Disability pity

A reader asked:
I heard that disabled people dislike getting sympathy, and I had trouble understanding that. But then later I was somewhat disabled, and received some unwanted sympathy, and I found it really horrible. I had a very strong feeling, maybe it could be called humiliation.
So then I understood; but I don’t know how to explain that to people who haven’t experienced it. My theory: people like sympathy if something bad has just happened, but if it’s long-term then it’s normal for them.
realsocialskills said:
I think the main problem is that people offer disabled people sympathy for all the wrong reasons.
They want to tell us that our bodies are awful, and sympathize with what they imagine it must be like to be in such an awful body. There’s not a lot of respect there. Or willingness to listen to what we actually experience or how we actually see things.
People like that want to offer sympathy that it’s hard to understand without captions, but no sympathy for how frustrating it is that no one ever provides them. They want to offer sympathy for people’s inability to walk up stairs, but no sympathy for how awful it is that people decide not to build ramps. They want to offer sympathy that someone is dying for disability-related reasons, but no sympathy for the fact that they are being denied treatment by ableist doctors.
People with disabilities are, first and foremost, people. And people who ooze sympathy are not interested in recognizing that.

When you prefer not to decide something

Read the post about consent problems. Curious about not quite opposite problem. Lack of opinion/preference being mistaken as consent problem e.g. “Where do you wanna go for lunch?” “I’m fine with wherever you want .” “Yeah, but, where do /you/ want?”
realsocialskills said:
Sometimes you can solve that problem by telling them explicitly that you want them to decide. Eg:
  • “I’d like you to pick a place.”
  • “I’m kind of tired of all the places I go, do you know of somewhere good?”

If you say it this way, it’s clearer that you’re actually *expressing* a preference (that they decide), and it looks less like you’re avoiding saying what you want in order to be polite.

Another possibility is to ask them for help narrowing it down, eg:

  • “Can you give me some options?”
  • “What are some places you like?”

Then, if you really don’t have a preference, you can pick one of their suggestions at random. And if you do have a preference, hearing a list can make it easier to make a choice.

These approaches don’t always work, but they do in a lot of situations.

On not opening a discussion

I would probably do this: The first time, just pull away. That should give them a message. If they keep doing it just as often, the next time, say something low-key like “Please don’t touch my leg” or “I’d rather not hold hands” or “I prefer not to be touched” or just “Sorry, no” while pulling away. That should give them a message. If they keep doing it just as often, the next time give a firmer message like “It bothers me when you touch me like that.” That should open a discussion.
realsocialskills said:
I mostly agree with you. I think that you’ve described a good progression of ways to assert a boundary.
The point I disagree with you on is that you’ve described this as a way to open a discussion. I don’t think this is about opening discussion; I think it’s about asserting a boundary. The OP does not have to negotiate with her friend. She doesn’t have to convince her that she has good reasons not to want to be touch. OP can have this as a unilateral boundary.
“Don’t touch me” means “don’t touch me”. It doesn’t mean “let’s have an extended emotionally fraught conversation about your desire to touch me.”
If the OP wants to have that conversation with her friend, it’s ok to do that – but it really sounded to me like she just wanted her to stop. And that’s ok too.

Arguing isn’t always ok

… If someone acts defensive and argues when you criticize them for touching you, and from then on is very careful not to touch you, then they’re just nervous and don’t like criticism. That’s fine. The problem would be if they really act as if they have a right to touch you after you’ve asked them not to. Or actually the problem would be if they keep doing it, for whatever reason.
realsocialskills said:
I don’t think it is at all ok to be that resistant to criticism.
Sometimes it’s ok and right to argue if you think someone is misjudging you, but it’s not ok to have that be your default response every time someone says no to you.
Especially when what they are saying is along the lines of “I don’t like being touched that way, please stop.”
It’s not ok to resist that kind of thing, and it’s especially not ok to try to get them to back down by arguing about it. People have the right not to want to be touched. People who don’t understand this and put pressure on others to accept touch from them are dangerous.
It’s definitely better to argue and then respect the boundary from then on than it is to not stop at all. But that doesn’t mean the arguing was ok to begin with. (Everyone makes mistakes, and if you find that you have argued in a boundary-violating way, the first step is to apologize.)
It’s ok that sometimes things hurt to hear; it’s not ok to try to make that hurt go away by arguing or otherwise putting pressure on someone to let you do what you want to them. It’s ok to be nervous or uncomfortable about criticism; it’s not ok to pressure someone else into making you feel better by doing what you wanted.
It can be hard to learn to hear no when you really want someone to say yes, it can be hard to learn to respect that and not push someone into something they don’t want, but it’s really, really important.

Saying no to unwanted touch

A reader asked:

One of my friends has recently begun touching me a lot, either by grabbing my hand or knee etc in situations that don’t necessarily feel they warrant such contact and don’t actually feel organic.

