Rude question from someone who doesn’t understand disability

bryedeadned said (about this post):

how the fuck do you forget that food exists?

Most people without disabilities never have this problem. But for people with certain disabilities, it’s very very common.

It’s particularly common for autistic people, especially autistic people who have trouble processing visual information. It’s also common for people with ADHD and other disabilities that impair executive functioning or body awareness.

This blog is for everyone, not just normal people.

So, if you follow it, from time to time you’re going to see things that don’t apply to you. And you’re going to see them presented in a matter-of-fact way, as problems that some people have and want help with.

Because that’s the kind of blog this is.

More on good therapy

A good therapist will be honest about their qualifications, and respect your expertise.

For instance:

  • A good therapist will not claim to be an expert in gay issues just because they are a good person and don’t hate same sex couples
  • A good therapist will believe you about religious conflicts, and won’t attempt to dictate to you how to resolve them (eg: If you can’t eat certain things, or need to wear certain clothing around members of the opposite sex, or can’t do certain things on certain days).
  • A good therapist will be honest about which conditions they do and don’t have experience treating

Remembering that food exists

It can be hard to remember that food exists, or notice it while it’s there.

I know a few things that work for some people to mitigate this problem:

For some people, cooking for other people regularly makes it easier to notice that food exists:

  • Sometimes remembering to cook for other people works as a reminder that you need to cook and eat
  • Sometimes the motor/sensory/tactile experience can make it easier to remember that you have food
  • Because for some people, motor memory works better than visual memory

For some people, asking other people for direct help is useful:

  • If you feel like you need to eat, asking a friend to tell you to eat might help
  • Or asking them what you should eat
  • Or how to find the food
  • Some people who can’t figure out food for themselves, *can* tell other people how to find food
  • So if you and a friend both have this problem, you might still be able to help one another

Stashing food in places where you’ll see it can also help:

  • Keeping a box of cheerios or granola bars or something else that lasts a while by your computer might work as a reminder that food exists

These are strategies I know about. Do any of y’all know about others?

Making text more readable

Having aspergers and and ADD has made communicating with people very difficult, especially in relationships. I’ve found that writing helps but reading is hard because I get lost in blocks of words and unable to focus. Are there things that can be done to help with communication and reading replies etc?
Sometimes it helps to paste the text into a document and then use either white space or color coding to help you keep track.
Here’s how I do color coding:
  • I paste the text I want to read into Word
  • I turn all the text blue
  • As I read the text, I turn it black again
  • That enables me to keep track of which parts I have and haven’t read

Formatting the text can also help. This is how I do it with emails:

  • I hit the reply button so that I can edit the text
  • Then I put in paragraph breaks where I think there are conceptual breaks
  • This means I can move around on the page more easily when I want to re-read a particular part

When you have mixed feelings about an abusive relationship

Content warning: this post probably uses language that gets used against abuse victims. I’m trying to avoid that, but I don’t think I’ve entirely succeeded, and some of these words might be triggering. Proceed with caution.

So, here’s the thing.

People are complicated, and relationships are even more complicated. Abuse victims are often pressured to pretend that things are simple. They’re pressured to believe that if there was any positive aspect whatsoever to an abusive relationship, then it wasn’t really as abusive as they think it was.

But it doesn’t work that way. People aren’t averaged. People can do some really good things, and some abusive things. They don’t cancel each other out. They coexist. Whatever else happened, the abuse was real, and you’re right not to tolerate it.

Sometimes… sometimes your abuser is also the person who taught you your favorite recipe.

Or something fundamental about how you understand the world.

Or a major skill you now use professionally.

Or maybe they gave you a lot of valuable criticism that made your art better.

Or maybe they supported you materially when you were in real trouble.

Or any number of other things.

And…

…none of that makes the abuse ok. None of that is mitigating in any way. It doesn’t cancel anything out. Sometimes people talk like the abusive interactions and the good ones get put in a blender or something, and like some sort of theoretical blended average is what really counts. That’s not how it works. It’s the actual interactions that count, not some theoretical average. The abuse is real, and significant, no matter what else happened.

It doesn’t have to be one or the other. If some things about an abusive relationship were positive, it’s ok to acknowledge and value them.

And you can still refuse to ever have anything to do with your abuser ever again. You can still be angry. You can still hate them. You can still decide never to forgive them. You can still warn people against them. None of these things are mutually exclusive.

