Uncategorized – Page 12 – Real Social Skills

In defense of nonverbal communication

August 30, 2015June 10, 2021 Real Social Skills

Lately, I’ve been seeing a lot of posts giving parents of nonverbal kids the advice “pretend not to understand your child so that they will be forced to use AAC and communicate in words”.

I think this is a mistake.

I think that if you want to teach someone to communicate, it has to be built on a foundation of listening to them. And that means listening to all of their communication, not just communication that happens in words.

I also think that all of someone’s communication methods are important, and that they all need to be respected. There isn’t one true method of communication. They all matter.

Communicating through body language is useful for all people. People who can talk are allowed to communicate through body language, and actively encouraged to develop the skill of doing so. It’s expected that, when I smile, point to things, frown, or whatever, that people will listen to what I’m communicating. Nonspeaking people deserve the same respect.

People say “communication shouldn’t wait for speech”. I agree with that. And I think it shouldn’t wait for words either. Because words may never come. If you wait for someone to reliably use words to listen to them, you may end up never listening to them. And everyone deserves to be heard.

And even if they will eventually use words and sentences, the things they’re saying *now* still matter. And listening to them is still important.

Presuming competence shouldn’t mean assuming that with the right support, people will eventually base most of their communication on words. Presuming competence should mean assuming that, with the right support, people will choose the means of communication that work best for them. Which may be speech. Or a voice output communication device. Or sign. Or body language. Or pointing to a letter board. Or speech. Or any number of other things. Or any number of combinations of things.

Short version: Everyone deserves to be listened to. If you want to support someone in learning to communicate, it has to be built on a foundation of listening to them — in whatever form their communication takes. Ignoring one form of communication to force them to learn a different form is not respectful, and probably won’t help.

Don’t stop people from using their abilities

August 27, 2015June 10, 2021 Real Social Skills

If developing a skill, even shakily, means someone will lose their accommodations, that makes it impossible for someone to use that skill. That’s a problem.

For instance, people who can walk often still need wheelchairs. Denying wheelchairs (or wheelchair accessible transportation, or other accessible things) to people who can walk doesn’t make a wheelchair any less necessary. It just prevents people who can walk a little from ever doing so in public. (And prevents some people from developing that ability at all.)

Similarly, a lot of AAC users can talk, or can talk some of the time. For many people, the best form of communication is a mixture of speech and a communication device. Often, when people speak, they are treated as though they are faking their need for AAC. Or that they’d be able to use speech as their sole means of communication if they tried harder. That doesn’t make AAC any less necessary. It doesn’t make speech any more possible. All it does is make it impossible for someone to use both speech and AAC, which deprives them of communication options they’d otherwise benefit from.

Similarly, a lot of people who can read visually also need screen readers from time to time. If seeing someone read standard print means that you won’t let them use electronic formats anymore, that doesn’t give them new abilities. All it does is stop them from reading.

Wheelchair users have the right to do what they want with their legs and AAC users have the right to do what they want with their voices. People have the right to read in a combination of ways that are possible for them. There are numerous other examples. Those rights matter, and they’re often ignored.

Short version: People with disabilities who use equipment or adaptive strategies are often prevented from doing things in the standard ways too. They’re expected to either do things in the approved disabled way or the approved normal way. This is wrong. People should be able to do things in the way that works best for them. (Which is often a mixture of different ways, some of which are used by nondisabled people as well.)

A reason your kids need you to talk to them about their disability

August 1, 2015June 10, 2021 Real Social Skills

Sometimes parents avoid talking to disabled kids about disability because they don’t want to make them feel different.

The thing is, it’s not actually possible to prevent your child from noticing that they are different. They will notice that they aren’t just like all the other kids. Partly because it’s obvious. Kids compare themselves to other kids, and to adults that they observe. Disability is as noticeable as the fact that some people are fat, female, tall, short, black, white, or whatever else. Kids notice differences. They will notice this difference too. And that’s ok.

They will notice that you are willing to talk about some differences, but not others. If you refuse to talk about disability, they will still know that they are different. They will just learn that you consider the difference unspeakable.

They will also notice what other people think about them and their disability.

People will stare at your child and make disparaging remarks. People will call them the r-word, and every other disability slur. They will say “special” and “special needs” with a sneer. They will make fun of your child for not being able to do things. They will say, or imply, that they would be able to do them if they’d just try harder.

You can stop some people from doing this to your child (and you should), but you can’t stop them from ever encountering it. They will probably encounter it every day. They will know that they are different from other people, and our culture will teach them incredibly destructive things about what that means.

You can’t stop your child from hearing what our culture thinks of disability — and if you don’t talk about disability yourself, your child will believe that you agree with it.

If you don’t talk to your child about their disability, the only words they will have for themselves are slurs they hear other people call them. You can give them better words, and better information.

