Boundaries without anger

One of the hardest life skills is learning how to assert boundaries without being angry.

People will want you to do all kinds of things that it’s ok for them to want, and ok for you to say no to. It’s important to be able to say no even when you’re not angry or offended.

Some examples:

  • If someone asks you out, it’s ok to say no even if it was ok for the person to ask you
  • It’s ok not to want to answer personal questions, even if they weren’t offensive questions to ask
  • It’s ok to decide not to go to the movies with your friends
  • It’s ok to decide not to take particular job even if it’s a good offer and other people think you should

If you only know how to say no when you’re angry, it’s hard to say no to any of these things. And things like that come up pretty much constantly.

And if you do become angry and say no to something, it’s hard to keep saying no after you cool down. Especially when the person you got angry at didn’t really do anything wrong. It’s also hard to keep saying no if the person did do something wrong, but not in a way that made your level of anger reasonable.

And even if they did something seriously wrong, it’s not possible to stay angry constantly. If you can’t say no when you’re calm, it’s really hard to protect yourself.

If you can only say no when you’re angry, it makes it really hard to have boundaries. It’s usually easier and more comfortable to allow someone to cross a line than it is to become enraged. Over time, this can get really bad, even if each thing taken by itself wouldn’t have been a big deal.

Anger is important. It has its uses. But it’s important that it not be the only tool you have.

Learning to say no without having to get angry first is hard, but it’s important.

I know some things about how to learn that skill, but thus far I haven’t been able to put them into words. I’m working on it.

Complicated power relationships in a work context

Someone contracting with you to do something is like a boss, but it’s a different relationship; such a person is a client and a client is more like a customer. It’s your job to do what the customer wants but the customer isn’t in charge of the business. Or maybe I’m off base. Of course, if the disabled woman didn’t hire and can’t fire this person, the person’s working for the parents, then, aren’t they?
I think the power relationships between assistants/PAs/whatever and folks with disabilities are a lot more complicated than that.
Even with a direct hire, it’s more complicated than other types of employment. For instance, hiring someone to write a webpage for you is really different than hiring someone to do things you need in order to survive.
Especially, given that when people murder folks who are disabled enough to need extensive care, they often get away with it.
And there are all kinds of complications I don’t understand well.
I don’t know more to say about this, though. Do any of y’all?

Acknowledging power

When you have power over someone, it’s important to acknowledge it. If you don’t acknowledge that you have power, it’s hard to examine your use of it. If you’re not paying attention to how you’re using your power, you will come to abuse it, and you won’t notice.

Sometimes, when people are uncomfortable having power over others, they deal with this by telling jokes about it. These jokes are about either denying that they have power, or denying that they’d ever be capable of abusing it. For instance:

  • Jokes about how people who they have power over are really in charge  (eg: “Sometimes I say my secretary is *my* boss”, “I’m the teacher, but the kids are really running the show”.
  • Jokes about how they could abuse power. (“Next thing you know, I’ll be having you interns fetch my dry cleaning and babysitting my kids.”)
  • Jokes about how people could overthrow them. (“I see you three gossiping. Plotting a revolt?”)
  • Jokes about being an oppressive boss (“I’m such a big mean ogre.”)
  • Pretend unreasonable orders (“We all have to work until midnight… haha just kidding, go enjoy your family”)

These jokes are especially bad when they’re told by a powerful person to someone they outrank. They’re basically the humor equivilent of saying, “You’d better tell me that I don’t actually have power over you and that I never misuse it.”

Getting people to tell you that you’re a good person doesn’t help you to treat others well. Acknowledging your power, thinking about how you use it, and soliciting and listening to actual feedback does.

Accidental awkward eye contact

There some situations in which eye contact is considered inappropriate.

In neurotypical body language, initiating eye contact with someone means that you want to interact with them. It’s often the first stage of a conversation, or of flirtation.

This can lead to awkward situations for those of us who don’t make eye contact naturally and don’t have it in mind much. 

For instance, on the subway it is not considered appropriate to make eye contact with strangers. On the subway, people are supposed to leave each other alone.

People who make eye contact naturally kind of know where not to look, and don’t have to think about it much. For people who don’t use eye contact as a natural part of their communication, avoiding inappropriate eye contact can actually be difficult, since they don’t automatically pay attention to where not to look. 

If you look in the direction that would be for eye contact if you did that sort of thing, people will interpret it as an attempt to initiate eye contact with them. And they will often look back and smile weakly, because it is considered rude to ignore eye contact. But since they don’t want to talk to you, and it’s in a situation in which people expect not to talk to each other, it’s invasive.

For that reason, if you have this problem, it might help to intentionally figure out some other place to look in order to avoid inappropriate eye contact. (Eg, your bag, your phone, the floor, the ads).

