When parents ask invasive questions

 
Hi. My parents are always asking me why I do things like rock back and forth or become unable to talk. When I say “I don’t know” they press me until I throw wordsoup at them. If I answer “I was overloaded” or whatever “Why were you overloaded?” “The lights.” “Why did the lights bug you today and not yesterday?” “I didn’t sleep well.” “Why didn’t you sleep well?” They go farther and farther until I say I don’t know, then press me until I make up reasons. I hate it. Help?
 
realsocialskills said:
 
That’s hard. There are no universal strategies that work for everyone in this case, and you might not be able to get them to stop, particularly if you are still living with them. That said, here are some possibilities:
 
Depending on your relationship with them, it might help to talk to them about it when you’re all calm. If they care about how you feel, it might help to tell them that it’s hurting you, possibly along the lines of:
  • Mom, when I am rocking back and forth or unable to speak, the last thing I want to do is talk about it. It really hurts my feelings when you press me for answers. There’s always a reason, but I don’t always know it, and it’s not something I want to talk about when I’m in that state of mind. When I’m rocking or unable to speak, I’d prefer that you leave me be.
  • or:
  • Dad, I get the sense that when I rock or can’t speak, it makes you very worried and you want to find out exactly what’s going on. I know you mean well, but that doesn’t help. Rocking and losing speech sometimes is actually fairly normal for autistic people, and it hurts my feelings when you act like it’s a problem to be solved. When I rock or can’t talk, that’s ok, and I’d prefer that you let me be and stop trying to investigate.
  • This only works if your parents care about your feelings and are likely to believe you. I don’t know you or your family, so I can’t tell you whether or not you have that kind of relationship.

Also depending on your relationship with them, you might be able to unilaterally refuse to talk about these things. This depends on how much power you have and how they are likely to react, but it’s a possibility worth considering:

  • If you refuse explicitly and say “I do not want to talk about that”, they will probably get angry
  • But it’s hard for them to argue with, particularly if you adopt a broken record approach and don’t answer questions like “why not?”, or answer them in closed ways like “That’s private.”
  • Whether this is a good idea depends on what your parents are likely to do if they get angry, and whether you consider that consequence bearable.
  • If all they’re likely to do is get angry or yell at you, it’s probably in your interest to develop a tolerance for yelling and anger
  • This is a good post by Dave Hingsburger about a man with a developmental disability learning to tolerate parental anger

Another possible broken-record approach:

  • When they’re asking, it might help to say “because I’m autistic”, and “because that’s what autistic people do” in response to all of their questions
  • Or something lighter like shrugging and saying “My brain works in mysterious ways”, if you can pull off a light tone with that.
  • This might work better than outright refusing or saying “I don’t know”, since it’s an answer, but it doesn’t get into details

Another possibility: infodump and bore them:

  • If they want to ask you about rocking or losing speech, you might try telling them every single thing you can think of about rocking and losing speech, in as verbose a manner as you can manage
  • And answer every followup question with another longwinded monologue
  • Infodumping can be a superpower of self defense. As Laura Hershey put it about wheelchair users blocking inaccessible doors, such power should not be wasted
  • If you’re infodumping and answering the question you want to answer rather than the one they want you to answer, that gives you power

Another possibility: lie

  • It might help to make up something that sounds plausible and just answer that every time they ask
  • Lying can be easier than trying to tell the truth
  • Particularly if you practice the lie and refine it to become an answer they find satisfying
  • “Why were you rocking?” “Because I was overloaded.” “Why?” “Because of the lights.” “Why did the lights bother you today and not yesterday?” “Today the lights were different. I think the bulbs are burning out.”
  • It is ok to lie when people are harassing you about things that are none of their business, even if they love you, even if they are your parents

Another possibility: Aggressively change the subject when they ask questions you don’t want to answer;

  • This is particularly effective if they have things they are particularly interested in
  • Eg “Why were you rocking?” “So, are you looking forward to the big game tonight?”
  • This doesn’t work on everyone, but it can be very effective with some people

Another possibility: Talk about the things they’re objecting to in positive terms:

  • “Why were you rocking?” “Because rocking is awesome!”
  • “Why weren’t you talking?” “Because words are overrated and the space outside of words is beautiful”
  • This can be disarming, in part because it’s rude to argue with people about things they like
  • They might follow up with: “But other people think it looks weird”, which you can answer “That’s their problem.” or “That’s ok.”
  • They might also say “That’s inappropriate”. I don’t know a great rhetorical response to that one, but people who say that are in fact wrong.