At best this is just a case of her being too physical and making me uncomf, at worst, knowing that I’m queer, it may be that she is trying to make me her “experiment,” despite also knowing I’m in a monog. relat.

I can’t tell exactly if I’m overreacting or not but either way, if this continues, I’m not at all sure I know how to handle the situation. It’s difficult for me to imagine navigating this type of conversation, esp if I want to keep the friendship (since I know what I would do if this was a situation with a man, or someone with whom I didn’t want to maintain a friendship).

Plus, being a survivor makes navigating all of this all the more difficult. I would appreciate your advice, thank you.

realsocialskills said:

I don’t have a lot of experience defusing this kind of situation successfully, so I’m not sure my answer will be a good one.

This is my best guess:

First of all, I think you’re probably not overreacting:

  • When people repeatedly touch others in invasive ways, it’s usually not an accident
  • It’s really, really common for people to touch others in invasive ways that are just-barely-deniable
  • People who think others are touching them in creepy ways are usually right
  • This is especially true if the person who is touching you invasively *used* to only touch you in ways you were ok with

Second of all, regardless of why she’s touching you, it’s ok to want it to stop:

  • There are all kinds of reasons that friends sometimes don’t want to be touched in various ways
  • If you don’t want her touching your leg or holding your hand, it’s absolutely your right to have it stop
  • If she’s doing this unintentionally, telling her in the moment to stop might solve the problem
  • Friends do sometimes inadvertently violate the boundaries of friends, *and if they respect their friends, they stop when they find out it isn’t welcome*

Things you might say (possibly in combination with pulling away or pushing her hand away from where you don’t want it to be):

  • “I don’t like that”
  • “I don’t want to hold hands”
  • “Please don’t touch my leg”
  • And if it is repeated, you might add “I meant it”.

She might respond by angrily denying that she’s doing anything wrong. That’s a sign that something is seriously wrong:

  • Telling her to stop touching you in ways you don’t like is not an accusation
  • It just means telling her that you don’t like it and want it to stop
  • It might hurt to hear that, because nobody likes hearing that they’ve done something wrong. But if she lashes out at you about it, that’s a sign that she feels entitled to your body
  • And whether or not it’s sexually motivated, that’s a major problem
  • I wrote this post and this post about that kind of reaction

Captain Awkward also has a post on unwanted and possibly-sexual touching from friends  which might be helpful.

False assumptions made about wheelchair users

 
There are also cases of false assumptions being made about wheelchair users – e.g. they have full hand function, that they aren’t heavy etc. There have been a number of times my dad’s been trapped in lifts because you need to press the small lift buttons (he doesn’t have fine hand control) and the lift can’t carry him (a fully-grown, slightly overweight man) his electric wheelchair (built in the 1980s), and a button-pusher, due to weight restrictions or space in the lift car.
 
realsocialskills answered:
 
Yes, those are all also things that can cause access features to be inaccessible.
 
Sometimes these things are designed as though all people who need flat entrances and lifts are all either little children, accompanied by able-bodied people, or 20-something paraplegic athletes who use lightweight manual chairs.
 
And that’s really not the reality.

Don’t miswrite dialects

So, I’ve seen this problem when people want to write characters from a culture other than their own:

  • They know that those characters speak a different dialect than they do
  • And they want to convey this
  • But they don’t realize the dialect actually has a rich grammar and other idioms and conventions
  • So they end up just using a lot of stereotypes, or mis-using well-known attributes of the dialect
  • For instance, white authors who want to write characters who speak AAVE often misuse “be” as an indicator (by replacing “is” with “be” at random times rather than learning how “be” actually functions grammatically and writing it correctly.)

It’s important not to do that. If you want to write dialogue in a particular dialect, it’s important to actually learn that dialect so that you can write it correctly. 

Some ways that ramps can be inaccessible

A reader asked:
I agree with you. I’d just like more information so I can understand it better and imagine it more clearly. How exactly do the people with strollers make the ramps inaccessible to wheelchair users? Do they also make the ramps inaccessible to other stroller users? Or is using a wheelchair on a ramp a lot more difficult than using a stroller on a ramp? Do the wheelchair users need a lot of space? How much? Do they need to use momentum? How can you tell if someone wants to use the ramp?

Wishful thinking

If you think someone is a jerk.

And then you’re attracted to them sexually.

Or they offer you a job you really want.

Or they introduce you to a really cool group of people you look forward to spending time with.

Or you otherwise want something from them.

And then you stop feeling like they’re a jerk.

They’re probably still a jerk. You were probably right the first time.

If you think you’re right now, think through why that is. Why did you think they were a jerk before? Do you have new information? Has anything changed?

Don’t just assume your now-good feeling about them is right.

Wishful thinking is a powerful thing, and it can lead you astray.