Short version of the post on safety

There’s more to safety than making people feel safe. 

If your whole approach to other people’s safety is based on causing them to *feel* safe, you run the risk of forgetting to make sure that things actually *are* safe. 

If someone’s whole approach to your safety is about managing your feelings, it’s probably a good idea to be cautious about trusting them.

Safety vs making people feel safe

There are all kinds of affective things and cognitive tricks you can learn that make it more likely that people will trust you and feel safe.

It is possible to get really, really good at that without actually learning how to be trustworthy. You can be really, really good at making people feel safe, and still be a danger to people who trust you.

Sometimes it’s not a good idea to focusing on trying to make people feel safe.

Often, it’s much better to focus on learning how to be trustworthy. Two major components of being trustworthy are paying close attention to practical safety; and listening to the people whose safety might be impacted.

For example:

If you want to know what’s dangerous, it’s important to seek out the perspectives of people you’re trying to create safety for. This isn’t something you can do completely on your own.

Part of this is seeking out writing about danger and safety by members of the affected group, or advocacy organizations run by members of the affected group. Another part of this is listening to the individual people who you are actually interacting with about their needs.

It’s important to communicate effectively about the things you are doing that might make trusting you a good idea.

It’s important to talk about safety improvements to make sure people know about them. (Eg: if you fixed a dangerous ramp, people need to know that it has been fixed). It’s also important to communicate your willingness to listen to people about their needs and fix things that are endangering them. It has to be true, and you have to do things to communicate that it’s true. It does not go without saying; willingness to listen and address safety issues in practical terms is actually fairly uncommon.

If you focus on practical safety through proactive research and listening to affected members of your community, you can get very far in building safe and welcoming community even if people do not feel safe.

Some people who do not feel safe still care very much about being there, and are willing to take risks in order to participate. It’s important to honor and accept that.

Some people aren’t ever going to feel safe. (And some of them will be right.) It’s important to accept them as they are, and not make feeling safe a prerequisite for participating.

Short version: “Making people feel safe” is often the wrong approach. Focusing on being safe often matters a lot more. Some people don’t believe that they are safe, and are willing to take risks in order to participate. They should be allowed to have that perception. They should not be pressured into feeling safe as a prerequisite for participation.

“Blaming others”

“Take responsibility for your life and stop blaming others” is the kind of phrase that is sometimes really important and also sometimes dangerously misleading.

It’s important to take responsible for things that are within your control. Taking responsibility is about accurately assessing situations, and deciding what to do about them within the options you have.

Unfortunately, when people say “stop blaming others and take responsibility for your life,” they’re not always talking about assessing things accurately. Sometimes what they’re doing is trying to convince you to assume that everything you’re experiencing is always your fault; and that you could always make everything better if you just made better choices.

There are *some* situations in which it’s actually the case *in that particular situation* that blaming others is holding someone back. In those situations, it often *is* possible to fix things by making better choices. It’s important to recognize those situations when they arise. It’s not a remotely good idea to assume that all situations are like that.

Sometimes things are your fault. Sometimes they’re someone else’s fault. Sometimes it’s a mixture of both. In order to take responsibility for your actions, it’s important to realistically assess what’s going on. Sometimes that means noticing that other people are causing problems.

In order to be responsible, it’s important to evaluate what’s actually going on. Assuming that everything is always your fault won’t help.

Responding to desexualization without hurting others

Content note: This post is about ableism and desexualization of adults with disabilities. It is highly likely to be triggering to some people who have experienced degrading desexualization, as well as to some people who have been sexually assaulted or otherwise had people violate their sexual boundaries.

A reader asked:

As an autistic person I often feel desexualised, and I don’t like it but I feel sorta uncomfortable stating it for some reason? How should I like, deal with this and enforce my sexuality without making people uncomfortable?

realsocialskills said:

This gets really complicated.

Being desexualized is awful, and it’s also really hard to talk about without sounding like you feel entitled to sexual or romantic attention from other people. Especially when you’re talking to people who’ve been on the receiving end of a lot of intrusive sexual attention and who aren’t aware that desexualization also happens and is also a problem.

Another complication is that many adults really are asexual or aromantic. That’s an ok way to be, and it’s important to acknowledge that those people exist and aren’t broken. Objecting to desexualization does not mean objecting to asexual people.

People who desexualize adults with disabilities in these ways aren’t recognizing asexual adulthood; they’re denying disabled adulthood and expressing it in sexual terms. (And this denial of adulthood expressed in sexual terms also hurts asexual adults).

