Sometimes treating people with disabilities well means accepting that they are uncomfortable

A reader asked:

I run a club for transgender students at my university. One of the newer members disclosed to us that she has asperger’s. Her sensory threshold seems to be extremely low and she seems to get overwhelmed in meetings often. After a meeting, I tried to pull her aside to ask her if there’s any way I could accommodate her better, but she got flustered. I don’t think she knew quite how to phrase what she needed to say in the moment, but I want to make the club more accessible for her. I’ve already spoken with the faculty adviser so we could move to a bigger room with more space. I also want to make sure this member of our club is getting her needs met, but I don’t want to force her out of her shell or put her on the spot while I try to meet her halfway. I’m having a hard time. Do you have any advice for me?

realsocialskills said:

I think the most important thing is not to put pressure on her to talk to you about her disability or access needs.

Sometimes people with disabilities choose to do things that are hard for us. Sometimes being overloaded is the price we pay for participation. It can actually be harder when people get upset about this and see overload as a problem they need to solve. Sometimes that’s just the way things are. Sometimes there’s no immediate solution, and sometimes it’s not the problem we want to work on.

Disability is personal. Coping mechanisms and disability-related choices are deeply personal. Some people with disabilities are fairly open about their specific issues and choices; for others, that’s a topic reserved for close friends. It’s ok if she doesn’t want to have that conversation with you even though she’s often physically uncomfortable or overloaded in the group. It doesn’t necessarily mean that you’re doing something wrong or that she’s doing something wrong. Sometimes it just means that some things are hard but worth doing anyway.

I’d say back off trying to get her to disclose more things about her needs, and follow her lead.

The one unilateral access thing I’d advise is that I think it’s important to make sure that she (and other group members) have the option of contacting you by email. If she’s getting too overwhelmed in the moment to tell you things she wants you to know, being able to email you might be really helpful. Don’t make a big deal about it, though, and don’t pressure her to email you about things. Just make email available as an option.

Good luck to both of you.

Short version: When you’re running a group and people with disabilities seem to be overwhelmed, don’t pressure them to talk about their disability or their access needs. Offer, but don’t pressure. Do make your email address available to group members. This makes it easier for them to tell you things that are hard to say in the moment.

Life is not made of compelling philosophy

You don’t always have to have a coherent philosophical explanation for everything you do and care about.

Life is not made of philosophy. Philosophy can be a good thing, but it’s not a prerequisite.

You don’t have to have a coherent explanation of how God works for it to be ok to practice a religion or identify with a community. You don’t have to have a compelling explanation of where the universe came from in order to be an atheist or decide not to practice a religion.

You don’t have to have a deep and compelling theory about the nature of gender to know what your gender is. You don’t have to have a deep and compelling theory on where sexual orientation comes from and what it means in order to know which words you use to describe yourself, and who you are or aren’t interested in dating.

You don’t have to have a rigorous philosophical understanding of the mind and neurology to understand that you are disabled and that your cognitive experiences are different from most other people’s.

Or anything else. Your life is yours, and you get to have your own ideas about who you are and what you want.

You don’t have to have a compelling philosophy that convinces other people in order for it to be ok to know who you are and how you see the world. You don’t even have to have a coherent philosophy that convinces *you*.

Many philosophical questions that might be relevant to your life are unanswered, and unlikely to be answered in your lifetime. It’s ok if you want to work on solving them, but it’s also ok if you don’t. It is not a prerequisite, even if other people who use big abstract ideas want you to change.

Life is bigger than theories, and having a compelling theory is not a prerequisite for living, choosing, or caring about things. 

Perspective in the face of other people’s anger

This is a thing that happens with some people:

  • People get angry
  • They tell you off in mean ways that make you feel horrible
  • Or their anger scares you, even if they’re not actually being mean
  • You feel like the way you’re feeling is evidence that you’ve *done* something horrible
  • Or you’re afraid, and feel like you have to grovel for forgiveness in order to be safe

It’s really, really hard to tell whether you’ve actually done something wrong when someone is being mean to you. (Or when you’re terrified by anger or conflict.)

If you’re afraid or hurting, or especially both, it’s hard to have perspective. Especially if you feel like acknowledging that you’ve done a horrible thing might make that person stop hurting you. *Especially* if you’re really good at reading what someone wants to hear.

This is doubly true for people who have been abused. If you’ve been hurt by someone who demanded that you stop thinking in the face of every conflict, it’s hard to think when other people are angry with you.

There are countermeasures. It’s possible to learn to deal with anger and conflict without falling apart.