If you don’t talk to your child about their disability, they will end up with a lot of misinformation about what their difference means. If you talk to them, you can tell them the truth.

Short version: Refusing to talk to kids about disability doesn’t protect them from feeling different. It just prevents them from getting accurate information about what their disability is and what their difference means. When kids who don’t know the truth about their disability face hate, they have little-to-no protection against internalizing it.

Don’t be mean to fat disabled people

July 31, 2015June 10, 2021 Real Social Skills

Some disabled people are fat.

Some fat disabled people have mobility impairments, and need to use wheelchairs and scooters.

Some fat disabled people need to sit down a lot.

Some fat disabled people need to park in handicapped parking.

Some fat disabled people need to sit in the disabled seating on busses.

Some fat disabled people need to use the bathroom stall that has grab bars.

Some people act like fat people are somehow “not really disabled, just fat” as though the two are somehow mutually exclusive. They’re not. Fat is not a cure for disability. Fat disabled people are as disabled as thin disabled people. Fat people have every right to exist in public and use mobility aids and other adaptations.

Some people act like being mean to disabled fat people will somehow force them to stop being fat and disabled. It won’t. Being mean is not a cure. If you yell at a fat disabled person for needing to park close to the building, it won’t give them the ability to walk further safely. It will just mean that their day got worse because someone decided to be pointlessly cruel to them.

Short version: Fat disabled people exist, and have a legitimate need for access and accommodations. Being mean to fat disabled people for having access needs doesn’t cure their disability. It just makes the world a crueler place. Don’t be a jerk.

Aftermaths of social skills lessons

July 31, 2015June 21, 2021 Real Social Skills

Anonymous said to realsocialskills:

I’m autistic, I went to a group that was supposed to help me with autism-related issues, and they gave me some social skills advice that I honestly think was terrible. And the group was pretty terrible in general.

I ended up quitting for various other reasons, but it’s still sorta bugging me ‘cause what if they’re RIGHT.

The advice went like this: It’s okay to disagree with someone, but it’s never okay to explain WHY, because that’s pushing your opinion on them and that’s wrong.

realsocialskills said:

That rule is way too oversimplified to be useful. It’s true in some circumstances, and completely wrong in others — and completely useless at helping you to understand when it is and isn’t ok to contradict people.

The truth about social skills is that all rules are approximations at best. And often, as in this case, rules taught in social skills classes are completely useless and misleading.

Learning to be good at social interactions isn’t a matter of Learning the Rules; it’s a matter of learning to develop your judgement. Approximations and rules of thumb can help with this. They can’t replace the need to think for yourself and rely on your own judgement.

Social skills classes often teach people really destructive things about themselves and about social interaction. Here’s one way that can happen:

They tell you that autism (or whatever else) is preventing you from understanding social situations
They tell you that there are rules and that everyone else knows the rules naturally
They give you some simplistic rules and tell you to always follow them
The rules might sometimes be plausible-sounding or half-truths
Following the simplistic rules does not actually get the results they claim it does (because life is more complicated than that)
This can be really confusing
If you express this confusion to them, or say that it isn’t working, they attribute it to your autism and tell you to try harder or trust the process or something
They sometimes say this in a harsh way, they sometimes say it in a gentle or encouraging way. That difference is mostly aesthetic.
Either way, it amounts to the same pressure to believe them unconditionally and stop thinking for yourself

I suspect that something like that is going on here. The rule itself is useless. There’s no way to use it to tell whether or not it’s a good idea to explain your reasoning to someone you disagree with.

But it sounds just-plausible-enough to fuel self doubt, because there are some situations in which it really is mean to explain things to someone. (An example that’s been circulating on Tumblr recently: It’s ok to dislike Minions. It’s not ok to hassle kids about liking Minions or try to convince them that it’s bad and they shouldn’t like it.)

It can be hard to remember that these tiny kernels of truth aren’t actually meaningful. But they’re not. Kernels of truth in a simplistic rule don’t make it useful — and they don’t make the people pushing simplistic rules right.

Also – people who are wrong aren’t always wrong about everything. They may have told you some things that were true. They may have told you some true things that you didn’t know. And they may have told you some true things that you *still* don’t know. That doesn’t mean that their overall approach was ok, and it doesn’t mean you should trust them or doubt yourself.

I think, push come to shove, you have to think for yourself and develop your own judgement about these things. And sometimes that will mean that you make social mistakes — but they will be *your* social mistakes, and you will learn from them. It’s ok for autistic people to make social mistakes. Everyone has to learn this stuff, not just us.

Short version: Social skills groups can really undermine your ability to trust your own judgement. They give you simplistic rules that are impossible to follow, then blame you when it doesn’t work. It’s not your fault if this happened to you, and it’s not your fault if you’re having trouble recovering.