I think that desexualization is when people refuse to acknowledge or respect some basic things:

  • That you’ve reached adulthood or you are a teenager
  • That you’re as likely as anyone else your age to experience romantic and sexual attraction
  • That if you are experiencing sexual and/or romantic attraction, it’s as significant and important as attraction anyone else experiences
  • If you want to, it’s completely appropriate for you to act on your sexual and romantic feelings (either with yourself or consenting other people)
  • You have the same right to physical, sexual, and emotional boundaries as anyone else

People who desexualize you might treat you inappropriately in group dynamics, eg:

  • By assuming that you will never have a crush on anyone in your friend group
  • By assuming that you don’t date for real and will always be available to go to couple’s events with someone who is caught without a partner at the last minute
  • By saying things like “I hate men/women/whoever. You’re so lucky you don’t have to deal with dating them.“
  • Or like “It’s so great to talk to you about this stuff. I’m so tired of how everyone else is making the group awkward with their dating drama.”
  • Or venting to you about how hard it is for them to find a partner without considering that you might share this frustration, and that it’s probably harder for you than it is for them
  • Or making jokes about how you’re their ~boyfriend~/~girlfriend~, ignoring the possibility that you might want to be someone’s boyfriend or girlfriend and that you might, in fact, be attracted to them.

People who desexualize you also sometimes don’t observe appropriate sexual boundaries, eg:

  • Assuming that rules of modesty don’t apply to you
  • Undressing in front of you (in a community in which it would normally be considered inappropriate for someone of their age and gender to undress in from of someone of your age and gender)
  • Touching you in ways that are considered inappropriately intimate in your social circles for people who are not romantically or sexually involved
  • Adopting suggestive poses or being inappropriately close (eg: by having their breasts or crotch way too close to your face)
  • (The rules of acceptable nudity, physical contact, and closeness are different in different cultures, and that’s fine. What’s not fine is having established rules of modesty/boundaries but ignoring them when interacting with disabled people)

It’s ok to be angry about this kind of thing, and it’s ok to insist that people knock it off and treat you with more respect. It’s ok to expect people to respect your maturity, your romantic and sexual capacity, and your physical and emotional boundaries.

For instance, it’s ok to say “I’m a grown man; you shouldn’t be changing in front of me,” or “I’m not your girlfriend; stop touching me like that,” or “I don’t want to go to that event with you unless it’s a real date,” or “I don’t like it when you make jokes about dating me,” or “I get crushes too you know.” This will probably make some people uncomfortable; and that’s ok. You don’t have to do all of the emotional labor of making social interactions comfortable; it’s ok to have boundaries even when other people don’t like them. It’s also ok to insist that people acknowledge and respect your age even if they’d rather see you as a child.

It’s ok to be angry about people treating you badly in areas related to sexuality, and it’s ok to insist that they knock it off. It’s ok to be upset when you’re single and don’t want to be, and it’s ok to be upset about the role that ableism is playing in making it hard to find someone.

It’s also important to be careful that this doesn’t turn into anger at people for having sexual boundaries of their own. It can easy for some people to become confused about this when start realizing that it’s ok to have sexual feelings, and not ok that others treat you as though your disability means your sexuality doesn’t count. If you’ve been treated as outside of legitimate sexuality for your whole life, you likely have missed opportunities to learn about consent and appropriate sexual and romantic interactions. That’s not your fault; it is your responsibility to address. Being the object of discrimination does not give you a free pass to violate other people’s boundaries, even if you’re not doing it on purpose.

It’s important to keep in mind that no one is obligated to date you, sleep with you, allow you to touch them, consider dating you, justify their lack of interest in dating you, or anything else like that. (And that it’s not ok to hit on people if you’re in a position of power over them).

You’re human, so it’s likely that you’re having some less-than-ideal feelings about this stuff some of the time. You might feel jealous, or upset, or even angry at people who haven’t really done anything wrong. (Because they’re dating visibly and you’re lonely, or because you asked them out and they said no, or other things like that which can hurt to see but aren’t their fault.) It’s ok if you’re feeling that way; you don’t have to have superhuman control of your feelings to treat people well. What’s important is that you don’t feed it, and that you don’t act on it.

In particular, it’s important not to cultivate offense when people you’re interested in dating aren’t interested in you. That leads nowhere good. (eg: I got an ask about how to stand up to a person who was using disability as an excuse to grope people a while back.)