Another possibility: Turn the questions back on them:

  • “Why were you rocking?” “Why do you ask?”
  • This can be surprisingly effective with a lot of people, particularly if you can manage to sound curious or therapeutic.
  • Having a snarky/offended tone isn’t quite as effective, but it can sometimes work too, because it implies “that was not an appropriate question”. That tone will get some people to back off; it will cause others to argue

These are some of the strategies I know. Captain Awkward also talks about parents and boundaries a lot. You might want to take a look through her archives. (That said, take her advice about therapy with a grain of salt. What she says is true for a lot of people, but it isn’t necessarily going to be good advice for people with disabilities, particularly teenagers).

Beyond that, in any case, I think it’s important to keep in mind that this isn’t your fault, and that your parents should not be doing this. They may not intend any harm, they may well think they’re helping you, but they’re being mean. The problem is not caused by autism. The problem is caused by them being wrong about how to treat you.

These three posts about dealing with people being mean to you might help: “You’re ok, they’re mean.”, Learning self respect, and When people you love are mean.

I’m sorry you’re dealing with this. It’s an awful situation to be in. I hope that some of this helped.

When people you love are mean

So, in a recent post in which I referenced “You’re ok, they’re mean” as a response to ableism, I got responses along the lines of:

“But what about when it’s my parents? Or people who are really nice in other ways? Or my friends? Or people I respect? How can I say they are mean?”

The short answer: people are complicated.

It’s possible for someone to be mean sometimes, but not always. Actually, most people aren’t mean all the time. (Even if they are mean to *you* all the time).

Hateful aspects of someone’s personality or behavior don’t cancel out the parts of them that are loving and respectful. They coexist.

And it cuts both ways – the loving or respectful aspects of their personality or behavior don’t cancel out the parts of them that are mean.

When they are being mean, it’s important to recognize that they are being mean, and that it’s wrong for them to be mean to you. Even though they aren’t mean all the time and you respect them in other ways.

Sometimes, when people who you love are mean, it’s possible to talk to them about it and show them that it hurts you. Sometimes they don’t realize they’re being mean, and sometimes they stop once they realize. But not always. Sometimes they don’t believe you, or don’t care. You have to use your judgement about which kind of situation you’re in.

And in any case, it starts by recognizing the mean behavior or attitudes as mean. If people think less of you because of your disability, or who you love, or anything else like that, they’re being mean. It’s a reflection on them, not you.

You’re ok. They’re mean.

Your brain is not a democracy

Your brain is not a democracy.

You get to decide what you believe. You can think things that no one else agrees with. You can also like things no one else likes.

You can and must think for yourself.

For instance:

If someone calls you out for something, it’s important to listen to them, and to think through whether or not you think they are right.

If a teacher or therapist tells you that something is socially inappropriate, it’s important to think through whether or not you agree.

If everyone tells you that a TV show you like is awful, it is still ok for you to decide whether you like it

If everyone tells you that something you like isn’t age appropriate, it’s still ok for you to decide you like it.

Your thoughts and tastes are yours. You are the one who should decide what you like, believe, and spend time doing.

Age-appropriate interaction with autistic people

Hello, I am a teacher. I wanted to say thank you for your posts. I work with one student who is autistic and not quite non-verbal, but speaks very little.
 
I found myself talking to her as if she were much younger than she is because I had no way of telling if she was understanding. Your posts have helped me to understand that even though she doesn’t speak, it doesn’t mean she doesn’t understand, and even if she doesn’t, I should still treat her like the 12-year-old she is
 
On Wednesday I spoke to her to let her know that I was wrong to have spoken to her like a little kid, and that I would now be speaking to her like a twelve-year-old. She seemed pleased. I have ASD traits myself, but I’ve never been non-verbal (even when I couldn’t speak, I still signed), so I didn’t really understand that non-verbal doesn’t mean not understanding necessarily. Thank you.
 
realsocialskills said:
 
Oh wow. That is heartening to hear. It’s wonderful that you realized that it was wrong to talk to her like a young child, and that you apologized. That is such an important sign of respect for her. Thank you for taking this seriously, and thank you for telling me about this.
 
I want to add that, in addition to talking to her like a 12 year old, you probably need to develop better skills at listening to her like a 12 year old.
 