Countermeasure #1: recognizing feelings that indicate that your perspective is off, and creating distance

  • If you’re panicking and feeling inclined to make an abject apology, it’s probably time to step back
  • Even if it turns out that you were in the wrong, a panic apology is unlikely to make the situation better
  • Because when you’re panicking, you’re not really capable of apologizing sincerely anyway
  • It’s ok to need time to think
  • It’s ok to realize that you’re panicking and need to back away from the situation to be able to think
  • Someone who won’t let you do this is probably not someone you should trust

Countermeasure #2: considering reversal:

  • Think about what you did, and how the person who is angry at you is reacting
  • What do you think you’d do if the situation was reversed?
  • In light of that, do you think their reaction is reasonable?
  • And do you think you actually did something terribly wrong?
  • (The answer to this might be yes even if you think you would have reacted differently. But thinking about reversal can still make the situation easier to understand)

Countermeasure #3: Think in concrete terms:

  • What, specifically, does the person who is mad at you think you did?
  • Do you think you actually did that thing?
  • If not, do they have a reasonable basis for thinking that you did that thing?
  • Are they understanding correctly? Are they listening to your explanation of what you think you did? (eg: if they think you said a slur and you actually said a different word that they misheard, are they screaming at you and saying you are just making excuses?)
  • If you did do the thing, why are they angry about the thing?
  • Do you think it’s reasonable that they are offended?
  • Do you think it’s reasonable that they are *as* offended as they are?
  • (Think about this seriously, especially if they think you are being racist, sexist, transphobic, ableist, etc towards them. Your initial reaction to this kind of thing is likely to be off base. But it is also possible to be wrong about these things, and ultimately, you have to think for yourself about whether you think you’re guilty of what you’re accused of.)

Countermeasure #4: Considering the perspective of someone you respect:

  • Think of someone who you know well and respect as someone who treats people well
  • If you’d done the thing to them, how do you think they’d react?
  • Does that match how the person who is angry at you now is reacting?
  • If you’d hurt the person you respect in a similar way by accident and they were upset with you, how do you think you’d be reacting?
  • Does it match how you’re reacting here? (Eg: are you more afraid? more inclined to panic-apologize? more defensive?)
  • In light of all of that, what do you think about what’s happening now?
  • Do you think that you did the thing you’re being accused of?
  • Do you think it was wrong?
  • Do you think that the way they are reacting to you is unjustified or otherwise objectionable?
  • Do you think you should apologize?
  • Do you think they should apologize?
  • (These are all real questions. Considering the hypothetical perspective of someone you know doesn’t give you automatic answers, but it can be helping as a way of getting unstuck when you’re afraid and inclined to panic about something you’ve been accused of. You might find that, even after you’ve stopped panicking, you still think that you have done something wrong and that you should apologize for it.)

Countermeasure #5: Outside perspective:

  • It can help to discuss the situation with people who know you well (especially if they’re not parties to the conflict)
  • Particularly if they are people who you can trust to tell you when they think you actually *have* done something wrong
  • Some friends are mutual check in people for one another.
  • Some people get outside perspective from therapists.
  • When you’re panicking, it can be hard to tell from the outside that you’re panicking. Panic in response to conflict can feel like you’re just accurately recognizing that you are terrible or something.
  • It’s much easier to tell from the outside when that is happening
  • So, if you have people you trust to help you check your perspective, it is tremendously helpful in staying oriented and figuring out what’s actually going on

Short version: Some people find other people’s anger terrifying. If you experience that, it can be really hard not to automatically try to fix things by conceding that you are terrible and did a terrible thing. There are countermeasures that can help. It helps to work on noticing how you are feeling so that you can get distance when you need it. It helps to think about what you’d do if the roles were reversed. It helps to think as concretely as possible about the specifics of the situation. It helps to think about what you think someone you know well and respect would do (and what you would be doing if the conflict was with that person). It helps to get outside perspective from people you trust about what’s going on. 

Using your experiences to support someone else

A reader asked:

People often say that when you’re comforting someone else, you shouldn’t mention your own similar experiences. I understand that making the conversation entirely about you is rude and imappropriate, but isn’t it ok to at least briefly say, “yeah I can relate” and then continue with “that sucks a lot” etc?

realsocialskills said:

Bringing in your own experiences can actually sometimes be a good thing. There’s a specific way of doing it that’s bad, but you are entirely correct that showing ways you can relate can sometimes be good.

I wrote a post a while back about listening to someone who is facing a bad situation that talks about good and bad ways to relate your own experiences.