Rejection sucks, and it sucks more when you’re already really lonely, and it sucks even more when you know that ableism is probably a major factor in why some people you’re attracted to aren’t interested. It can be really tempting when things are that hard to take offense. It’s important to stay aware that people who reject you aren’t wronging you, and to find constructive ways to deal with it that don’t involve contempt for the people you’re attracted to. (In particular, stay away from pick up artist communities. Adopting that worldview makes it much harder to learn about good consent and have respectful relationships).

It’s also important to keep in mind that it’s ok for you to be sexual and to express interest in dating people. (Even if you encounter people who are profoundly uncomfortable with the idea of disabled people having and acting on sexual and romantic feelings. Those people are wrong.) Your sexuality is not ever the problem. (It’s possible sometimes that things you’re doing might be a problem, but having a sexuality is never a problem in itself.)

In particular – if you ask someone out or hit on them and they say no, that doesn’t mean that you did something wrong. It just means that they aren’t interested. Asking people who turn out not to be interested is ok; asking is how you find out. You don’t have to be a mindreader in order for it to be ok to ask someone out.

All of this can be really, really hard to navigate. I hope some of this helped.

Short version: Disabled adults and teenagers are often treated like children. People often express this in sexualized terms by assuming that disabled adults are all incapable of legitimate sexual expression. It’s awful to be on the receiving end of that. It’s also hard to talk about or object to effectively. Scroll up for more thoughts on how to navigate this.

Being seen as “manipulative”

A reader asked:

Hey! I was wondering what you think about adults thinking of neuroatypical kids as “manipulative,” “charming,” etc. surely not everyone who says that is wrong, but it can’t be a coincidence that it’s usually said about neuroatypical kids?

realsocialskills said:

I think that people jump to that conclusion really quickly with disabled kids. “Manipulative” can kind of become a catch-all category for ways to delegitimize a kid’s interests, opinions, and self-advocacy.

Manipulative often translates as meaning things like:

  • “She resists doing what I tell her to do, and tries to distract me so I’ll let her do something else”
  • (without reference to what it is they’re telling her to do, why she doesn’t want to do it, and what she does want to do)
  • (Sometimes this means that she is 12 years old, and she’s resisting doing a preschool curriculum worksheet for the zillionth time)

Or this:

  • “He keeps trying to say things I don’t want to hear, and to convince me that what he’s saying is important even though I keep telling him it isn’t.”
  • (Without reference to what he’s saying, why it matters to him, or why it’s so unreasonable for them to listen to him about it)
  • (Sometimes this means that he’s in pain, and trying hard to tell them and get it to stop, but they don’t believe him or don’t care if he’s hurting.)

Or this:

  • “Other people sometimes believe her about things when I tell them she’s lying”, or
  • “Other people ask for her side of the story even after I’ve told them mine.”
  • (And expecting you to believe the adult automatically that it’s unreasonable to ever believe anything the kid says)
  • (Sometimes this means that they’re hitting her when no one who cares is looking, and they’re afraid that she might eventually convince someone with power that they’re doing something wrong.)

Charming can also mean “other people like this person more than I do, and more than I think they deserve”.

That said, being manipulative in a bad way is a real thing, and people with disabilities are just as capable of being manipulative as anyone else is.

Being manipulative in the bad sense involves doing things like:

  • Having highly developed skill at getting other people to like them and want their approval
  • Using that skill to ride roughshod over people’s boundaries
  • And/or get them to do things that they don’t want to do or shouldn’t do
  • Convincing people they want to manipulate that they are friends, and not actually reciprocating friendship in a meaningful way

Sometimes people with disabilities are manipulative. More often, they are manipulated. (For instance, adults often have nondisabled kids volunteer to pretend to be the friends of disabled kids. This usually results in the disabled kids being manipulated in really degrading ways and misled about what friendship is.)

Short version: Being manipulative is a real thing, but disabled kids are accused of it far more often than they are guilty of it. When a disabled kid is called manipulative, it often means that someone is objecting to their entirely justified attempts to get control over their life. (Which would be seen as normal and acceptable in a nondisabled person their age.)

It’s ok to watch the same clip over and over

I’ve seen a lot of parents express concern about their kid watching the same clips over and over on YouTube, or watching shows they’ve seen before over and over, or similar.

I think that a lot of people are under the impression that watching the same videos repeatedly is an inherently meaningless activity. It’s not.

Here are some purposes repeated video watching can serve:

Getting oriented:

  • Sometimes the world is very confusing
  • Going back to something familiar can make the world less confusing
  • It can also remind you of feelings that it is possible to have and ways that it is possible to express them
  • For some people, all of this is really important

Focusing or averting overload:

  • Noise can be really overloading or distracting for some people
  • So can silence
  • So can new things
  • Having a familiar video on can be a really effective way for some people to avert overload and/or stay focused
  • This is meaningful and important. It’s important to be able to be comfortable and think clearly.