We are people

July 27, 2015June 10, 2021 Real Social Skills

When I see a picture of someone who looks like me, it’s usually illustrating a tragic or demeaning story.

Sometimes it’s a picture of a child, illustrating a story about how difficult life is for parents of autistic children. Or a story about how the child’s favorite thing got turned into therapy. With depressing bullying statistics.

Sometimes it’s a picture of an adult, illustrating a story about how difficult life is for parents of autistic children once their kids reach adulthood. Or a bleak story about unemployment statistics. Sometimes it’s a story about a special business or sheltered workshop for autistics that the parent is proud to say their child is involved with. With depressing unemployment statistics.

Sometimes it’s a story about how an autistic person has a special talent. Maybe they’re an artist. The story is always about how mysterious and beautifully tragic it is that autism sometimes gives people special abilities along with significant impairments. The story will not take them seriously as an artist. It will be a human interest story about autism, and no art experts will be quoted — but the headline will probably say “autism does not define him.”

This gets corrosive. It can make the world seem bleak and hopeless. It can be hard to remember that this isn’t an accurate way to describe us. That we are, in fact, more than that.

In real life, we’re people, and we do things. We do things besides be miserable or be inspiring. We have thoughts and attributes that are not convenient to the tragic plots of newspaper articles. We’re people. We do real things. And we matter.

I am not a tragic story; I am not an illustration. I am a real person. And so are you.

Tell people you care what they are saying

July 25, 2015June 10, 2021 Real Social Skills

Anonymous said:

Another speech-impediment related question: Usually my ability to understand speech is perfect, but it deteriorates rapidly if a person has an accent or talks lowly, so I spend a lot of time smiling and nodding politely.

I feel bad about this with everybody, but especially if a person has a speech impediment or disability accent.

But to understand I’d have to ask people to repeat themselves three or four times for every sentence. Do you have any advice?

realsocialskills says:

Basically what I think about this is:

It’s ok not to understand people. That is not your fault.
Listening is important. It’s (usually) not ok to ignore people.
It’s not usually ok to pretend you understand someone when you don’t (unless you need to protect yourself)

Being honest about what’s going on makes communication much easier:

People don’t like being ignored
If you smile and nod, people can usually tell that you’re not really listening
They can’t tell why, because they can’t read your mind
As far as they can tell, you’re ignoring them because you don’t care what they’re saying

It can help to be be explicit about what the problem is, and what you think might solve it.

Eg:

“I’m sorry — I care about what you’re saying, but I’m having trouble understanding. It’s hard for me to understand low pitched voices – would it be possible to speak at a higher pitch?”

Or:

“I’m having trouble understanding your voice, but I’d like to listen. Would it be better to write things down, or should I ask you to repeat, or something else?”

Also, if there’s a particular accent you’re encountering a lot, it’s likely worth spending some time working on your ability to understand it. If it’s a particular foreign accent, one way to do that is to watch videos or shows in which people speak in that accent, and turn the captions on.

And just, generally speaking, this gets easier with practice. Once you get more experience listening to people with the accent you’re having trouble with now, you’ll probably understand more readily and not have to ask for as much repetition.

Trauma doesn’t make you any less of a person

July 21, 2015June 21, 2021 Real Social Skills

Some people are really creepy about survivors. (Or people who they perceive as survivors, often inaccurately.)

They treat trauma like permission. Like it gives them the right to boundless authority over you.

They see you as broken, and they think that means they’re entitled to fix you.

They act like you don’t know yourself, can’t know yourself, and shouldn’t think for yourself.

(And they may repeatedly trigger you on purpose in an effort to make you feel disoriented enough to believe them.)

They think that every opinion they have about you is the insight that will heal you. They think that you are somehow obligated to accept uncritically any purported wisdom they decide to bestow upon you.

They think that their love can heal you. They act like their desire to heal you with love means you’re somehow obligated to gratefully accept whatever expression of love they want to bestow upon you.

They act like their perspective should replace yours. They act like their desire to help you somehow obligates you to agree with everything they think.

They act like you’ll be better if you let them take over emotionally. Like you somehow can’t be trusted with feelings. Like you shouldn’t have feeling of your own anymore. Like you should have theirs instead.

People shouldn’t do this to you. It’s wrong, it’s creepy, and you don’t have to cooperate with it.

You are a person. You are allowed to have your own feelings. You are allowed to think for yourself.

You are allowed to decide who, if anyone, you want to be emotionally intimate with. You are allowed to decide whose advice you want. You are allowed to say no. You are allowed to disagree with people, even if they mean well and want to help. You are allowed to make choices about what help, if any, you want to accept, and who, if anyone, you want to accept it from.

You are you. You are allowed to be you. And nothing that happened to you gives others the right to try to turn you into someone else.