Tag: autism

Some things about speech

Real Social Skills

Sometimes people have speech at some times, but not others.

Sometimes people have very fluid fluent speech sometimes, and choppy forced slow speech at other times.

Sometimes when people can’t speak, or have trouble speaking, it’s because something is wrong. Sometimes it’s because they’re stressed, or overloaded, or forgot how because they’re frozen and need help getting unfrozen. Or because they’ve pushed themselves too far and are just too exhausted to function.

But losing speech, or losing fluent speech, is not always like that. Being in a mode where speech is difficult or impossible is not always a sign that something is going wrong. For some people, that’s just a mode they can be in, sometimes.

It can mean they are prioritizing different things, putting more resources into thinking rather than speaking. It can mean they are in a more sensory mode rather than a WORDS WORDS WORDS mode. It can mean they’re interacting, and that it’s about presence and not conversation. Or any number of other things.

To make a somewhat flawed analogy: People don’t usually speak during movies. When people aren’t speaking during movies, it’s not because something is wrong. It’s because they’re doing a different thing.

It’s important to know that both of these things exist. That sometimes lack of speech or difficult speech means something is wrong, but sometimes it means something is right.

Shame is not a cure

Real Social Skills

So, here’s the thing.

People with disabilities are taught that we’re just lazy. That eventually, if we care enough, we’ll be cured. That we can shame our way out of being disabled. 

This is counterproductive.

If you can accept the way you are, the way your mind works, the way your body works – 

You can figure out how to do things in the way that *actually works for you*.

And you can do a lot more, than if you’re stuck in the mindset of thinking that shame will cure you.

Shame doesn’t create abilities. Self-hatred doesn’t create abilities.

Acceptance creates abilities. Understanding and working with your real configuration rather than against it can greatly expand what you can actually do. Even though there are abilities you will never have. There’s a lot you can do, if you understand and accept yourself as you are.

Some words can apply broadly

Real Social Skills
A reader asked
Is it wrong for me, as a neurotypical person (AFAIK, there have been hints that I might have something undiagnosed), to use terminology coigned by atypical people? The way f’example stimming and overloading have been explained to me describe things that I do and the reasons behind them really well, but I don’t know if it’s appropriate for me to call them that.
realsocialskills answered:
Most people who stim a lot and get overloaded a lot are autistic. Most. Not all. Some people with ADHD also experiencing stimming and overload. So do some neurotypical blind people. So do other folks.
Overload and stimming are words that describe particular experiences, not a particular diagnosis.
If you have those experiences, it’s ok to use the words.

Autistics, cluelessly awkward people, and jerks

Real Social Skills

Some people are socially awkward because they don’t know the rules. Those people can learn the rules and not be awkward anymore. That is a different problem than autism.

Being autistic means that, no matter how much you understand, you will not be able to follow all of the rules. There will be some rules you won’t ever be physically capable of following. And some rules you will be capable of following, but with a heavy cost not faced by nonautistic people. And sometimes your abilities will fluctuate. That is a different problem than being awkward out of ignorance.

It’s also a different problem than being a jerk. Some people are jerks who don’t much care about being good to others. This is a different problem than not knowing the rules, and it’s a different problem than being physically incapable of following the rules.

Some people are kind of unintentional jerks because they don’t understand much about *how* to be good to others. This is a different problem from not caring about others. It’s also a different problem from not understanding the rules, or being unable to follow the rules. Treating people well is a learned set of skills. It’s not the same as social conformity or appearing normal.

Autistic people can be considerate of others. Autistic people can treat others well. This does not depend on following all of the rules all of the time. Following the rules is one tool people can use to be considerate of others. It is not the only tool.

Being autistic means that being considerate of other people will look different for you than most other people. It doesn’t mean that your neurology dooms you to be a jerk. It just means that you have to learn to treat others well in a way that works with rather than against who you are.

Remembering that food exists

Real Social Skills

It can be hard to remember that food exists, or notice it while it’s there.

I know a few things that work for some people to mitigate this problem:

For some people, cooking for other people regularly makes it easier to notice that food exists:

  • Sometimes remembering to cook for other people works as a reminder that you need to cook and eat
  • Sometimes the motor/sensory/tactile experience can make it easier to remember that you have food
  • Because for some people, motor memory works better than visual memory

For some people, asking other people for direct help is useful:

  • If you feel like you need to eat, asking a friend to tell you to eat might help
  • Or asking them what you should eat
  • Or how to find the food
  • Some people who can’t figure out food for themselves, *can* tell other people how to find food
  • So if you and a friend both have this problem, you might still be able to help one another

Stashing food in places where you’ll see it can also help:

  • Keeping a box of cheerios or granola bars or something else that lasts a while by your computer might work as a reminder that food exists

These are strategies I know about. Do any of y’all know about others?