And I want to add to that: You’re probably seeing a lot of people vent on the internet about thoughtless or otherwise bad things people said to them. That could make comforting someone who is struggling seem very intimidating; it could make it seem like you have to be sure you’re going to say the right thing before it’s ok to talk to them.

And it doesn’t work that way. You don’t have to be perfect to comfort someone. Sometimes, you’ll say the wrong thing. That’s ok. Everybody does, sometimes. It’s good to work on knowing what to say and how to say it, but be careful about worrying too much about that. You can really only get good at this through practice, and you can’t get practice by waiting until you’re absolutely sure you know the right thing to say before you offer anyone support.

Suffering can be very isolating, because people are often afraid of seeing people suffer in ways they can’t fix. Sometimes things aren’t ok, and aren’t likely to be ok any time soon, if ever. And if someone’s in that situation, chances are they’re surrounded by people who are trying to get them to feel better.

If you’re not trying to make them feel a different way, you’re willing to acknowledge that things are hard, you’re listening to them, and you’re treating them with respect, you’re probably doing fairly well. Even if you sometimes say the wrong thing.

Don’t treat a jerk problem as a conflict skills problem

Conflict resolution training only helps when the problem is that people’s communication skills are weak in ways that cause them to escalate conflicts unnecessarily. In that situation, learning better communication (and especially listening) skills can make a big difference. But, not every problem is like that.

When someone is intentionally cruel, it’s not a problem with their social skills. It’s a problem with their values.

Teaching a cruel person communication skills will not cause them to become kinder or teach them to respect others.

Similarly, teaching victims of intentionally cruel people conflict resolution skills will not solve the conflict. It just teaches both parties to blame the victim. Cruelty happens because of choices cruel people make, not because their victims lack conflict resolution skills.

Putting abusers and victims together in a conflict resolution training *especially* will not help. All that does is send the message that no one is really in the wrong, and that there is just a communication problem that needs to be worked out. 

Sometimes, conflicts are not mutual. Sometimes, one side is in the wrong in all of the ways that are important. Sometimes, people are choosing to be mean. Treating a cruelty problem as a social skills problem makes everything worse.

Stimming is not just a coping mechanism

I see this defense of stimming a lot:

  • It’s wrong to train autistic people not to stim
  • They use it to compensate for overload
  • Or to focus
  • Or to compensate for other problems
  • Or to express distress

All of this is true. But it also misses the point. Stimming isn’t just a coping mechanism. It’s much more than that. Stimming is a positive part of autistic experience, not an unfortunate-but-functionally-important thing we have to do.

Imagine if facial expressions and tones of voice were considered wrong, and someone defended them this way:

  • It is wrong to teach children to adopt a flat affect
  • Children need to be able to frown
  • Children need to be able to indicate through the tone of their voice that something is wrong
  • Children need to be able to cry. That’s a way of coping with pain and overload

All of those things are true. But if that’s all defenders of tone and facial expression said, it would be horribly misleading. Body language and tones are more than that, and they are good.

Stimming is like that too.

  • Stimming is not just necessary. It is also natural, and good
  • Flapping in response to a nice texture is not fundamentally different from smiling in response to the smell of a flower
  • Rocking in response to someone saying something offensive is not fundamentally different from frowning in response to a slur
  • It is ok for autistic people to have autistic body language

Speaking up is hard

In just about every group conflict I’ve witnessed or participated in, I’ve seen some version of this happen:

  • Some people will speak up about something
  • There will be a conversation that gets heated
  • Someone else will be very uncomfortable with the fact that conflict is happening (despite somewhat sympathizing with the people who are speaking up)
  • And they will say something like, “Wow, I don’t like this tone. Can we all try to respect each other a bit more?”

And I think part of this is that people who aren’t speaking up really often have no idea how hard it is. It looks much easier than it is.

It’s hard, and it’s scary, to say something that you know will result in conflict. It’s hard to phrase things well, it’s hard and sometimes impossible to stand your ground in a way that makes everyone feel respected. Especially if you don’t have a lot of practice.

It’s possible that people who are speaking up really are being inappropriately or counterproductively disrespectful. That is a real thing that actually happens. But it’s also possible that people are doing the best they can, because speaking up is really hard and there’s often no way to do it which won’t be at least somewhat painful or awkward.

If you’re not in the habit of speaking up about anything other than the tone used by others when they speak up, it’s entirely possible that tone isn’t the real problem. It’s possible that the problem is that you haven’t learned through experience how hard it is to speak up, and how complicated of a skill it is to learn.

That is not always the problem, but it’s usually a possibility worth considering in that kind of situation.

