Rude question from someone who doesn’t understand disability

bryedeadned said (about this post):

how the fuck do you forget that food exists?

Most people without disabilities never have this problem. But for people with certain disabilities, it’s very very common.

It’s particularly common for autistic people, especially autistic people who have trouble processing visual information. It’s also common for people with ADHD and other disabilities that impair executive functioning or body awareness.

This blog is for everyone, not just normal people.

So, if you follow it, from time to time you’re going to see things that don’t apply to you. And you’re going to see them presented in a matter-of-fact way, as problems that some people have and want help with.

Because that’s the kind of blog this is.

Making text more readable

Having aspergers and and ADD has made communicating with people very difficult, especially in relationships. I’ve found that writing helps but reading is hard because I get lost in blocks of words and unable to focus. Are there things that can be done to help with communication and reading replies etc?
Sometimes it helps to paste the text into a document and then use either white space or color coding to help you keep track.
Here’s how I do color coding:
  • I paste the text I want to read into Word
  • I turn all the text blue
  • As I read the text, I turn it black again
  • That enables me to keep track of which parts I have and haven’t read

Formatting the text can also help. This is how I do it with emails:

  • I hit the reply button so that I can edit the text
  • Then I put in paragraph breaks where I think there are conceptual breaks
  • This means I can move around on the page more easily when I want to re-read a particular part

It’s ok to say no without giving an explanation

RE:- boundaries without anger. Obviously there are exemptions to the following statement where “no” would be enough; but I think the reason a lot of people have problems with personal boundaries in this way is that when someone says no, they are reluctant to provide the reason. If denying/refusing a gift, offer or invitation, answering why is only polite, yet people get frustrated when people ask.

Here are several reasons that folks get annoyed when you ask why:

  • They might not know a clear reason, but know that they don’t want to do the thing. That’s ok. You don’t have to know your reason in order to decide to say no.
  • The reason for saying no might be rude to say. For instance, if you ask someone out and they find you physically unattractive, it would be considered very rude to say so. But it’s an entirely legitimate, and common, reason not to want to date someone.
  • If they’re rejecting a job offer, it might be because they’ve received another offer from someone they think it would be much more pleasant to work with. It can be very difficult to say this politely, and it’s not a good idea to offend people in your network by implying that you think it wouldn’t be nice to work with them.
  • The particular gift might be something they’re upset by the idea of possessing (eg: if you give them an itchy sweater), but it’s never considered polite to say that.
  • The reason might also be complicated to say. For instance, if they like a particular activity, but they find it overloading, so they only do the activity with people they know really well and who know how to react appropriately if the overload gets too bad. Most people don’t even understand that explanation on any level. More people say “of course I can handle that!” and then get offended if they don’t immediately accept that as true and agree to do the activity.
  • They might think that accepting your gift/offer/invitation will create a kind of relationship they don’t want, and not feel comfortable explaining that. Especially if they’re not quite sure why they feel that way.
  • The reason might be private. For instance, if you’re a man and you ask out a closeted lesbian, she has every right not to want to come out to you.
  • Or, if someone finds a particular kind of movie triggering because of past abuse, they might not want to tell people about this. They might rather just quietly say no.
  • They might think that if they give a reason, you’ll just argue about the reason. Given that you didn’t just take no for an answer to begin with, this is a legitimate concern

At bottom, people don’t owe you an explanation. When you ask for one, you’re implying that people need your permission to have boundaries. Further, you’re implying that you will only give this permission if you think they have a good reason.

Even if you don’t mean it that way, that’s how it comes off. It puts pressure on people that no one likes to experience. If they wanted to give you a reason, they would have done so when they said no to begin with.

Complicated power relationships in a work context

Someone contracting with you to do something is like a boss, but it’s a different relationship; such a person is a client and a client is more like a customer. It’s your job to do what the customer wants but the customer isn’t in charge of the business. Or maybe I’m off base. Of course, if the disabled woman didn’t hire and can’t fire this person, the person’s working for the parents, then, aren’t they?
I think the power relationships between assistants/PAs/whatever and folks with disabilities are a lot more complicated than that.
Even with a direct hire, it’s more complicated than other types of employment. For instance, hiring someone to write a webpage for you is really different than hiring someone to do things you need in order to survive.
Especially, given that when people murder folks who are disabled enough to need extensive care, they often get away with it.
And there are all kinds of complications I don’t understand well.
I don’t know more to say about this, though. Do any of y’all?

Asserting adulthood

A reader asked:

(TW: possible ableism(?)) This may be a bit of a strange question, but I am an older non-neurotypical person who has a hard time being taken seriously or seen as the adult that I am, and it makes me very insecure and upset when I am talked to, by my coworkers, in a patronizing manner or as if I am a child when I have shown myself to be their equal when it comes to the work we do. Would you happen to have any tips, if it’s not too much of a bother?

This might be something readers have more insight about than I do.

It’s also a bit abstract for me, because there are a number of ways that people fail to treat others like adults. I’m not sure which form it is.

From the way you’ve asked your question, it kind of sounds to me like maybe you feel like you have to prove that you deserve to be treated like an adult. I think it helps to realize that this is not actually something you have to prove. People who treat you like a child are doing something wrong.

And it would be wrong even if you weren’t good at your job. Your adulthood should not be on trial here.

Keeping this in mind makes it harder for people to mess with you.