Noticing new things

  • The video is the same every time, but the person watching it isn’t
  • When you watch it over and over, you see new things
  • It can be conceptual things like coming to interpret the story in a new way
  • Or sensory things like noticing sounds and colors that you never noticed before
  • This kind of repetition and examination is meaningful, and can be a great joy

Receptive and expressive language:

  • People who communicate by repeating words and phrases can get more words and phrases, and more meaning out of the phrases they have, by watching the same video over and over
  • Watching the same video over and over can also be really good for receptive language
  • It can be practice listening to things
  • The meaning stays the same, and watching it over and over can be a way, over time, come to understand the words in it better
  • This is also true of body language – in a video, you can watch the body language over and over and come to understand it
  • There’s also far less pressure to already understand. In interactions with people, you upset them if you don’t get it. Videos don’t need you to understand them – you can try as many times as you need to and take as much time as you need without anything bad happening.

Short version: It’s not cause for concern if a kid watches the same videos over and over. Adults do it too, and it serves a purpose. Watching the same things over and over can be valuable and important.

When you’re talking a lot and worried about how much space you are taking up

A reader asked:

Do you have any advice for how to facilitate participation when you’re a student who does tend to talk a lot?

I have social anxiety but when it doesn’t affect me as badly I tend to talk a lot. I’ve tried waiting for others to speak but they often don’t even if I wait 30+ seconds… And then I feel an intense urge to fill the space.

realsocialskills said:

A couple of things:

It might be ok if you’re talking more than some other students. Very few classes have everyone talking an exactly equal amount.

Different students have different preferences about how much they like to talk in class. It’s ok that some students prefer to talk more and some students prefer to talk less. It’s not always a problem. It becomes a problem if some students are taking up space in a way that prevents others from participating.

I’m not sure how to tell whether you are taking up space in a problematic way. One way might be to ask your teacher after class or in office hours if they think it’s becoming a problem. (If they do think it’s a problem, they’ll probably be glad you asked and that you care.)

Another way might be to watch whether you’re interrupting people. And if you are interrupting people, whether or not they’re shut down by your interruptions. If you’re interrupting people and that’s resulting in them not getting to make their points, that’s a problem. (Interrupting isn’t always a problem – in some cultures it’s normal and expected for people to respectfully interrupt one another and be respectfully interrupted in turn. If the class you’re in doesn’t have that culture, it’s important to be careful about interrupting.)

Here’s one strategy that might work for coping with silences without interjecting to fill them (this can also work for overcoming urges to interrupt people).

Typing or writing out what you’re having an urge to say:

  • If you type or write the reply you have an urge to make, it can calm the urge without you having to say anything
  • While you’re doing this, someone else may start talking
  • Then, if you still want to say the thing, you can take a turn and say it
  • If you don’t want to say a specific thing but are just feeling uncomfortable, typing/writing about how uncomfortable you are might work to fill the space until someone else starts talking (This works for me sometimes; it seriously backfires for other people. Your milage may vary; trust your own judgment about whether it will be helpful or harmful to you).
  • This can work even in a seminar class when not everyone is taking notes
  • (It may be more socially accepted in that context to use an iPad than a laptop, because you’re significantly less likely to be perceived as goofing off on Facebook with an iPad)

Short version: Talking more than some other students in a class isn’t always a problem in itself. It’s a problem if the way or the amount you talk prevents others from participating. Typing out stuff you’re thinking of saying before you say it can make it easier to refrain from interrupting people and from rushing to fill silences.

Autism is a disability

A reader asked:

You know, I follow this blog because I think it’s cool and although I don’t really read your advice posts, I can see they’re very respectful and well thought out. That aside, I want to ask: how do you feel about labeling autism as a disability?

realsocialskills said:

I feel very strongly that it is important to refer to autism as a disability. It’s not just a difference; it’s a particular kind of difference, and that kind of difference is called disability.

There are all kinds of things that most people take for granted that autistic people can’t do, or struggle with, or can only do intermittently. Autistic people face ableist discrimination in response to not being able to do those things, or being perceived as not being able to do those things.

We have all of that in common with people with any other kind of disability. Acknowledging that allows us to learn from and collaborate with one another. Denying that we’re disabled just isolates us.

I think that every single thing I’ve written about autism has been reblogged by someone with another kind of disability saying “I can relate to this too”. As a result, my writing has become increasingly cross-disability. We have a lot in common.