Probably most of the people you’ve known in your life who had a small expressive vocabulary or spoke only sometimes were very young children. Her speech is not like that. She is thinking much more complex things than a young child is capable of. If you’re not used to listening to nonverbal or minimally verbal folks who are not babies, you probably don’t yet know how to do so in an age-appropriate way.
 
So it’s not just the way you initiate talking to her that needs to change, it’s also the way you respond to what she says. She has a lot to say. Possibly through her words; possibly mostly through her actions; possibly mostly through body language. But, in any case, she is 12 years old, and she has a lot of 12 year old things to say.
 
You can learn how to listen to her better. It’s a matter of respect, practice, and skills you can develop.
 
For instance:
  • You can get a lot of mileage out of asking yes or no questions. (For some people, it helps to prompt with “yes or no” if it seems like answering yes/no questions isn’t a skill they have all the time) Eg: “Did you bring a lunch today – yes or no?”)
  • You can also use other kinds of two-option questions. Eg: If you know that she wants a book but she can’t tell you which book she wants, you can put your hand in the middle of the shelf and say “Up or down?” “Left or right?” “This one?”.
  • You can get even more out of asking a question with an open ended and closed response. Someone who can’t give you a meaningful answer to “What do you want to do?” may well be able to answer “Do you want to draw, or do something else?” Or “Is the answer England, or something else?”
 
You can also listen to what she says, make guesses about what she means, tell her what your guess is, and ask if you are right. For instance “You just said juice several times. I think that might be because you want to drink juice. Do you want juice, or do you mean something else?” Or “You just said “We’re all friends here!” and you sounded angry. Are you upset about something?“ Or “You just said “Separate but equal!”. Are you talking about discrimination?“
 
I’ve written about listening to atypical communication here, and here, and I wrote a more general post about how to provide respectful support to an autistic student here.
 
For some further perspective on this, I’d highly recommend reading the blog Emma’s Hope Book. It’s a blog written by the mother of a 12 year old autistic girl whose speech is unreliable (with some posts from her as well), and they have a lot of really important things to say about how to respect people whose communication is atypical. 
 
Short version: Your student has things to say, whether or not she has figured out how to say them. She is already saying some of them (in words or otherwise), whether or not you understand her communication. The more you assume that she is trying to communicate with you, and the more you assume that what she says is worthwhile, the more you will be able to understand her and teach her in age-appropriate ways. Scroll up for some examples.
 
 

The limits of asking for reassurance

That social anxiety “are you mad at me” post, I feel what you answered was a manifestation of the problem. We with social anxiety ask/wonder it an inordinate amount, and our friends get angry, thinking we doubt them. That post was not about actual problems, but the guilt complex and fear of “did I do something unknowingly/did they hate that but are trying to help me save face?” Your answer gave me the feeling of “if you even have to ask, you probably DID hurt them.”
realsocialskills said:
It’s definitely the case that some people think that asking if you’re angry a lot is manipulative in and of itself. It isn’t, and that’s important understand. Some people need to ask a lot, because otherwise they can’t tell, and constantly wondering if someone is mad can be excruciating.
It’s ok to need to check in a lot. If you’re really insecure, chances are that when you need to ask, nothing is actually wrong.
Usually, it’s going to be your guilt complex making you feel ashamed for no good reason. But sometimes, when you feel bad, something actually will be wrong.
If you have to ask, it’s because you don’t actually know whether it’s your insecurities or an actual problem.
Most of the time it’s going to be your insecurities. But if you have to ask, then you have to ask sincerely. Which means being open to the possibility that something actually is wrong, and that the answer might really be “Yes, I’m mad at you.”
If you’re not prepared for the answer to “are you mad?” to be “yes, I am mad”, then what you’re doing isn’t really asking – it’s demanding that the other person reassure you that they’re not mad even if they are.
It’s not ok to demand that someone reassure you that they’re not mad, even if the overwhelming probability is that they are not. It’s ok to ask, but it has to be a real question. (And, in practical terms, asking sincerely is more effective at getting meaningful comfort anyway. If you’re not asking a real question, it’s harder to trust the answer you get.)

Asking for reassurance can (sometimes) be manipulative

My response to this post from wasthatnotsideblog:

just gonna say this: if someone has social anxiety and they ask you something akin to ‘are you mad at me’ or ‘do you hate me’, it isn’t because they don’t trust you, it’s because their brain literally tells them that all the time

it’s not a personal slight, it’s insecurity caused by mental illness

thanks

realsocialskills said:

It’s manipulative if the only acceptable answer is “of course I’m not mad at you and nothing is wrong”.