About oppression analogies

This is a way different groups run into conflicts.

  • One group has seen historical discussions of something bad that used to happen to another group
  • They think this is over
  • They want to use this as an analogy for a group they are part of
  • So they say “well, what if x happened to that group?”
  • and then they don’t realize that actually, this thing still happens to that group all the time
  • and so they end up hurting the other group by erasing their experiences

Some common examples:

  • LGBT groups that say that they are the new civil rights movement, as though racism and discrimination have ended
  • Any time one group says “just substitute black for [my group] and no one would think this was ok (because there are still a lot of anti-black racists who do that thing; this isn’t over)
  • People using an analogy to the n-word to object to the way another group is discriminated against. (This is bad because the n-word is still routinely used against black people, and saying it still hurts people even if you think you aren’t racist)
  • Mental health advocates who say that people don’t get blamed for physical illness, so they shouldn’t be blamed for mental illness either (people get blamed for phyiscal illness all the time, especially chronic illness)
  • Eg "Imagine if you were blamed for having cancer”. 
  • Autistic advocates who say that asking them to make eye contact while talking is like asking someone with motor coordination problems to do pushups (which is a thing that happens too)
  • Comparing things the the Holocaust that aren’t similar (abortion opponents and animal rights activists often make these sorts of comparisons)

These are some examples I know about, and I know there are many I do not know about. What are some others? (And did I get any of these wrong?)

Asserting adulthood

A reader asked:

(TW: possible ableism(?)) This may be a bit of a strange question, but I am an older non-neurotypical person who has a hard time being taken seriously or seen as the adult that I am, and it makes me very insecure and upset when I am talked to, by my coworkers, in a patronizing manner or as if I am a child when I have shown myself to be their equal when it comes to the work we do. Would you happen to have any tips, if it’s not too much of a bother?

This might be something readers have more insight about than I do.

It’s also a bit abstract for me, because there are a number of ways that people fail to treat others like adults. I’m not sure which form it is.

From the way you’ve asked your question, it kind of sounds to me like maybe you feel like you have to prove that you deserve to be treated like an adult. I think it helps to realize that this is not actually something you have to prove. People who treat you like a child are doing something wrong.

And it would be wrong even if you weren’t good at your job. Your adulthood should not be on trial here.

Keeping this in mind makes it harder for people to mess with you.

As far as changing what they actually do, here are some thoughts:

  • You probably can’t convince them that they’re doing something wrong, and explaining it to them is unlikely to help
  • Because they’re likely to make it into a conversation about your feelings, and explain to you in patronizing tones why you’re imagining it and being too sensitive.
  • There might be things you can do unilaterally that help. For instance, it’s ok to interrupt them when they’re speaking to you in a patronizing tone
  • For instance, if you ask them where a file is, and they launch into a patronizing explanation of the filing system, it’s ok to say, “Yes, I know that. But I’m not sure which category this particular file goes into because [reason], do you know?”

Also, changing the way you dress might help:

  • If you’re dressing less formally than most people in your field, wearing more formal clothing might be helpful
  • If you are a man, Men’s Warehouse can explain the default rules of professional attire and help you find something to wear that’s considered appropriate to your body type.
  • I’m not sure how to do this if you’re a woman, though. The rules of female attire are really complicated
  • If you’re in a field in which formal attire isn’t expected, changing some things about your clothing still might help
  • For instance, if everyone wears t-shirts, it might help to avoid t-shirts that have pictures of things associated with childhood (eg: Care Bears, pictures of cartoon characters (including things like Adventure Time or My Little Pony that are also popular among some adults).
  • This is not guaranteed to work, and might make matters worse if it means you feel like you’re stuck trying to prove your adulthood
  • In any case, it’s not a moral obligation and not a precondition for being an adult. It’s something that may or may not be advisable in certain contexts, and it’s a personal choice

If you use stim toys, it might help to change the ones you use:

  • Toys that are also used by children are more likely to be perceived as childish
  • Eg: silly putty, beanie babies, legos, beads, marbles
  • Neoballs (little neodium magnet spheres you can build things with) are specifically not for children. The silver, gold, or nickel balls are more likely to be accepted than the brightly colored ones.
  • Tangle Toys can look professional in some contexts
  • This is not guaranteed to work, and might make matters worse if it means you feel like you’re stuck trying to prove your adulthood
  • In any case, it’s not a moral obligation and not a precondition for being an adult. It’s something that may or may not be advisable in certain contexts, and it’s a personal choice

It also might be time to look for another job with people who treat you better. Not all jobs are created equal. Not all working environments have the same culture. There might be other people who would respect you and your professional accomplishments more.