Making text more readable

Real Social Skills
A reader asked:
Having aspergers and and ADD has made communicating with people very difficult, especially in relationships. I’ve found that writing helps but reading is hard because I get lost in blocks of words and unable to focus. Are there things that can be done to help with communication and reading replies etc?
Sometimes it helps to paste the text into a document and then use either white space or color coding to help you keep track.
Here’s how I do color coding:
  • I paste the text I want to read into Word
  • I turn all the text blue
  • As I read the text, I turn it black again
  • That enables me to keep track of which parts I have and haven’t read

Formatting the text can also help. This is how I do it with emails:

  • I hit the reply button so that I can edit the text
  • Then I put in paragraph breaks where I think there are conceptual breaks
  • This means I can move around on the page more easily when I want to re-read a particular part

About oppression analogies

Real Social Skills

This is a way different groups run into conflicts.

  • One group has seen historical discussions of something bad that used to happen to another group
  • They think this is over
  • They want to use this as an analogy for a group they are part of
  • So they say “well, what if x happened to that group?”
  • and then they don’t realize that actually, this thing still happens to that group all the time
  • and so they end up hurting the other group by erasing their experiences

Some common examples:

  • LGBT groups that say that they are the new civil rights movement, as though racism and discrimination have ended
  • Any time one group says “just substitute black for [my group] and no one would think this was ok (because there are still a lot of anti-black racists who do that thing; this isn’t over)
  • People using an analogy to the n-word to object to the way another group is discriminated against. (This is bad because the n-word is still routinely used against black people, and saying it still hurts people even if you think you aren’t racist)
  • Mental health advocates who say that people don’t get blamed for physical illness, so they shouldn’t be blamed for mental illness either (people get blamed for phyiscal illness all the time, especially chronic illness)
  • Eg "Imagine if you were blamed for having cancer”. 
  • Autistic advocates who say that asking them to make eye contact while talking is like asking someone with motor coordination problems to do pushups (which is a thing that happens too)
  • Comparing things the the Holocaust that aren’t similar (abortion opponents and animal rights activists often make these sorts of comparisons)

These are some examples I know about, and I know there are many I do not know about. What are some others? (And did I get any of these wrong?)

Hunger can impair communication

Real Social Skills

Some people who can usually use language to communicate lose a lot of their words if they get too hungry.

When you’re hungry, you don’t have as many cognitive resources available, and some of what is available gets taken up by dealing with hunger. For some people, this can mean that the resources needed for language simply aren’t there.

If you’re finding that you often can’t speak well in the middle of the day, it’s possible that you are forgetting to eat. This might be the case even if you don’t feel hungry.

If you get used to not eating properly, it can be hard to notice hunger. If you’re too hungry for too long, sometimes you get used to automatically ignoring the sensations of hunger, which can make them hard to identify.

If you’re experiencing sudden cognitive or communication impairment, and you haven’t eaten recently, it might be a side effect of hunger. Sometimes, if you get too accustomed to the sensations of hunger, you don’t notice feeling hungry until it stops you from thinking well.

If you used to be able to use language reliably but are experiencing seriously diminished ability, it might mean that you haven’t been eating properly for a long time.

Hunger isn’t the only reason some people have intermittent language problems, and it’s not the only reason people lose language skills in a longer-term way. But it’s very common for people with communication disabilities to have dramatically worse communication problems when they are chronically hungry.

If you’re having communication problems that seem to be more severe than you expect, it’s worth checking to see if you’re also having trouble eating enough. And if you are, it’s worth making fixing that a priority.

Stimming for non-autistics?

Real Social Skills

A reader asked:

Can non autistics stim too or is that a term/thing reserved for autistics?

Yes, it’s common for other kinds of people too.

It’s not only autistic people who do it. And there’s absolutely nothing wrong with a nonautistic person moving in ways that are common for autistic people.

It’s just that stimming tends to be really important to autistic people (and folks with some other disabilities), in a way that it usually isn’t for people without disabilities.

And here’s a thing about that:

  • A lot of neurotypical people like to rock or play with toys or whatever
  • Most NT people can sit still in a socially acceptable way without harming themselves
  • In particular, most NT people don’t need to stim in order to understand what’s going on around them, communicate, or prevent themselves from getting really overloaded

It’s important to keep this in mind, and to understand that stimming is really, really important for some people.

If you’re not disabled, and these kinds of motions aren’t particularly important for you, it’s probably better to call them fidgeting.

Another thing about therapy

Real Social Skills

A good percentage of people who need therapy only get it after repeatedly failing at things everyone around them can do. (Especially developmentally disabled children). This is often humiliating.

This means that therapy can be triggering. Therapy involves focusing on difficulties that someone has learned to regard as humiliating flaws. It’s important to keep this in mind when you give therapy.

Don’t expect someone to trust you right away. You have to demonstrate that you are trustworthy. You have to show them that you can be relied on to treat them respectfully. You have to demonstrate that you won’t ever regard them as broken, or make respecting them contingent on them progressing toward a cure.

And it needs to be true. You can’t just affect safety and kindness. You have to actually be trustworthy in a deep way, and let that show through your action.

You don’t get to decide when you have established trust; you don’t get to decide when someone receiving therapy should feel safe. It’s up to the person getting the therapy. (Even if they are a child.)

And if you understand this, you’ll be much more able to help people.