If we try to separate ourselves from other disabled people, we lose a lot. Overlapping disability communities have a lot in common, and a lot of built up tools for dealing with disability, dealing with discrimination, and supporting one another. If we admit that we’re disabled, we can be part of that. If we don’t, everything gets a lot harder.

Short version: I think that autism is a disability and that admitting that makes life a lot better for autistic people.

Stress makes everything harder

Autistic people are autistic all the time. Sometimes some difficulties fade into the background, then come back out again when someone is particularly stressed out. This is true across the board for sensory issues, communication issues, movement, and all kinds of other things. (This is also true for people with any other kind of disability).

The intermittent nature of some apparent difficulties can sometimes lead to them being misinterpreted as psychosomatic. They’re not. Everyone, autistic or not, has more trouble doing things that are hard for them when they’re experiencing significant stress. Some things are particularly hard for autistic people, and those things also get harder with stress.

This is how it actually works:

  • Doing the thing always takes a lot of effort
  • Putting in all that effort has become second nature
  • When you’re not exceptionally stressed, you might not notice the effort it takes consciously
  • When you *are* really stressed, you don’t have energy to do the thing in the ways you normally can
  • So you end up having more trouble than usual, and probably looking a lot more conspicuously disabled than usual

For instance, with motor issues:

  • For those of us with motor difficulties, moving smoothly and accurately takes more effort than it does for most people
  • This can become second nature, to the point that we don’t consciously notice how difficult it is
  • But it’s still there
  • And when you’re really stressed or overwhelmed, you may not have the energy to make yourself move accurately
  • So things you can normally do (eg: handwriting, not walking into walls, picking up objects, pouring water) might become awkward or impossible
  • That doesn’t mean you’re faking or somehow doing it on purpose
  • It just means that things are harder when you’re stressed

Or with sensory issues:

  • Living with sensory sensitivities means that a lot of things hurt
  • For the sake of doing things anyway, a lot of us build up a high pain tolerance
  • To the point that we may no longer consciously process things as pain even though they hurt
  • Ignoring pain takes a lot of energy
  • When we’re really stressed, we may not have the energy to ignore pain
  • And things we normally tolerate can be experienced as overloading or intolerably painful
  • That doesn’t mean we’re faking the pain to avoid something stressful, or that we’re somehow bringing it on ourselves.
  • It just means that everything is harder under stress, including tolerating pain

Or with communication:

  • Communication can be hard for a lot of us in varying ways
  • For some of us, being able to speak requires juggling a lot of things that are automatic for most people
  • Or being able to use words at all, including typing
  • For some of us, that’s true of understanding people when they talk to us
  • Or of knowing what words are at all
  • If someone can’t talk, understand or use words under stress, it doesn’t mean that they’re somehow faking it to avoid a difficult situation
  • It means that communication is hard, and stress makes everything harder

Short version: Stress makes everything harder. For people with disabilities, that includes disability-related things, including things that we don’t normally seem to have trouble with. Sometimes we’re wrongly assumed to be doing on purpose or faking to avoid a difficult situation; it should actually be seen as an involuntary, normal, and expected physiological response to stress.

“Attention seeking behaviors”

Autistic people and other people with cognitive disabilities are often interpreted as doing things for attention, whether or not that explanation is plausible.

For example:

  • Alice is autistic. She flaps her hands.
  • Hand flapping is part of Alice’s body language. She moves her hands to express a large range of thoughts and feelings, just like some people move their facial muscles to express a broad range of thoughts and feelings
  • Alice also sometimes flaps her hands to calm down when she is overloaded
  • Bernice is a behaviorist. She is distressed about the fact that Alice flaps her hands.
  • Whenever Alice flaps her hands, Bernice stares at her, and pays intense attention to the fact that she is flapping her hands
  • Bernice notices that every time Alice flaps her hands, Bernice pays attention to her
  • Bernice concludes that her attention is reinforcing Alice’s flapping behavior
  • Bernice concludes that Alice’s hand flapping is an attention-seeking behavior
  • Bernice puts Alice on a behavior plan based on ignoring her whenever she flaps her hands

Behaviorists and others make this mistake a lot. They very, very frequently assume that the fact that they are paying attention to something means that it is being done to get their attention. It doesn’t. It just means they’re paying attention.

Starting at someone whenever they do something doesn’t mean that they’re doing it because they like being stared at. It just means that you’re staring at them.

Short version: Stop calling everything attention seeking behavior. The fact that you’re paying attention to something doesn’t mean that someone is doing it because they want your attention. Not everything a person who has a developmental disability does is about you.