And, most importantly, valuing some aspects of the relationship or having some positive memories does not in *any way* mean the abuse was your fault.

All communities have predators

No place is inherently safe; every space ends up having predatory people in it.

Well-run communities/organizations/schools/whatever have things in place for dealing with this. And, from time to time, abusers hurt people, and the communities actually use the things they have in place for dealing with abuse.

And they will be able to tell you what those things are.

And if the community has been around for a years, they will be able to tell you about instances in which that has happened. (In general terms; they don’t have to (and usually shouldn’t) reveal identifying details).

If a school or business or something gives a training on harassment, and they can’t tell you what’s happened in the past when abuse has happened, and they only say “we take that very seriously”, it’s a major red flag.

If a community/school/whatever tells you that abuse can’t happen there because of how great people are, or how much training there is, or anything like that – that’s an even bigger red flag.

The safest communities are those that recognize that no space is safe all the time, and that it’s always necessary to be on the lookout for abuse.

Even more on learning no

Boundaries are complicated.

Sometimes you want someone to stop doing something, and you have every right to demand that they stop. Sometimes you don’t, because it’s something they have every right to do.

Sometimes it depends on the relationship.

Sometimes it’s very, very ambiguous.

Sometimes it’s the kind of thing where it’s ok to ask, but not ok to demand.

And this works in reverse. Sometimes it’s ok for people to demand that you stop doing something; sometimes it’s ok to ask but not demand; sometimes it depends on the relationship; sometimes it’s ambiguous.

When you’ve been taught that you aren’t allowed to have any boundaries, part of what that means is that you’ve probably been prevented from learning the tools to tell which things it is and isn’t ok to demand, insist on, or request. The relationships and various categories of obligations are probably unbelievably confusing.

Part of learning how to have boundaries is learning how to respect other people’s boundaries. Respecting boundaries isn’t at all the same as deferring to people, but the difference can be really hard to sort out.

This means that when you start learning to have boundaries, you’re going to make a lot of mistakes. You’re going to demand things it’s not really ok to demand, and you’re going to refuse things it’s not really ok to refuse. You’re going to make mistakes about other people’s boundaries.

And you’re going to hurt people, including yourself.

That’s unavoidable, because it takes time to learn these things. This doesn’t mean you should give up.

Sometimes, while you’re learning about boundaries and making a lot of mistakes that hurt yourself and others, you might feel like you should give up. You might feel like you are irredeemably bad, and that maybe you’re just too awful to allowed to have boundaries. You might even feel like you’re too irredeemably awful to have the right to live (I’ve felt that, at times). These are really common and normal feelings for people who are learning this, but they’re not the reality.

You have the right to exist. You can learn this. You can learn how to have boundaries and respect other people’s boundaries. You can learn how to keep yourself safe and still treat other people well.

You have a lot to learn, and you have to keep caring how you treat people. It’s important to keep actively paying attention to your boundaries and other people’s. You have to continually work on it and improve, in both directions. You have to do the best you can, learn from your mistakes, and try to do better. You can do this. 

It’s ok that you are going to make a lot of mistakes. It’s not ok to ignore the mistakes you make. Part of learning to assert boundaries means that there are a lot of other skills you have to learn about understanding obligations and treating other people well. This gets messy.

You also have to accept that some of your mistakes are going to have consequences. On the extreme end, you might hurt people in ways that mess up relationships while you’re learning. Some mistakes you make might be deal-breaking for people you’d really like to remain close with. Even if it is not entirely your fault, even if you messed up ought of honest confusion, it still might be legitimately deal-breaking for someone else. You might get banned from cons you like. You might get fired. You might lose your place in a group you valued. It’s awful when that happens, but it’s bearable. It doesn’t mean you should give up. It means you should take what you’ve done seriously, keep learning, and leave the person you hurt alone if that’s what they want. 

Even when it’s not your fault you don’t know how to treat people, other people don’t have to tolerate it when you treat them badly. They also don’t have to sympathize, forgive you, or listen to explanations about how you came to misunderstand the situation. 

That’s the extreme end. That might not happen. What will definitely happen is that you will hurt people in more minor ways that almost everyone your age knows how to avoid. That doesn’t mean you’re a bad person, but you do have to take responsibility for what you do, fix things if you can, and keep learning.