Telling your story without being a self-narrating zoo exhibit

When you are an unusual person, especially if you are disabled, people will often tell you that they “want to hear your story”.
Often, it’s not really your story that they want to hear. Often they have a story in mind that they want, and they want it to come out of your mouth in order to validate their theories about people like you.
Often, what they really want is for you to be a self-narrating zoo exhibit, and satisfy their curiosity without inserting your opinions or having boundaries.
Maybe they want to hear from institution residents who don’t want to leave, so they can decide that institutions really are the best place for people with disabilities. Maybe they want to hear a story that allows them to feel pity for you and bask in their lack of disability. Or any number of other things.
These are ways people use their versions of our stories to take away our power; we can use our real stories to get our power back.
Telling your story doesn’t have to mean telling creepy people what they want to hear. It can mean telling the truth, even when others want to lie.
Telling your story can mean bearing witness. It can mean saying “No, it doesn’t work that way. I was there. I saw.” It can mean saying “I’ve seen people do these things that you say we can never do.” Or “I’ve been there. It was wrong. And it’s also wrong when people do it to you.”
It can mean saying: “I remember watching someone die because others decided to withhold medical treatment, food, and water. I wish I’d been able to save him.”
Or: “Don’t think that my life is pitiable or inspiring. I do meaningful things. We all do. And do you know how amazing it is when the light hits a rock just the right way?”
We don’t have to tell the stories they want us to tell. We can tell the truth. And there is power in the truth, and there is power in the truth backed up by stories about things you have witnessed or been part of personally.
It takes practice to learn to tell the truth in the face of pressure to be an inspiring self-narrating zoo exhibit. It can be terrifying. It can also be very, very hard to resist prompts to say the things other people clearly want you to say.
It takes practice, and in practicing you will probably not entirely succeed right away. Even with practice, you might still inadvertently tell the story others want you to tell rather than the story you believe some of the time. That’s ok. None of us are perfect, and it gets easier over time.
Short version: Sometimes when people say “tell us your story”, what they really mean is “tell us what we want to hear.” But telling your real story can be a powerful way to tell the truth.

“Don’t let people get to you”

I don’t know about you, but I’ve experienced this a lot:

  • I’ll talk about someone being mean or bigoted towards me.
  • And someone will say something like “Don’t let them get to you”, or
  • “Don’t ever let people get under your skin like that, they’re not worth it”

And in my experience, that always makes me feel worse. This is what I eventually figured out about it:

Things hurt.

It’s not your fault that it hurts when people are awful to you.

It’s not your fault you care what people think of you sometimes. (Everyone does.)

Having connections to others matters. And when people we’re connected to are mean, it hurts.

Self esteem talk can end up being yet another stick to beat you with, and that’s not right either.

Being hurt by mean people doesn’t mean you’re failing. It’s not possible to be completely invulnerable at all times. When someone’s shooting arrows at you, it’s not your fault for failing to make armor fast enough to stop them.

You’re ok. They’re mean.

“You’re not willing to accept criticism!”

Accepting criticism is important. Everyone’s wrong about something, and it’s important to be open to the possibility that you’re wrong about things. If you’re never persuaded by something someone says that you need to change your actions in some way, something is going seriously wrong.

But sometimes, when people say that you’re not open to criticism, what they really mean is that they’re angry because you don’t agree with them. Or that you’re refusing to change in a way that you want them to change. And sometimes, you will be entirely correct to disagree with them and to refuse to change.

For example:

  • “You’re a terrible writer and should not ever write anything ever again” is not criticism you should listen to
  • “If you’d just try a gluten free organic diet, you’d be cured” is not worthwhile criticism
  • “No one is ableist, you’re just imagining it because you want to feel special” is not worthwhile criticism

And there’s any number of other examples, many of which are far more complex and subjective. Everyone gets criticized in ways that it’s completely ok to reject.

And sometimes, it’s ok not to want criticism, even if there’s nothing inherently wrong with the criticism, eg:

  • It’s ok to make art without wanting to go through an art school style critique
  • It’s ok to write a story, post it somewhere, and decide not to read the comments about it
  • It’s ok not to want to discuss the problematic aspects of a show you like
  • It’s ok to not want your father’s input on who you should date

It’s possible to be insufficiently open to criticism, but that doesn’t mean everyone who accuses you of that is right. No one is, or should be, open to all forms of criticism from all people.

Sometimes people who criticize you are wrong. Sometimes they’re so wrong that they’re not worth listening to. Particularly when they’re saying the same thing over and over that you’ve long since considered and rejected.

It’s important to be open to criticism some of the time from some people. It’s also important to be selective about who and what you listen to, and when. You do not owe everyone who thinks that you are wrong your unconditional attention.