s not ok to insult someone by comparing them to an oppressed group. It’s not ok to insult someone by referencing their membership in an oppressed group.

Lists of things to say rather than “that’s so gay” or “that’s so r-word” tend to be long lists of big words that are clean and polite. They shouldn’t be, though. There’s no moral obligation to use long words. There’s no moral obligation to always use clean language.

The problem with slurs is that they help to keep marginalized groups marginalized. They hurt innocent people, and they hurt guilty people in ways no one deserves.

So, when the situation calls for cussing at or about someone, use swear words. Don’t use slurs.

Sometimes employers make employees use scripts

Sometimes service people have very specific things they’re allowed to say or not say, and can lose their jobs if they don’t phrase things in very specific ways. There also specific ways many employees in service professions are allowed to apologize. Sometimes you’re required to say, “I’m sorry you feel that way” or you might not be permitted to agree with any negative statements about the company you work for. So if a service worker says something dismissive, it might be because they have to.
Thank you. That’s a really good point.
It’s an awful thing to say, but it’s not always the fault of the person saying it.

When your workplace isn’t accessible

My workplace (a theatre) is really inaccessible to people with physical disabilities. I’ve pointed it out to the manager, who isn’t interested in fixing the problems. When people with physical disabilities come into the building, the best thing I know how to do is let them know ahead of time what parts of the building they won’t be able to access (bathrooms, all but the last rows of the auditorium, etc.) It doesn’t feel like enough. Could you talk about some other useful ways to help?

I think there’s probably not much you have the power to do as far as fixing it. Depending on where you’re situated, you might be able to tell the owner, or report it to a local organization that deals with accessibility issues. But, it’s very likely that you won’t be able to fix things that way.

Assuming that you won’t be able to fix it, here are some things you can do:

  • When people call and ask about accessibility issues, be honest
  • And specific. Listen to the questions people ask, and answer them honestly.
  • Sometimes you won’t know the answers. When you don’t know, say that you don’t know.
  • If it’s something you can check, offer to check.
  • If people are angry, don’t try to defuse their anger. Don’t tell them it’s not your fault. It’s not their job to make your feel better about the state of accessibility. They have a right to be angry,
  • Maybe ask if they want to talk to the manager? They *might* be more interested in the problem if customers complain.
  • Find out if there’s an accessible theater nearby. If people call and ask if your theater is accessible in a way yours isn’t, tell them “Unfortunately not, but <other place> is.”
  • Familiarize yourself with access issues other than wheelchair access, too. Does your workplace offer captions? Descriptive audio? Sensory-friendly screenings? For which films?
  • If not, which theaters do?

Anyone else want to weigh in? People with access needs, what would you want someone to do in this situation? People who’ve been in this situation, did you figure out anything good to do?

A question about playing games with ‘special needs teenagers’

What are some good, simple games you could play with a bunch of 14-18 years old special needs teenagers?
That depends entirely on what they like and what their needs are. I can’t really tell you good games without knowing the teenagers in question. All “special needs” tells me is that someone decided that these teenagers should be in a segregated program rather than integrated with non-disabled peers.
You should take into account the very real possibility that kids that age might not be especially interested in playing simple games. A good percentage of teenagers aren’t, and being classed as “special needs” doesn’t necessarily change that.
There are tons of websites that have suggestions for games to play with people of various ages. (Including adults. Don’t ignore suggestions meant for adults). I’d say look those up, see if there are any that seem like the folks you work with might enjoy, and try them. And then, if that doesn’t work, do something else.
But also, ask them. If they’re people who have expressive language, ask them if they know any good games, or what else they’d like to do. If not, make suggestions and see how they react. Respect their communication and preferences.
No one that age should ever have to play a game they don’t want to play.