This is hard, but it’s important, possible, and worth it.

Don’t give up.

More on learning to say no

When you first start learning how to say no, you won’t know how to do it politely.

This means that you’ll offend people. Even when you have every right to say no. Even when everyone agrees that it’s ok to say no.

Asserting boundaries politely is a skill worth acquiring, if you can do it. But that takes time and practice. It’s something that’s learned alongside learning how to have boundaries; it’s not something you can learn first as a prerequisite for being allowed to have boundaries.

And when you haven’t figured out how to say no politely, the reactions you get might look to you like evidence that you really *can’t* say no. It might look to you like you have to choose between having no boundaries, or hurting people in unreasonable ways.

This is especially true if you are a disabled person who has learned to pass as nondisabled by following rules. A lot of disabled people are taught that they must pass at all costs, and taught not to asset boundaries as part of this. Starting to learn to have boundaries will probably undermine your ability to pass. That can be terrifying, and some ways people react might be triggering. But you’re ok. You’re not broken. You’re allowed to have boundaries, even if it means looking weird. Even if it breaks rules. Even if people are offended. You are a person and you have rights.

The rules for politely asserting boundaries are really complicated. It takes time and practice to learn these rules. And not everyone can master them. And even people who can have to be rude sometimes in order to have boundaries, and that’s ok too. Being able to be polite is not a prerequisite for having rights.

It’s ok to say no, and it’s ok to have a rough time learning how.

One thing though

There are different kinds of no:

There’s a kind of no that’s asserting a boundary, and there’s a kind of no that’s pushing people around.

For instance, this are things that are personal boundaries:

  • Declining a job offer
  • Saying no to a date
  • Not sharing your computer with someone who wants to use it to check their email or look something up
  • Not letting someone hug you

These things are usually pushing someone around:

  • Telling someone they’re not allowed to talk to their friends
  • Telling someone they can’t read particular books or blogs, or watch certain movies
  • Telling someone they have to sit still and look normal and not wave their hands

It’s ok to say no without giving an explanation

RE:- boundaries without anger. Obviously there are exemptions to the following statement where “no” would be enough; but I think the reason a lot of people have problems with personal boundaries in this way is that when someone says no, they are reluctant to provide the reason. If denying/refusing a gift, offer or invitation, answering why is only polite, yet people get frustrated when people ask.

Here are several reasons that folks get annoyed when you ask why:

  • They might not know a clear reason, but know that they don’t want to do the thing. That’s ok. You don’t have to know your reason in order to decide to say no.
  • The reason for saying no might be rude to say. For instance, if you ask someone out and they find you physically unattractive, it would be considered very rude to say so. But it’s an entirely legitimate, and common, reason not to want to date someone.
  • If they’re rejecting a job offer, it might be because they’ve received another offer from someone they think it would be much more pleasant to work with. It can be very difficult to say this politely, and it’s not a good idea to offend people in your network by implying that you think it wouldn’t be nice to work with them.
  • The particular gift might be something they’re upset by the idea of possessing (eg: if you give them an itchy sweater), but it’s never considered polite to say that.
  • The reason might also be complicated to say. For instance, if they like a particular activity, but they find it overloading, so they only do the activity with people they know really well and who know how to react appropriately if the overload gets too bad. Most people don’t even understand that explanation on any level. More people say “of course I can handle that!” and then get offended if they don’t immediately accept that as true and agree to do the activity.
  • They might think that accepting your gift/offer/invitation will create a kind of relationship they don’t want, and not feel comfortable explaining that. Especially if they’re not quite sure why they feel that way.
  • The reason might be private. For instance, if you’re a man and you ask out a closeted lesbian, she has every right not to want to come out to you.
  • Or, if someone finds a particular kind of movie triggering because of past abuse, they might not want to tell people about this. They might rather just quietly say no.
  • They might think that if they give a reason, you’ll just argue about the reason. Given that you didn’t just take no for an answer to begin with, this is a legitimate concern

At bottom, people don’t owe you an explanation. When you ask for one, you’re implying that people need your permission to have boundaries. Further, you’re implying that you will only give this permission if you think they have a good reason.

Even if you don’t mean it that way, that’s how it comes off. It puts pressure on people that no one likes to experience. If they wanted to give you a reason, they would have done so when they said no to begin with.