Recognizing uniqueness is not a substitute for thinking about disability

Teachers who are really good at teaching typically developing kids sometimes have trouble understanding the significance of disability. I’ve heard a lot of things like “all kids are unique” and “I always individualize my approach for every kid” and “I don’t see the need to label any kids as disabled, it’s just a matter of finding what works for them”.

This sounds positive, but it can be a disaster for kids with disabilities.

We talk a lot about uniqueness, but a lot of effective teaching depends on understanding ways in which kids are similar to each other. Developmentally appropriate practice means understanding how kids the same age are similar to each other — then being flexible in ways that recognize kids’ unique humanity. We develop a sense of what the range of difference is for kids of a particular age.

Kids with disabilities are more different than that, and we need to take those differences seriously. Disability matters, and practices based on typical developmental milestones don’t account for it.

For instance:

Developmental milestones tell us:

  • Two year olds don’t have the motor skills to support handwriting.
  • Early education helps two year olds develop the motor skills that will eventually support handwriting.
  • Ten year olds do have the motor skills to support handwriting.
  • If they’ve had appropriate education, ten year olds should be able to write.

Developmental milestones don’t tell us:

  • How to teach ten year olds who don’t have the fine motor skills to support handwriting.
  • What early literacy and pre-writing instruction looks like for young children who are unlikely to develop the motor skills needed to support handwriting

It’s also important to understand the difference between unusual and unique. Disability means having unusual differences. But not every difference is unique. Some differences are shared by other people with disabilities. Those shared differences are important.

We need to understand the disability-related similarities. Part of that is having the right words to describe them. Calling disabilities by their right names isn’t about labeling, it’s about breaking isolation and making important things speakable.

For instance:

Braille:

  • Braille exists because blind people need it to exist
  • The differences between sighted people and blind people are a reason that braille needs to exist.
  • (And a reason that Braille is better than raised print).
  • The similarities between many blind people are a reason that braille *can* exist as a standard way of accessing literacy.
  • If each blind person was completely unique, there would be no way to create a reading and writing system that would work for large numbers of blind people.

Some other examples:

  • Wheelchairs.
  • Ramps.
  • Large print.
  • Cars with hand controls and/or wheelchair lifts.
  • Text-to-speech communication devices.
  • VoiceOver and other screen reading software.
  • Signed languages.
  • Medications that manage symptoms.
  • Supportive seating.
  • The ADA, Section 504, IDEA and other disability rights laws.

People with disabilities are unique, and not interchangeable with each other. Similarly, kids the same age are unique, and not interchangeable with each other. Both the similarities and differences are important.

Short version: Sometimes progressive educators are uncomfortable with the concept of disability, and want to instead just see every kid’s uniqueness. That doesn’t work, because disability means having unusual differences — and because the differences aren’t unique; they’re shared with many other disabled people. Recognizing uniqueness isn’t enough — we also need to understand and accommodate disability.

Inclusive education: presence, participation, and learning

There are three components of inclusive education that matter a lot, which tend to get conflated:

  • Being present and welcome
  • Access to participation
  • Access to content

Being present and welcome means:

  • A person with a disability is in the room
  • Their right to be there is not questioned
  • People want them to be there
  • They’re seen as a student and treated as a peer by other students
  • They’re treated more or less respectfully
  • This doesn’t necessarily mean that they’re being taught the material, or that they’re meaningfully participating in educational activities

For instance:

  • A child with a disability may go to kindergarten, and spend a lot of time watching other children do educational activities.
  • Everyone might be very happy that they’re there.
  • Other children might like them, and play with them during recess or free play time.
  • They’re still left out of most activities
  • They’re still not being taught the same material as everyone else

Access to participation means:

  • When students are doing an activity, the disabled student isn’t left on the sidelines
  • They’re given something to do that makes them part of what’s happening
  • This doesn’t always give them access to the content, in and of itself.
  • They may or may not actually be learning the material the activity is supposed to teach.
  • They may or may not really be welcome in the classroom with their peers

For instance:

  • A group of third graders are being taught a lesson about sorting things into categories
  • The teacher draws a few giant Venn diagrams on big paper, with topic headings
  • The teacher writes a list of words on the board.
  • Students are told to draw those words, then tape them to the place in a Venn diagram category that they think it should go in
  • Then they’re given a list of words, and told to draw pictures of the words in the place in on the diagram that they think those things go
  • A disabled student’s aide gives them crayons and tells them to draw a couple of the pictures, then give them to the other kids to categorize
  • The typically-developing kids take the pictures and decide where to put them
  • Everyone is more or less happy with this. The student is participating and they are socially included.
  • But they’re not being taught the material about categorizing things. They’re just drawing pictures.

Access to content means:

  • The disabled student is taught the same material as other students
  • They’re given a way to engage with the material that they can understand
  • They learn the material, and develop their own thoughts on it
  • This doesn’t necessarily mean that they’re given a way to participate meaningfully in educational activities with peers
  • It also doesn’t necessarily mean that they are present or welcome

For instance:

  • A disabled student may attend a mainstream class, but be pulled out for one-to-one tutoring for most of their actual academic instruction.
  • If it’s good instruction, they’re getting access to the content.
  • But they’re not participating in educational activities with their peers.
  • They also may not really be welcomed in their mainstream class; people including the teacher may believe that they don’t have the right to be there (which is a factor that can lead to a lot of pull out instruction in and of itself).