Do any of y’all have further suggestions? (Or think I’m wrong about any of this?)

Leave folks with service dogs alone

Related to your last post, no matter how much you like dogs, it is not okay to touch someone’s service dog without permission and if they say no, one needs to accept that. Also, not every person with a service dog wants to stop and chat about their dog with you.
This.

Don’t touch wheelchairs without permission

Touching someone’s wheelchair, or other mobility equipment, is a really big deal. You shouldn’t ever do this without permission.

Part of the reason this is a big deal is that most mobility equipment users experience their mobility device as part of their body. It’s invasive and bad to touch people without their permission.

But it’s actually even more wrong to touch mobility equipment without permission than it is to touch someone without permission generally. 

Messing up someone’s mobility equipment means they can’t get around. It can also sometimes cause immediate injury. It can also lead to injury by making the equipment less safe to use (for instance, if you screw up someone’s cushion and they can’t afford to get it fixed right away, that could cause a pressure sore.)

Touching mobility equipment without permission is a threat to use dangerous force and hurt someone or leave them stranded. Even if you don’t mean to be threatening. Even if you think you’re helping the person. Even if you think you’d never hurt anyone. It’s never ok to make another person that vulnerable without their permission (unless someone else is physically attacking you and you are in danger to the point that violent self-defense is justified.).

It’s sort of like… you don’t touch people without their permission. And you *especially* don’t grab someone without permission. And you *especially espeically* don’t put your hand on someone’s throat without permission. 

Moving someone’s mobility equipment without permission is like attacking someone with handcuffs. (Or worse).

Don’t do it.

The Past Didn’t Go Anywhere

“I have a good friend in the East, who comes to my shows and says, you sing a lot about the past, you can’t live in the past, you know. I say to him, I can go outside and pick up a rock that’s older than the oldest song you know,
and bring it back in here and drop it on your foot. Now the past didn’t go anywhere, did it? It’s right here, right now.
I always thought that anybody who told me I couldn’t live in the past was trying to get me to forget something that if I remembered it it would get them serious trouble.

Utah Phillips, “The Past Didn’t Go Anywhere”

Just about everyone who has been the victim of abuse, or has lived through something horrible, has been told that they need to stop living in the past. That they need to get over it and move on already, because things are different now.

But the past didn’t go anywhere. It’s still right here, right now. Everything that happened to you, everything they did to you – it all stays happened. And it never stops mattering. Because going through trauma changes things permanently. (and so does every other type of experience, for that matter. But not in the same way).

The past doesn’t have to stop mattering, and you don’t have to pretend that it doesn’t matter anymore. You can build a life, and make good things happen for yourself, even though the past didn’t go anywhere and it never stops mattering.

Even if sometimes you wake up terrified, even if you bear scars, even if you’ve lost a lot of abilities you once treasured, even if you’ve lost your community and everyone you once thought you could count on.

Life is still worth living, and good things are still possible. Even though the past didn’t go anywhere. And acknowledging that the past is still there and that it still matters makes it more possible to rebuild, not less.

Just like you can’t live in a physical abstraction and accepting the reality of your physical body and its limits makes life better, you can’t live in an abstraction of an imaginary theoretical mind that you might have had without the trauma. You have to live as the person you are, and build from there.

And your live is worthwhile, and important, even if some things never heal. The past didn’t go anywhere, but you can keep going.

Hunger can impair communication

Some people who can usually use language to communicate lose a lot of their words if they get too hungry.

When you’re hungry, you don’t have as many cognitive resources available, and some of what is available gets taken up by dealing with hunger. For some people, this can mean that the resources needed for language simply aren’t there.

If you’re finding that you often can’t speak well in the middle of the day, it’s possible that you are forgetting to eat. This might be the case even if you don’t feel hungry.

If you get used to not eating properly, it can be hard to notice hunger. If you’re too hungry for too long, sometimes you get used to automatically ignoring the sensations of hunger, which can make them hard to identify.

If you’re experiencing sudden cognitive or communication impairment, and you haven’t eaten recently, it might be a side effect of hunger. Sometimes, if you get too accustomed to the sensations of hunger, you don’t notice feeling hungry until it stops you from thinking well.

If you used to be able to use language reliably but are experiencing seriously diminished ability, it might mean that you haven’t been eating properly for a long time.

Hunger isn’t the only reason some people have intermittent language problems, and it’s not the only reason people lose language skills in a longer-term way. But it’s very common for people with communication disabilities to have dramatically worse communication problems when they are chronically hungry.

If you’re having communication problems that seem to be more severe than you expect, it’s worth checking to see if you’re also having trouble eating enough. And if you are, it’s worth making fixing that a priority.