As far as changing what they actually do, here are some thoughts:

  • You probably can’t convince them that they’re doing something wrong, and explaining it to them is unlikely to help
  • Because they’re likely to make it into a conversation about your feelings, and explain to you in patronizing tones why you’re imagining it and being too sensitive.
  • There might be things you can do unilaterally that help. For instance, it’s ok to interrupt them when they’re speaking to you in a patronizing tone
  • For instance, if you ask them where a file is, and they launch into a patronizing explanation of the filing system, it’s ok to say, “Yes, I know that. But I’m not sure which category this particular file goes into because [reason], do you know?”

Also, changing the way you dress might help:

  • If you’re dressing less formally than most people in your field, wearing more formal clothing might be helpful
  • If you are a man, Men’s Warehouse can explain the default rules of professional attire and help you find something to wear that’s considered appropriate to your body type.
  • I’m not sure how to do this if you’re a woman, though. The rules of female attire are really complicated
  • If you’re in a field in which formal attire isn’t expected, changing some things about your clothing still might help
  • For instance, if everyone wears t-shirts, it might help to avoid t-shirts that have pictures of things associated with childhood (eg: Care Bears, pictures of cartoon characters (including things like Adventure Time or My Little Pony that are also popular among some adults).
  • This is not guaranteed to work, and might make matters worse if it means you feel like you’re stuck trying to prove your adulthood
  • In any case, it’s not a moral obligation and not a precondition for being an adult. It’s something that may or may not be advisable in certain contexts, and it’s a personal choice

If you use stim toys, it might help to change the ones you use:

  • Toys that are also used by children are more likely to be perceived as childish
  • Eg: silly putty, beanie babies, legos, beads, marbles
  • Neoballs (little neodium magnet spheres you can build things with) are specifically not for children. The silver, gold, or nickel balls are more likely to be accepted than the brightly colored ones.
  • Tangle Toys can look professional in some contexts
  • This is not guaranteed to work, and might make matters worse if it means you feel like you’re stuck trying to prove your adulthood
  • In any case, it’s not a moral obligation and not a precondition for being an adult. It’s something that may or may not be advisable in certain contexts, and it’s a personal choice

It also might be time to look for another job with people who treat you better. Not all jobs are created equal. Not all working environments have the same culture. There might be other people who would respect you and your professional accomplishments more.

Do any of y’all have further suggestions? (Or think I’m wrong about any of this?)

Leave folks with service dogs alone

Related to your last post, no matter how much you like dogs, it is not okay to touch someone’s service dog without permission and if they say no, one needs to accept that. Also, not every person with a service dog wants to stop and chat about their dog with you.
This.

Describing yourself accurately isn’t appropriation

A reader asked:

I have ADHD and I need to rock and twitch my hands to concentrate. Is it appropriate to call it stimming?

I think that’s perfectly fine. That’s a really common reason autistic people stim, too. There’s a lot of overlap between ADHD traits and autistic traits.

I think that it’s actually good if we use the same words to describe things that are the same or similar. A lot of groups cross-disability have far more in common than we realize, and I think we could all benefit a lot from sharing concepts and coping mechanisms.

That said, calling it stimming might lead to some awkward situations. It’s a term mostly used by autistic folks. Sometimes when you (in my view accurately) refer to it as stimming, that might cause people to think you’re autistic. That’s something you should be prepared for if you want to start using words that are mostly used to describe autism.

Stimming for non-autistics?

A reader asked:

Can non autistics stim too or is that a term/thing reserved for autistics?

Yes, it’s common for other kinds of people too.

It’s not only autistic people who do it. And there’s absolutely nothing wrong with a nonautistic person moving in ways that are common for autistic people.

It’s just that stimming tends to be really important to autistic people (and folks with some other disabilities), in a way that it usually isn’t for people without disabilities.

And here’s a thing about that:

  • A lot of neurotypical people like to rock or play with toys or whatever
  • Most NT people can sit still in a socially acceptable way without harming themselves
  • In particular, most NT people don’t need to stim in order to understand what’s going on around them, communicate, or prevent themselves from getting really overloaded

It’s important to keep this in mind, and to understand that stimming is really, really important for some people.

If you’re not disabled, and these kinds of motions aren’t particularly important for you, it’s probably better to call them fidgeting.

Making mistakes about a relationships

I once thought I was dating this friend of mine while he thought we were really close friends who went to the movies and hung out all the time. He was fantastic and sent me a very nice email saying he heard rumors that we were dating and he just wanted us to be and remain friends. Incredibly embarrassing, and completely unintentional on both of our parts!
Yes, that’s a kind of thing that can happen. People misunderstand each other in all kinds of embarrassing ways, especially since our culture makes it hard to talk about these things explicitly.
Everyone honestly misreads things sometimes. Imaginary friending is different. Imaginary friending is when you are unwilling or unable to consider the possibility that someone doesn’t want the kind of friendship you want. (Even if they’ve said so explicitly).

What is stimming?

horussebooks asked:

What is stimming?
Stimming is doing repetitive things that give you sensory input. For instance:
  • Rocking
  • Waving your hands
  • Rolling a marble
  • Playing with a tangle toy
  • Repeating words over and over
  • Ripping paper

Stimming can be really important for autistic people for several reasons. Some are:

  • Stimming can make it easier to think and understand what’s going on
  • Stimming can prevent overload or help to pull someone out of overload
  • Stimming can be expressive body language.
  • It can happen kind of automatically. For people who automatically stim, refraining from doing so can be a drain on cognitive resources and make it impossible or difficult to do anything else