This isn’t just about children, it’s true in every educational setting, including universities, grad school, and continuing education for adults.

Short version: Inclusion in school has many components. Three of them are being present and welcome, having a way to participate in educational activities with peers, and having access to the content being taught. All three of these things are important. Solving one problem doesn’t always solve the other two. It’s important to keep paying attention, and to work towards making sure students are welcome, that they are able to participate, and that they are learning the content being taught.

How disabled kids learn to be suspicious of optimistic teachers

This happens a lot in school:

  • A disabled kid goes to school.
  • A teacher is initially friendly and optimistic.
  • The teacher expects that their teaching will make the kid’s disability irrelevant.
  • Eventually it becomes clear that the kid’s disability is going to stay important.
  • Then the teacher gets frustrated, gives up, or stops being nice.
  • Sometimes this is overt and sometimes it’s subtle; it’s always hurtful.

A lot of kids go through this over and over during childhood. And, it often persists into adulthood and becomes a lifelong thing. It hurts. It does damage. And it means that people with disabilities are often suspicious of immediate kindly optimistic affect, and may take a long time to trust that you won’t reject them for being disabled.

If you’re teaching, be careful not to come in with the expectation that your teaching will erase disability or render it irrelevant. It won’t. Instead, start with the expectation that disability will matter and that you will be teaching students with disabilities. Disability acceptance is a key emotional skill for effective teaching. If you think around disability, it’s nearly impossible to apply any creativity to accommodating it. If you’re willing to face disability head on, it’s often possible to find good ways to adapt teaching so that a student can learn.

Age-appropriate interaction with autistic people

Hello, I am a teacher. I wanted to say thank you for your posts. I work with one student who is autistic and not quite non-verbal, but speaks very little.
 
I found myself talking to her as if she were much younger than she is because I had no way of telling if she was understanding. Your posts have helped me to understand that even though she doesn’t speak, it doesn’t mean she doesn’t understand, and even if she doesn’t, I should still treat her like the 12-year-old she is
 
On Wednesday I spoke to her to let her know that I was wrong to have spoken to her like a little kid, and that I would now be speaking to her like a twelve-year-old. She seemed pleased. I have ASD traits myself, but I’ve never been non-verbal (even when I couldn’t speak, I still signed), so I didn’t really understand that non-verbal doesn’t mean not understanding necessarily. Thank you.
 
realsocialskills said:
 
Oh wow. That is heartening to hear. It’s wonderful that you realized that it was wrong to talk to her like a young child, and that you apologized. That is such an important sign of respect for her. Thank you for taking this seriously, and thank you for telling me about this.
 
I want to add that, in addition to talking to her like a 12 year old, you probably need to develop better skills at listening to her like a 12 year old.
 
Probably most of the people you’ve known in your life who had a small expressive vocabulary or spoke only sometimes were very young children. Her speech is not like that. She is thinking much more complex things than a young child is capable of. If you’re not used to listening to nonverbal or minimally verbal folks who are not babies, you probably don’t yet know how to do so in an age-appropriate way.
 
So it’s not just the way you initiate talking to her that needs to change, it’s also the way you respond to what she says. She has a lot to say. Possibly through her words; possibly mostly through her actions; possibly mostly through body language. But, in any case, she is 12 years old, and she has a lot of 12 year old things to say.
 
You can learn how to listen to her better. It’s a matter of respect, practice, and skills you can develop.
 
For instance:
  • You can get a lot of mileage out of asking yes or no questions. (For some people, it helps to prompt with “yes or no” if it seems like answering yes/no questions isn’t a skill they have all the time) Eg: “Did you bring a lunch today – yes or no?”)
  • You can also use other kinds of two-option questions. Eg: If you know that she wants a book but she can’t tell you which book she wants, you can put your hand in the middle of the shelf and say “Up or down?” “Left or right?” “This one?”.
  • You can get even more out of asking a question with an open ended and closed response. Someone who can’t give you a meaningful answer to “What do you want to do?” may well be able to answer “Do you want to draw, or do something else?” Or “Is the answer England, or something else?”
 
You can also listen to what she says, make guesses about what she means, tell her what your guess is, and ask if you are right. For instance “You just said juice several times. I think that might be because you want to drink juice. Do you want juice, or do you mean something else?” Or “You just said “We’re all friends here!” and you sounded angry. Are you upset about something?“ Or “You just said “Separate but equal!”. Are you talking about discrimination?“
 
I’ve written about listening to atypical communication here, and here, and I wrote a more general post about how to provide respectful support to an autistic student here.
 
For some further perspective on this, I’d highly recommend reading the blog Emma’s Hope Book. It’s a blog written by the mother of a 12 year old autistic girl whose speech is unreliable (with some posts from her as well), and they have a lot of really important things to say about how to respect people whose communication is atypical. 
 
Short version: Your student has things to say, whether or not she has figured out how to say them. She is already saying some of them (in words or otherwise), whether or not you understand her communication. The more you assume that she is trying to communicate with you, and the more you assume that what she says is worthwhile, the more you will be able to understand her and teach her in age-appropriate ways. Scroll up for some examples.