It’s ok to worry a lot that someone might be mad, and to need them to be explicit about it. It’s ok if you need to check in much more than most other people do.

It’s also important to accept that sometimes, the answer will be “yes, I am mad at you”, and that people are allowed to be mad at you even though your mental illness makes other people’s anger frightening.

Because sometimes, something will be wrong, sometimes you will hurt people, and sometimes they will be mad at you. That’s part of how relationships work, and it’s not ok to try to evade it.

Pushback on “don’t hate younger versions of yourself”

About the “don’t hate younger versions of yourself”- I can see that with ignorance and inexperience, but wouldn’t it make sense if someone used to be violent and/or mean to hate who they used to be?
realsocialskills said:
I don’t think that hating your former self helps in that case, either. Some people have a lot on their conscience for which the only appropriate reaction is horror and atonement. That is not the same as hating yourself. Self hate will not help.
Partly because – the person who did and believed all of those things is still you. You will always be someone who once did those things, even though you now know better.
I think that kind of past creates obligations. You have to be able to face what you have done, and do work fighting the kind of evil you were once responsible for. That work has to be done with love.
Part of those obligations have to do with – finding ways to communicate to others who are cruel in the way that you once were that it is immoral and inexcusable to do those things.
I don’t think you can do that if you hate them, or if you see them as worthless and irredeemable. You were not worthless or beyond hope when you acted that way. You learned to stop. You are not unique in that regard. There are others who can stop, and there is work you can do to make that more likely.
It doesn’t mean that you have to renounce all boundaries and let mean people hurt you, or that you have to be close to people who are doing the kind of harm you once did. But it does mean that you have to do things beyond feel disgust. Hating your former self is a cop-out.
Push come to shove, you have to live with yourself. Hating yourself won’t make your past go away, it won’t undo anything you’ve done, and it’s not a way out of your obligations going forward.

A neurodivergent person who doesn’t identify with villains

is there something wrong with me if i’m a neurodivergent person who has never really identified much with villains? it seems like in my experience a lot of neuroatypical people do relate more to villainous characters, for the reasons you outlined, but i never have. it makes me feel like i must be doing neurodivergence wrong, or like i can’t really be that oppressed if i don’t relate to villains.

realsocialskills said:

No, all it means is that you don’t identify with villains.

There are a lot of reasons some neurodivergent people identify with villains, but that doesn’t mean it’s a necessary part of being neurodivergent.

Neurodivergence isn’t something you have to earn by being part of a particular subculture or having particular tastes. It’s just the way your brain is.

And being oppressed is about how much power other people have over you and how they treat you, not what your personal tastes are.

You’re a person, and you like what you like. You don’t have to like villains. You don’t have to like or dislike anything else either. These things are matters of personal taste, and you have the right to decide for yourself what you do and don’t like.

Learning self respect

I’m twenty years old and I can’t help but think that everyone thinks I’m stupid. I stutter, I feel slow, I say dumb things, and I sometimes catch people giving me judging looks. No one’s ever said that to me except maybe once or twice when I was much younger, but I can’t help be bothered by it.
I feel like there’s something wrong with me mentally, but people don’t want to address it. I hate it. I’d rather be messed up and not aware of it than this. How do I learn to love and be okay with myself?
realsocialskills said:
The most helpful thing I know about this, I learned from Dave Hingsburger’s book _The Are Word_. And, in the simplest form, it’s this:
You’re ok. They’re mean.
If you stutter and think slowly and have cognitive problems and have trouble communicating, there probably are a lot of people in your life who think you are stupid.
They may think that, but it isn’t true.
You’re ok. They’re mean.
People who think that you are stupid are being mean. People who give you judging looks are being really mean.
You’re ok. They’re mean.
The way you talk doesn’t make them look down on you. The way you think doesn’t make them look down on you. Your voice is not the problem. Your brain is not the problem. They’re mean because they’re bigoted and mean.
You’re ok. They’re mean.
And, in the words of Laura Hershey: you get proud by practicing.
I know it hurts. It hurts terribly. It’s not your fault, and you won’t always feel this awful. It takes time. It takes practice. It’s slow, and incremental. Try not to be hard on yourself for struggling with this. We all do. It’s hard. That’s not your fault, either.
You’re ok. They’re mean. And as you practice understanding this, and as you practice getting proud, it will be easier to feel ok and harder for them to hurt you.